← Return to Neuropathy pills: How to avoid scams?
DiscussionNeuropathy pills: How to avoid scams?
Neuropathy | Last Active: 2 days ago | Replies (732)Comment receiving replies
Replies to "I am new to this forum although I have been suffering with peripheral neuropathy for 2..."
That’s a great idea,
New Renew (no help)
Alpha Lipoic Acid (not sure if it helps or not but I take it because some people said it helps)
B12(took so much my doctor told me to stop, did not have a B12 deficiency so I stop taking it)
Extra strength Tylenol (helps with my aching legs, I guess it reduces the swelling and inflammation and gives me some relief)
Pain Meds (if I didn’t have pain medicine I would go insane with this crap)
Gabapentin (why do I take this? I don’t know if it helps or not but the doctor said to take it so I do, 1300 mg/day
Nothing out there helps except pain meds, and I know but it will kill you, so will neuropathy in its own way, slowly and never leaving.
It’s worst than an addiction, at least with an addition you can get some help!
I wish I could give someone good news but there isn’t any for me. Just more of the same pain.
Hi iam a late 70s guy pn for 5 years like many iv tried everything creams tabs eg amptidripline b12 nitric oxide r ala I do rem once a co I deal with nerve renew USA based one time saying although we all know its not supposed 2 be curable some things work for some and not for all about 3 years ago I bought a pair of those neumatic leg boots about160 us dollars now you can buy the same ones for 70 2 80 sterling I read that I should use them twice a day once say lunch time and once fir about 40 mins b 4 bed well it's working I know get 6 2 7 hours sleep due to better blood circulation now the pn is still there in my case burning but I sleep better enabling me t cope with the next day more easily I recon iv spent 3000 sterling over 6 years dictors nuerolisists creams tabs etc this works for me no need to spend 1000 pounds for high end neumatic boots they are for fit young athletes if you can sleep more without getting up every 2 hours to put on ice socks it's worth it I recon 80 dollars to help your blood circulation is worth it I also walk 1 hour a say yes ut burns and I swim 30 mins a day blood circulation is everything weather u have burning pain or numbness james from ireland
I should have said I used the phenomatic 6 times and gave up big mistake I have been advised twice a day 30 mins 2 40 mins especially b 4 bed
It is interesting to see that our suffering companions are as numerous as the remedies we have tried. One thing is an undeniable truth, we are all as different as the remedies tried. As one of you pointed out, what works for one does not for others. We have war stories, some time similar, and sometimes so different that it makes you ponder whether there will ever be a cure, and if so, will it be within our life time or not. I wish it could, just as some cancers are curable when it was once thought it was a death sentence. I can only keep on trucking and trying whatever might work hoping it would help me with this malady. Keep on trying you all and be blessed in your journey. Anton
I have it in my feet I had chemo and radiation I am wondering if the course it.
@antonintampfl2009 - Your comment above relating to dedicating time and money for a cure for those of us with PN because it is not life threatening ... you are 100% correct. And, for several years I've thought the same way and still do. Let's go back to 2020, we all remember covid and the loss of lives. Within a year, a vaccine was available by several pharmaceutical companies. Yet, with PN, most people think....oh, isn't that just numbness in the feet? If they only knew, it goes well beyond that. We have around 25 million people with some degree of PN. The general perception is people can live with that and fortunately, we do. Some degree of attention is given to PN when people like Eric Clapton announce he has PN. In my opinion, big pharm companies won't throw money into research for PN...after all, it's just numbness in the feet. And, even if they could develop a magic pill, would insurance companies be willing to pay the price for this newly found med? So, for now, all we can do is slow progression, take pain meds, etc. until pharm companies realize that perhaps there is a market (a/k/a make money) to develop something for those suffering from PN. For now, fingers crossed! Ed
I have chronic pain with neuropathy and no opioid helps. Looking for something that might help with my pain.
Hi, I am desperate. So I researched Palmitoylethanolamide (PEA) and articles lead me to believe it won't kill me 🙂
I took one of the two suggested pills. Nothing happened to me thus far...
Thanks. I'm sorry for your pain/numbness situation. Stef
Hi Again, I don't know if I broke some rule mentioning PEA supplement. I'm new here. I am not a seller of this supplement in any way. Stef
Since I am already on this discussion, I would like to throw this out there. For the last year or so, my right big toe has been giving me issues. On occasion it will suddenly flare up in pain that feels like someone is driving a nail into it. Usually happens at night. Many nights I can't even have it under the covers in bed. I have to pull my right foot out and put it on top of the sheets. Recently it looks almost angry red at times. Crazy, right? This goes along with my severe PN and a bunch of other stuff. When the toes flare up, I will massage it for all my might. That seems to help a bit.
I am on all kinds of meds...tramadol, gabapentin, diclofenac K, and other non-pain related drugs. This toe thing is a less serious issue compared to my lower back pain that radiates down both legs right into my toes. Just curious if any of you fellow commenters have experienced this and what, if anything, worked for you.
Wishing you all a blessed day!