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Neuropathy pills: How to avoid scams?

Neuropathy | Last Active: 1 day ago | Replies (732)

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@bigjohnscho

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

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Replies to "I am new to this forum although I have been suffering with peripheral neuropathy for 2..."

Low thc and higher cbd percentages. From a licensed and regulated cannabis dispensary. Personal experience of myself, partner, and fellow medical cannabis patients. Period.

Thank you so much for posting this I think everything you posted You must be some form of mind reader because I don't have one comment and that's ditto I suffer everyday and I'm getting ready to go to Mayo's on the 20th I'm going to have my possibly well it'll be worse than that but I'm going to have a fourth shoulder replacement and I broke my humerus bone over a year ago and I've had nothing done to it So my arm used to say in my referring surgeons words a mess! That being said I really believe that times minorothy and my feet out overshadows the pain in my shoulder and my shoulder looks like outside of an alien movie! Hopefully we can find some relief somewhere along the line cuz mine is horrible!

I am so glad you asked this and want to see all of the responses

I have had PN for 12 years. It began shortly after a rear end crash in my car, although at the time I also had symptoms of high blood sugar... not in the high, pre-diabetic range, but close enough for me to be concerned about working at lowering A1C and glucose. As I went about seeking cause and treatment, I have done all the usual things. This PN might be called "a blessing in disguise," for my overall health, as I have exercised more and have taken strict control over my diet. I have tried Gabapentin & Lyrica, with no improvement in my symptoms. I may have arrested the progress of my pain and numbness, which is now limited to my feet, toes, ankles, and lower legs and does not seem to be worsening or spreading. What I really want is to be sure that I have been tested for all possible causes. I have too often been discharge with the "idiopathic" "diagnosis." I idiopathic is NOT a diagnosis. It is an easy way for a doctor to say there is nothing that can be done. I need a 'point guard" who will take the trouble to coordinate the analysis of my blood tests, MRIs, and Xrays. I have this stubborn idea that there is a reason/cause for everything, if only a person with PN (or any condition, for that matter) will take the time and effort to not give up until the CAUSE is found. Any leads, both for solutions or dead ends, will be appreciated. I sound cynical, but it's really that I am totally frustrated with the time, effort, money, and anguish I have spent spent on the condition, with very little to show for it. Thanks!!!

Has anyone come across the advert for a drug called Lysozyme?This drug is being advertised on Facebook. It is supposed to cure neuropathy. It’s the same old story, the ingredients are found on a remote island called Acaria where neuropathy is none existent. The advert is selling the Protocol on the ingredients and how to use them. The cost is approximately £30. Please post if you know about it.

I've been using St. John's wort oil on my feet and the itching and burning go away. I apply it at night and the itching stops in a matter of minutes.

Please advise me on when and how long to wear "compression socks" for my neuropathy. I have searched online for relief and found that everything under the sun is sold to help, such as socks, pills, vitamins, machines that give off impulses, heat, etc., and too many other things to mention. It is all very confusing and frustrating. I have previously tried several prescriptions, but none have helped significantly. My family doctor said some of his other patients get relief with the compression socks, so I bought a pair. But, do I wear them all the time, at night, with shoes or only without shoes, etc.? Thanks you for any input.

I have been suffering from burning feet for a long time. I’m guessing but Ithink it started when my GP put me on mirtazapine. Has anyone experienced this.

Thanks to Reddit I found this new study using Oxybutynin gel for diabetic neuropathy: https://link.springer.com/article/10.1007/s00401-024-02710-4

“A randomized, double-blind, placebo-controlled interventional trial was performed in subjects with type 2 diabetes and established peripheral neuropathy. Subjects received daily topical treatment with 3% oxybutynin gel or placebo for 6 months. The a priori designated primary endpoint, significant change in intra-epidermal nerve fibre density (IENFD) in skin biopsies taken before and after 20 weeks of treatments, was met by oxybutynin but not placebo. Secondary endpoints showing significant improvement with oxybutynin treatment included scores on clinical neuropathy, pain and quality of life scales.”

These worked great fot me after trying just about everything else.
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Neuropathy Socks - Ankle Compression Sleeve for Foot - Stunor Dr.Neuropathy Socks - Neuropathy Plantar Fasciitis Achilles Ankle Socks - Neuropathy Socks for Men and Women

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To choose your size, reference your U.S. shoe size, and refer to the sizing chart in the images; wide range of neuropathy compression sock sizes are available to comfortably fit and soothe all teen to adult men and women foot sizes.
Neuropathy Socks --- Stunor neuropathy socks for women and man are suitable for acute and chronic injuries. The thermally active material of the support belt promotes blood circulation in the affected ankle, warm the ankle and relieve ankle pain.
Superior Comfort and Breathable --- Our comprex compression socks are filled with precious Nano scale Lycra that ensures long-lasting comfort and durability, and takes care of your tender feet.
Relieves Foot Pain --- Soothe socks promote blood flow to relieve swelling and provide energy for tired, aching feet and ankles. Which provides ultimate pain relief from a variety of ailments including plantar fasciitis, arthritis, sprains, swelling, tendonitis, muscle fatigue, and other ankle pain.
Relieve foot pressure --- Neuropathy compression socks provide soothing compression to your sore feet and ankles; toeless therapy socks effectively increase blood flow circulation and decrease painful swelling along the foot, providing pain relief to your feet.
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BraceAbility Neuropathy Socks - Peripheral Neuritis Compression Diabetic Toeless Foot Sleeves for Nerve Damage Pain in Feet, Ankle Gout, Plantar Fasciitis Relief Brace for Men and Women (S - Black)
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Reviewed in the United States on April 28, 2024
Size: L/XLColor: Black
I recently tried these neuropathy compression socks to help alleviate some foot and ankle discomfort I've been experiencing. They're designed to provide targeted compression and support. The socks are made from a blend of nylon and lycra materials that allows for a... See more
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XXL for sure for size 11.5 or bigger.
Reviewed in the United States on March 7, 2024
Size: L/XLColor: Black
XXL pair are tight for my size 13 feet, but I like the tight compression they give me. I have worn them no more than 2 hours first for jogging or walking, then I increase wearing time one more hour each time to 6 hours max. They are soft, stretchy and comfortable. I... See more
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