Sharp pain in groin and penis started two weeks after catheter removal

I am now home from Mayo Rochester, cystoscopy and exam revealed what they believe to be Lichen Sclerosus. Rare apparently for men and especially for me. I do have some scar tissue in the urethra but not overly restrictive to flow. They sent me home with a treatment regimen of intra urethral ( self catheter) application of a steroid ointment,
Clobetasol .05 percent. I’m on week two and have no relief yet. The entire treatment course slowly titrates down from every day to once a week of 10 weeks approximately.

Wow! New to this post. I had RP June 21, 2023, went home the same day with a catheter attached, and had an appointment to have the catheter removed a week later. All went well could pee like a horse, then a couple of days later could not pee. Went to the hospital in excruciating pain as the bladder was full, finally got in and saw a on staff doctor. He prepped to insert new catheter, and I swear, when inserting the numbing agent he pushed that plunger with all the force he could, on top of the bladder pain for not being able to pee and the pain associated with filling the urethra with what was supposed to be gel to ease the pain of inserting a new catheter, it hurt like hell. Long and short of the new catheter was in smaller than the original, and two days later back to the hospital to have it removed as I could not pee and it was leaking between the catheter and the urethra. This time a lady doctor and her assistant removed the catheter, and inserted the correct size with no pain at all, I was impressed! I think was a week or week and a half later went to the Urologist and had it removed. Could pee like a horse now all was good. That was two weeks ago. Gradually the stream weakened and and it is almost like the pre-surgery was, but still able to start relatively quick. Now to the rest of the story. I have some pain/discomfort in the penis, like most people in this thread, burning at the urethra opening and feeling like someone stomped on the penis, feels bruised, but does not look bruised, and it is not inflamed or discolored nor swollen. I began to get worried but think it is all part of the normal healing that I need to go through, after reading this thread, with everything that has happened. I see my doctor next week for my PSA test results and hopefully it will be non-detectable. In my case 41% of the Prostrate was affected and the cancer started going up the neck of the bladder, but the surgeon said they got it all. Well that is my story, hope it helps someone else. Steve0.

@steve0, I thought I'd check in. How is the recovery going? How did your appointment go?

I have had the pain since my catheter was removed . In the groin and around into my butt. It has been one year. My urologist say it is muscle. I have tried acupuncture with no help. My pain will come and go

Also would appreciate any suggestion

The urologist may be on the right track. I am currently going to physical therapy for the pelvic floor.
They are telling me I have a lot of tension in my pelvic floor muscles. A bio feedback test shows this andI saw this on a screen. It is due to recovery from prostatectomy and strengthening the pelvic floor with Kegels to prevent incontinence.
It’s too early to tell but I am doing stretches now to relieve and relax that tension. The therapy was suggested by my new urologist after 2 1/2 years of searching for answers and going down quite a few expensive rabbit holes. My pain is more in the distal urethra however so…
For you it may be worth a try based on what you report here. I hope this may help you.

My Mayo update is that I did the 10 week treatment prescribed clobetasol and it did hep reduce inflamation some but I don’t think it is LS ( lichen schlerosis) nor does my new urologist here at home. I am now doing physical therapy with pelvic floor specialists to try to relieve tension in my pelvic floor muscles in hopes to eliminate distal urethral pain more.
Up stream urethra is considerably better. I still get a “pinch” at onset of urination occasionally and I still have some underlying urethral irritation however it’s better than a year ago.
Wow, a slow but hopefully full recovery . We shall see. 2 painful cystoscopies, self torture clobetasol catheterization, and questionable stricture diagnosis . I can still void my bladder completely.
It’s been a curious interesting journey to present since a 10/1/21 prostatectomy for Gleason 7 (3 plus 4)
Pc diagnosis after 3 years on active surveillance and 3 biopsies, 2 MRI ‘s.
ED is another consequence but this painful result has taken obvious priority.