Anyone else dealing with Demodex Mites? What helps?

Posted by medical1question @medical1question, Aug 10, 2022

Four years ago, with no history of any skin issues, I developed overnight red, pustules and papules on my eyebrows. Over the four years, I’ve gone to three dermatology groups known to be selected by other healthcare professionals, and have seen a total of seven practitioners. They have said it’s rosacea, seborrheic dermatitis, or actinic keratosis. I’ve been prescribed expensive new topicals, two different antibiotic courses, etc. Each visit I hear, “Well, you can try this.”

I’m an RN, and I know my body. I keep telling each dermatologist that I believe it could be an infestation or overpopulation of demodex; demodex reproduce at night on your skin (they live in hair follicles) and most evenings my eyebrows begin to itch about the time it’s getting dark. With needle-tipped tweezers, I can pull white cyndrically-shaped mucous-type material attached to a hair follicle. None of the practitioners have followed guidance from an article on the NIH website for ensuring there is a skin scraping or other method to obtain a demodex count. None has acknowledged the damaging effects on self image that abound in the literature for rosacea, with which demodex is associated. This post is in no way to disparage dermatologists in general, but I clearly don’t fit the mold of the repetitive frequently seen five minute visits to which they may be accustomed. Has anyone experienced an overpopulation of demodex? How was it diagnosed and treated? Thank you.

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nancyjg | @nancyjg | Apr 27 10:00am

In reply to @cmcg "Me again….. So, Inhave set up a zoom for Saturday 4/27 at 11AM ET. The invite..." + (show)

Looks like we need a passcode.

cmcg | @cmcg | Apr 27 10:01am

In reply to @gottab "Every time I search this entire site for info on demodex mite help, I get grover's..." + (show)

Mtg ID is 761 9296 9812
PW if asked: 8L5G2

nancyjg | @nancyjg | Apr 27 10:03am

In reply to @cmcg "Thought I set it up without a pw, but if prompted: PW: 8L5G2" + (show)

The password isn't working.

nancyjg | @nancyjg | Apr 27 10:09am

In reply to @nancyjg "The password isn't working." + (show)

Is anyone in?

cmcg | @cmcg | Apr 27 10:12am

In reply to @gottab "Every time I search this entire site for info on demodex mite help, I get grover's..." + (show)

Mtg ID: 761 9296 9812
Code: 8L5G2

cmcg | @cmcg | Apr 27 10:14am

In reply to @gottab "Every time I search this entire site for info on demodex mite help, I get grover's..." + (show)

Hmmmm….. no one on the zoom. Let me see what else I can do!

cmcg | @cmcg | Apr 27 10:14am

In reply to @gottab "Every time I search this entire site for info on demodex mite help, I get grover's..." + (show)

Zoom mtg link:
https://us04web.zoom.us/j/76192969812?pwd=dVr4d8hbV5jgbkec6elT5X3tLCvkla.1

cmcg | @cmcg | Apr 27 10:18am

In reply to @gottab "Every time I search this entire site for info on demodex mite help, I get grover's..." + (show)

Zoom link:
https://us04web.zoom.us/j/76192969812?pwd=dVr4d8hbV5jgbkec6elT5X3tLCvkla.1

cmcg | @cmcg | Apr 27 10:19am

In reply to @gottab "Every time I search this entire site for info on demodex mite help, I get grover's..." + (show)

I got right in from my phone clicking on the above link.

nancyjg | @nancyjg | Apr 27 10:19am

In reply to @cmcg "Hmmmm….. no one on the zoom. Let me see what else I can do!" + (show)

It's never easy with those demodex!

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