Aortic Aneurysms – Introduce yourself & meet others

What is the failure rate of this surgery?

I was 50. I had 5 kids and a wife. It was a major surgery with weeks of coma. I would not do it at 81. There was so much pain and misery. I am hoping that I live to 81. I want to die quickly and I would not have surgery again knowing what I know. Most people who suffer from a complete dissection do not survive.

It depends upon a lot of factors. First, if it's an emergency situation, your odds drop markedly. Think of it this way: If you knew you were going to blow out a tire on the freeway, you'd pull over, get the spare ready, call for help, and pull far off the road. But, if you were going along at 75 MPH and the front driver's side tire suddenly blew, in a tunnel in the middle of nowhere, you might not have the same result.

Survival depends upon immediate diagnosis with a cross-sectional CT scan or bedside ultrasound. If you're across the street from the Mayo Clinic, that helps. If you're up North in the woods by yourself, well, you're probably not going to survive a dissection. The survival rate drops by 1% an hour if its untreated, although once it fully dissects you can bleed out very quickly.

The takeaway is that if your surgeon recommends surgery, get a second opinion to confirm it, and then do it. Waiting until it happens is too late. It's the most complex surgery there is and you want to make sure your surgeon is fully prepped, well in advance, with all the blood/plasma/staff/resources necessary for a great outcome.

I suppose this means I can cancel on the saving for my old age plan. The mutual fund "financial adviser" tell my I should invest any spare dollar in thier funds. I am starting to suspect their sincerity. Thank you for the advise I quit alcohol and cigarettes 40 years ago
I had a lot of fun when I was drinking heavy. Now I have something to look forward to.

I would ask for an ultrasound on the area around your nelly button ASAP. It could be your aneurysm, or your hernia or a variety of other thibgs. The ultrasound will give you answers and isn’t as expensive as an MRI. If insurance won’t pay for it and you can afford, it tell your Dr. you want it anyway, regardless of the insurance and get it done .

Hi John. Glad to hear your doing well. I'm in the waiting stage right now. I also an a ARA. My aneurysm is at 4.5 cm currently. This waiting stage can get worrisome sometimes. How did you deal with that? Thank you!

Hello. New to forum. Male 57. In generally good health: competitive marathoner (ran Boston a couple of times) and rower for many years but with borderline blood pressure and cholesterol. Recently diagnosed with an enlarged ascending aorta (5.0 cm) as part of a precautionary calcium CT scan done as part of my annual physical. The news came as a bit of shock since I was without symptoms. Doctor says I can have a procedure now or monitor it every six months and wait until it reaches 5.5. I'd prefer the latter. Trying to figure out permissible physical activity ranges (heart rate limits and weight lifting limits). I saw some fairly recent research in JAMA (Association of Ascending Aortic Dilatation and Long-term Endurance Exercise Among Older Masters-Level Athletes) indicating my situation is not that unusual for competitive older athletes (i.e., 45% of Head of the Charles rowers who were screened had a similar condition). Would be curious to hear from others in a similar situation and what they have done.

I’m in exactly the same boat as you, and it looks like we have Pittsburgh roots in common also. I’m a couple years older than you and my AAA is also at 5.0cm. Mayo advised be to continue to monitor right now since it seems to have been stable for several years. I don’t lift anything over 25 pounds but have been encouraged to continue other physical activity. Are you being monitored by Mayo?

It depends on your level of risk. My aorta dissected in 2015 at 50 years old. I was in the hospital cardiac ICU for about three weeks with two weeks in a coma. Your chance of surviving skyrockets if they do a scheduled, non-emergent, surgery. Most people who have a sudden AA dissection don't survive it. John Ritter, Alan Thicke, Lucille Ball. Knowing what I now know, I would elect to have the surgery if its an option. That way, you can prepare all of your estate documents, organize things for your spouse, arrange work leave, etc. Basically, it's the difference between scheduled a tire replacement when you see the bulge, versus having it blow out at 75-mph on a busy freeway. I'll take the former. Having survived the latter, I can tell you I would never risk it again (not that I'm going to get the chance). The dissection pain itself was so excruciating that I cannot describe really. It was like someone was tearing the skin off my back. Moreover, it happened on a San Diego business trip 1,600 miles from Minneapolis. It caused great trauma to my wife and family. It was expensive and I barely survived. I had blood clots, memory loss, damage to my vocal chords from emergency intubation, and a $1.4 million hospital bill (all but $13K paid by my medical insurance).

So, if I had it to do all over again I would elect to have the scheduled surgery in my hometown, on my schedule, after I had completely prepared my wife, kids, and clients for what was to come. Talk with your doctor.

No, I am not.