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Sept. 28 was my 77th birthday,and I was looking for some more replies to this thread but it stops at this video. I had a complete hysterectomy after Stage 3 C ,starting in the Fallopian tubes. So far numbers have been good: 24 at last reading. Also had a lumpectomy for two very small cancers in the right breast-dr.didn’t feel that surgery was necessary but I didn’t want to handle the stress. Lookin at some of these numbers I cannot believe some of you are living with them! Why? Why don’t you have surgery? I am depressed at short term memory loss and fatigue but trust my blood test results and feel grateful at the competence of my medical team. I have Medicare and Unid Health Care and a supportive family. Am staying away from Letrasol as some friends have had severe psychological reactions to that and besides my primary cancer dr. Says the odds aren’t worth it. Please, those who are dealing with worse numbers: Why are you not getting treatment? With 💕
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Hi Susu2, I was diagnosed with stage 1 ovarian cancer in March of 2015. I was so excited to hit my 2 years NED in July, but was diagnosed with stage 2 breast cancer in August. And, I am BRCA negative. I had lumpectomy, getting ready for radiology and have started an aromatase inhibitor. ER/PR pos, HER neg. Worried about effect of more drugs. I have severe neuropathy from the chemo for the Ovarian cancer and on way too many meds for that. The fatigue, memory loss, and anxiety are at times overwhelming. Trying to balance pain management with fatigue mgmt is a problm...it changes day to day. I am 61, I am frustrated that I can no longer do what I used to, and no one, especially not my family members understand my limitations. They expect me to do all the things I used to do. Until now my OC number have been very good, I have my next follow up in November.
ChowMama
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@susu2, I'd like to introduce you to @chowmama2 who is an ovarian cancer survivor and just recently was also diagnosed with breast cancer. As an ovarian and breast cancer survivor yourself, I thought it would be good for you to meet.
Susu, you mention staying away from letrazole. Has your primary cancer doctor suggested using another aromatase inhibitor (AI) or is the risk of side effects higher than the treatment benefit of all AIs in your case?