Hi John, Thanks for the information. I will look it up.
@wolfie1, Hang in there. Whenever it is happening, know someone - many someones - are also feeling pain.
Thanks, Guys, Stef

Try Nerve Control 911! It works for me! I’ve taken it for 3 years. I have PN diabetic. Pain was excruciating before I found this capsule. I take 2 a day. Also tried cyclobenzaprine & Pregabalin with no effect. I’ve shared this more than once on this website but have never seen it posted. ??? I’m only trying to share what works for me.

Hello there,
I am new to this group but at 76 I tried to get out of bed one morning about six years ago and the bedroom ceuling literally was spinning round, I stood up lost my balance and fell back on the bed after few minutes I finally tried again and hanging onto the walls, kitchen tables etc.. I made it to the washroom and hanging on to the sink I found some relief all the while my head was spinning.
Later on that morning I decided to go get a coffee from a coffee shop and walking or actually staggering because my balance was way off I made it to the store a couple of blocks away drawing curious looks from passersbys who probably thought I was severely drunk first thing in the morning!
Later on that day I bought a cain and called my neurologist for an appointment.
She said after examining me and I quote "my mother has the same thing and if your balance or condition doesn't improve in two years you're stuck with it"?
I've had several ear and throat specialist doctors examine me and they all eliminated ear as cause of my imbalance, I am OK driving a car, watch TV, and short walks etc.. all activities that don't require extended walking otherwise I use a Cain and for longer walks I use a walker.
About a year and a half ago I finally got a new neurologist and after some tests she determined that the nerves in my feet do not connect to my brain (nerve deceise)

To continue...
My new neurologist determined I have nerve problem (it is sick) and sent me to a RHEUMATOLOGY for an appointment.
Rheumatology specialist doctor after reading my test results said I have Neuropathy and they treat it here in this hospital with 70% success rate!
I was in 7th heaven, finally my imbalance problems may get treated!
I was prescribed infusion of IMMUNOGLOBULIN 80 mg twice a month since February 2024 with no noticible improvements in my balance so after a few months they taught me how to administer extra doses 20 mg per week at home.
Hospital send several boxes of medical supplies syringes a pump etc... and Vials of IMMUNOGLOBULIN to my home at no charge (thank you Canadian Health System).
Sadly 10 months into treatment I don't see any I mean ANY improvements in my condition my balance hasn't improved, the only thing that I noticed is the ringing in my ears has decreased in volume and sometimes it disappears completely.
I am going to continue with this infusion of IMMUNOGLOBULIN until February 2025 and the doctor will suggest other treatment if there is still no improvement.
Tomorrow November 12, 2024 I have an appointment with private medical clinic that offers physical therapy and other treatments for Neuropathy I will keep you posted if I will sign up I need to try some additional remedies this loss of balance has ruined my life and I am not willing to give up just yet, thank you for letting me venting sharing is also a form of therapy.
Seadog

Has anyone heard of Nerve Forte to help with the pain and numbness of neuropathy? How about MMP13 enzyme that is suppose to be the root cause of neuropathy? Can't get a good nights rest due to itching and stabbing pains in feet. I have a pair of reflexology shoes that I wear in the evenings and they seem to help some. I am open to suggestions for help. Thank you, Laura Henderson

Well, I'm not sure which of these has helped, but I no longer take (almost) anything for PN pain.
1) VEIN ABLATION/PHLEBECTOMY I had itching on my left (the more painful side) inner thigh and some of the veins in my calf were painful to touch. I took no meds relating to this and I don't know if it was the removal of the veins which were another source of nocive stimuli, or the compression stocking that I wore in association with the procedure, but the drop in intensity and frequency of the PN symptoms was immediate.
2) My GFR is down to 40 and I'm drinking a LOT more water to try to help mt kidneys filtering function.
3) I've been taking a capsule of fish oil (there seems to be some evidence of beneficial effects combining enalapril which I take for HBP and fish oil) as well as
Pre-DX Nerve support. I started taking these around the same time as the vein procedure so the timing makes it more difficult to say which is more important, although I still seem to have less pain when I wear the compression stocking.

Hope any of this may be useful to some one!

Thanks for the wealth of information,,,,I am going to be 89 next March, so life has afforded me some time for
adventure and great times...so the neuropathy has played a small part of my life.....I was in Asia Pacific when the problem started the it was sometime after returning home that I was told what the problem was...the first few years were tough, as I had pain, numbness, needles , cold and sometimes my foot would twist sideways ..
My balance is a bit of a problem and i have fallen a couple of times when working in the yard...
Herbert C Wyness

@wynesshc I am taking B-12 Complex drops by Native Path. I take 1 dropper full every morning. I have bought some reflexology shoes that I wear every day for at least 30 minutes. If I feel that numbing feeling coming on when I put the shoes on and walk I can feel that it fade away to some degree. I haven't succeeded in getting that feeling to leave my feet. I also bought a pair of barefoot shoes that I wear when I am in the house and wear them all day long. It seems to help a bit to contain the numbing that is going on. Thank you for replying to my post.

I am not sure how information travels on this network, so again, my daughter has neuropathy in her arms,
and after much research, she and her then doctor came up with this mix....hc wyness

Stay away from Chiropractors and their Neuropathy treatments. I was seeing one for another issue and they offered a program for Neuropathy treatment. The cost was $6,500 (also offer financing).