I understand your feelings completely. I was in a 2 year evaluation period with 3 consecutive gastroenterologists before I was accurately diagnosed. What helped me the most was joining a chronic pain/chronic illness support group. There is a National Website on this group. I will try to find the URL and send the web address to you.<br>

Pain makes people very tired. So does the anxiety of a medical issue that isn't completely diagnosed or you don't feel the security of good medical care being available..... Still looking for that website for you. I have to rest midday everyday even though I am now on
medications that help me a great deal. I'm currently reading, "Chronic Pain: A Way Out by Stephen Colameco, MD. Our local hospital also offered a completely free class about Chronic Pain/Illness. We met once a week for 14 weeks. There were presentations from specialists.......amongst the group we had a lot of sharing about our experiences and doctors.

I live in Augusta ga. I am new to the area and have seen several doctors all of which have dropped the ball. I just seen a neurologist and Friday had brain scan with contrast. I had major anxiety attack no am virtually alone figuring this out. My husband is not supportive. They seen white matter on first MRI. More than what is acceptable for my age. This started June 1 and I'm beyond stressed out. I so unsure about how to navigate through all of this and who to turn too. I called s support group they were not accepting new patients. It's so difficult.

@tlgreg60 I'm so sorry to hear that you are not feeling heard by your medical team. Since you cannot find a support group, please use Mayo Connect as your support group. While I'm not familiar with your disorder it sounds like it has caused you pain as well as frustration and anxiety and that is all understandable. Please keep in touch, we care!

Thank you I appreciate that. It's really been scary. Trying to minimize research because I don't know but keep finding MS symptoms and how late k set is extremely serious. Ughb

@tlgreg60 My prayers and best wishes go with you today!

So sorry to hear about the frustrating experience you're having @tlgreg60.

The Facial Pain Association may have information or resources to help. They have a listing of MDs in Georgia and maybe if you reach out to them they could point you in the direction of further assistance: http://fpa-support.org/

Living with Facial pain is another support group that might be helpful: http://www.livingwithfacialpain.org/

Hi @tlgreg60. I moved the discussion you started about Trigeminal Neuralgia to this existing discussion so that you can also meet @lamerex4 and @uncbball.

Tlgreg - you may also be interested in reading In these discussions related to multiple sclerosis where you'll meet @manysilver @jessejames4534 @carolyns and @lal2

- https://connect.mayoclinic.org/discussion/i-have-had-a-batch-of-seemingly-unrelated-symptoms-for-a-few/
- https://connect.mayoclinic.org/discussion/are-my-symptoms-early-signs-of-multiple-sclerosis/
- https://connect.mayoclinic.org/discussion/multiple-sclerosisdepression/

Being in the doctor/care hamster wheel is exhausting. You mention that you had an brain scan with contrast last Friday (Aug 5). Who will you see to follow-up on the results of the scan?

Hi thank you for including me. I just got results I DO NOT have MS. but hardening of the arteries. I have a very strong family history of vein vascular issues. However I am still experiencing facial pain in the implants. <br><br>

So glad to hear that you don't have MS, tlgreg. Have you been diagnosed with atherosclerosis? http://www.mayoclinic.org/diseases-conditions/arteriosclerosis-atherosclerosis/home/ovc-20167019