HCM Fatigue and Poor Sleep - What Can I Do?

Posted by selima109 @selima109, Apr 22, 2024

I have HCM and two stents, valves problems. I am 74. I am always tired.
Doctor add another blood pressure pill
But I still tired
I walking and getting exercise
Not very good sleeper
I give up don’t know what I should be doing

Interested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) Support Group.

@peggynurse

thank you for your info. I’m glad you are doing so well. I was on metoprolol succinate ER morning and night and trying to figure out if it’s better to just take it in the morning or at night.

Jump to this post

I switched taking the very same medication (my dose is 50 mg once a day), from night to morning. It did not seem to make a difference, I have good nights and not-so-good nights, I've had a septal myectomy, am not on any other heart meds other than a statin, also taken on the morning.

REPLY
@peggynurse

thank you for your info. I’m glad you are doing so well. I was on metoprolol succinate ER morning and night and trying to figure out if it’s better to just take it in the morning or at night.

Jump to this post

I take metoprolol succinate ER 100 mg in the morning and metoprolol succinate ER 50 mg at night. The only one who can adjust the dosage will be your cardiologist since he knows how the metoprolol may be interacting with camzyos 5 mg. I am not adjusting any medication that I keep taking the same way I took before I started camzyos on 3/29/24.

REPLY
@manuelpo

I take metoprolol succinate ER 100 mg in the morning and metoprolol succinate ER 50 mg at night. The only one who can adjust the dosage will be your cardiologist since he knows how the metoprolol may be interacting with camzyos 5 mg. I am not adjusting any medication that I keep taking the same way I took before I started camzyos on 3/29/24.

Jump to this post

Thanks for support
My cardiologist order jardiance
10mg
I started taking today
My blood pressure was still high

REPLY
@selima109

Thanks for support
My cardiologist order jardiance
10mg
I started taking today
My blood pressure was still high

Jump to this post

When the pills did not help this is what helped me to reduce a little bit my high blood pressure:

Avoided adding any salt in your food. All processed food has salt including the bread and milk. Avoided high sodium food (bacon, sausage, I saw the labels of food) I found low sodium food or no sodium food such as orange juice, fresh vegetables, rice I cooked with no salt at all. Reduced the amount of food I eat but I am still taking my vitamins. I loss over 20 pounds in 3 months and my blood pressure went down from 167/100 to 138/89. With the blood pressure medication during the day my blood pressure is now around 130/85. I took 1 mile to 1 mile and a half walk inside a grocery store to avoid the cold weather outside.
Avoided stress and try to get enough rest including a nap in the afternoon helped me a lot.
I hope this helps and you get better.

REPLY

I have had the same problem, I tried meditating but with no success. But recently (several weeks ago) I tried meditation using sites on YouTube. I cannot tell you how much difference it has made. It usually takes about 15 minutes for the relaxation to set in. I use one Tibetan site, and one Gregorian chant site. There are also free sites that feature so many soothing sounds like rain or ocean sounds. You can probably find something that soothes and relaxes you. I understand how you feel and wish you luck with finding a solution. Meditating with sounds has worked for me. I can usually sleep 6 to 8 hours now. Once in a while, my sleep is disturbed, but I keep meditating and it works for me.

REPLY

Being tired is probably connected to not sleeping well. I am 83 yrs old, have the same problem, and am still looking for a solution. I think my issue about sleeping is related to stress and my thyroid problem (I’ve had serious thyroid problems since I was 17 yrs old. It sounds like you are trying to do all the right things. Good luck.

REPLY

I will have surgery next month - septal myectomy. I will let you know how that turns out.

REPLY
@bestseller2025

I have been on 5mg of Camzyos for 6 days. I was always fatigued before and since taking Camzyos, I have not been able to sleep more than 3-4 hours per night. I wanted more energy, but I was not expecting this side effect. As a senior, I was always able to fall asleep quickly, though I would often awake for several hours during the night. Now, I am unable to fall asleep and when I am finally able to in the wee hours, I am only able to sleep for a few hours. Has anyone else experienced this as a side effect of taking Camzyos?

Jump to this post

I have been on Camzyos for 9months plus Metropolol, Diltiazem, Clopiderol, Atorvastatin heart meds. Getting to sleep and staying asleep is a problem I’ve not solved either. Sometimes a bowl of cereal in the early hours when I can’t sleep seems to help.

REPLY
@stayhealthy2

I have been on Camzyos for 9months plus Metropolol, Diltiazem, Clopiderol, Atorvastatin heart meds. Getting to sleep and staying asleep is a problem I’ve not solved either. Sometimes a bowl of cereal in the early hours when I can’t sleep seems to help.

Jump to this post

Have you tried switching your Camzyos dosage to the evening? I have and it has helped
All the best

REPLY
@stayhealthy2

I have been on Camzyos for 9months plus Metropolol, Diltiazem, Clopiderol, Atorvastatin heart meds. Getting to sleep and staying asleep is a problem I’ve not solved either. Sometimes a bowl of cereal in the early hours when I can’t sleep seems to help.

Jump to this post

Sorry ,I don’t use 3 of those meds.i use the statin
Funny my TV died. I stayed in bed I do go back to sleep when I wake up😂
Other wise I am up 230am I sill be up between 5- 520
I can’t eat at night I have water
You tried going for walk in evening I don’t know where you live.
I am in Michigan
I get out to gym walk treadmill
Or go grocery store walk every row,
And go to bed early
These are what I do
What you do to enprove your sleeping?
By the way I am taking 3 blood pressure pills.

REPLY
Please sign in or register to post a reply.