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Neuropathy pills: How to avoid scams?

Neuropathy | Last Active: 1 day ago | Replies (732)

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@bigjohnscho

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

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Replies to "I am new to this forum although I have been suffering with peripheral neuropathy for 2..."

My pulmonologist suggested I take Gabapentin, so my primary doctor prescribed this for me. I am up to 2400mg per day. It helps but I still have difficulty with the pins and heat and worn-out stuff but at about a 5 rather than a 10+.
So, I stumbled upon this pill and am just beginning to research. Take it away if you have a say! Thanks and cheers from Jill

I have diabetic neuropathy in my feet and before I took any prescription drugs I tried Nerve Control 911 and it worked, for a while. When the neuropathy got worse I got a prescription for cyclobenzaphine, 5mg. It stopped the electric shock type pain I was experiencing. Later on I began to have burning toes at night. Really severe. The doctor gave me pregabalin 25mg. That stopped the burning however the skin on my toes peeled off and left open sores on 4 of my toes. I continue to take all three pills as I’m afraid to quit for fear the pain, electric shock and burning will come back. Tomorrow I have my first appointment with a neurologist. It’s taken me over a year to get an appointment. I’m anxious to hear what she has to say.

Hello! I have taken Oxcarbezaprine 4x a day, Gabapentin 2x a day and I have a spinal implant.
All of that lets me at least control it mostly, but my thinking and life have been severely affected.

I have had SFN for 15 years and been looking for relief everywhere. The best I’ve found for pain is LDN ~Low Dose naltrexone but I have found absolutely nothing for numbness & presently I am at the end of my rope.
A friend just suggested looking into Hyperbaric Oxygen Therapy for Chronic Neuropathic Pain.
I just found this ~ Hyperbaric Oxygen Therapy (HBOT) is an effective treatment for neuropathy. By driving oxygen deep into tissues, it reduces cell death and pain symptoms. Hyperbaric oxygen also stimulates the growth of new blood vessels, enabling the body to increase effective oxygen and nutrient delivery.
Has anyone had experience with this? Please let me know.
Thanks.
BTS

Is Pirenzepine approved in the USA. Has anyone tried it and what were the results. I’ve read quite a lot about it and it seems to be the first medication that offers a cure.

This supplement has ingredients that supposedly help regenerate damaged nerves and include folic acid, alpha lipoic acid, lions mane mushroom, vit B6 &B12, Benfotiamine, etc.? And if so has it done some good?

I take gabapentin and it doesn’t help anymore.

Gabapentin does nothing for me.My pain gets so bad I can’t stand it.

I have just started (June 15) taking 2.4g Cat's Claw with 2700mg of Gabapentin for my PN. I take one 900mg Gabapentin and two 2 Cat's Claw twice a day. Then one 900mg Gabapentin and one Cat's Claw once a day.

Gabapentin helps. I wouldn't be able to do most activities without it. It helps me to "push through the burn". I have been painting pictures on my walls and gardening. I plan to bow hunt. Driving is better but my left leg gets burning sore after a bit. It does just sitting after a bit.

Let's see what Cat's Claw will do to help. Has anyone tried Cat's Claw?

If you’re concerned as to whether a product is effective or not look to the FDA for approval of clinical trial validation of the product. The true test is a Phase III clinical trial that was double blinded so that neither doctor or patient knew what a patient was given. As an example currently PRP or plasma and a high concentration of platelets which many docs are hawking patient patients. No Phase III study has proved it works as yet except in bone grafting while other uses are considered investigational and no covered by insurance.