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Neuropathy pills: How to avoid scams?

Neuropathy | Last Active: 2 days ago | Replies (732)

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@bigjohnscho

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

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Replies to "I am new to this forum although I have been suffering with peripheral neuropathy for 2..."

Honestly, I’m 77. My brain still feels and works like I’m 30. However my body feels more like 100. I walk with a cane. I have poor balance. The neuropathy started when I was 63. Now the neuropathy is severe from my hips to my toes. Nerve conduction tests revealed that every nerve in my body is inflammed. Although, no damage. Next step was as spinal tap. Came back negative. Next step lidocaine infusion. 4 weeks in a row. Four hrs each weekly visit. Now 15 years later I can’t exercise at all. Can’t walk or bike ride. Everything out there is a scam. I have a very good Dr and prescription regimen daily. So I have a functional life during the day. But suffer more at night. Then it’s ice pack time.

Did anyone here tried ReBuilders devise for neuropathy?
Them site shows good testimonials...
https://rebuildermedical.com/

Any neurofeedback already offered as of now is most likely charlatanry and not built on scientific ground. It's easy for psychiatrists and neurologists to make some easy money.

@sh0rtie I have been on the same quest like the rest of you. When you talk to the doctor, they just up front tell you there is nothing that can be done. I can't stand that numb feeling that creeps up and down my legs and feet at will SO this is what I have done and I have to say it has helped a little. First, I bought myself some reflexology shoes ( I call them torture shoes) from Amazon. I wear them with socks for 30 minutes a day in the morning. Then I bought some barefoot shoes to wear in the house because it hurts my ankles to go without shoes these days. Both seem to help if I do it regularly. I also have a pair of the muscle massage shoes that I got from Amazon. I do that about 3 times a week. My primary care doctor told me his wife has neuropathy and takes Alpha Lipoic Acid. I got some and take 600 mg every day. I can honestly say what has given me the most help is the Alpha Lipoic Acid. I don't feel it creeping up my legs anymore. Sometimes I almost think I have some feeling in a couple of toes. I don't have ongoing pain but at night I am fighting the itching in my toes. It is hard to sleep. I wish I had better news but I am excited to have found a little relief. Laura Henderson

Hi Friends,
My husband has had painful burning neuropathy in his feet for the past two years. I have bought so many lotions, pain pads, etc. and nothing really worked.I did buy him barefoot Lorax shoes by Hike. He said “don’t waste your money.”. Well, he now says they are the best shoes and his pain level has significantly gone down. It didn’t happen all at once, but after a few weeks of wearing them, his pain level DID go down. He also started taking pregablin (the generic form of Lyrica)…two 50 mg pills three times a day. Both of these changes have helped him so much! Everyone is different, but it has been a lifesaver for my husband.

I have had peripheral neuropathy (non-diabetic) for over 30 years. MS was ruled out after 10 years. A Dr. prescribed a high dose of gabapentin, which has made the pain somewhat manageable. I have pain in both hands and feet. I am now researching electrical stimulation massages, like Nooro, to see if it is worth purchasing. I'm still researching this.

I am researching electric stimulation massage, like Nooro, that is supposed to relieve neuropathy foot pain. Has anyone tried this? I have had non-diabetic peripheral in hands and feet for over 30 years and have been on a gabapentin high dose, 3000 mg daily, for 20 years. I don't know what I'd do without it. Yet, I worry about using it forever and would love to be able to walk more than 2 miles and ride a bike. Has anyone tried Nooro, or the like?

Anyone have success with Tamarack

@sh0rtie Gabapintin did nothing for me. I took it for two years. I have just started taking Alpha Lipoic Acid at 600mg. I think it is helping a little and sometimes I can feel sensations in my toes. I also use leg massagers - the ones you put your legs in. Mine has three different programs and I go through all three every time I use it. That seems to help also. Good luck Laura Henderson

Guess I will never find relief until I’m 6 foot under i have come to that conclusion