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Coarctation of the Aorta
Hello! Any other parents here who had repair for their child’s coarctation of the arota at Mayo Clinic?
My son is 3 and just recently diagnosed and I have so many questions.
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Hello @afunt0708
My kids do not have CoA but I do. I had mine repaired at Mayo Rochester 2019 at 42 years old. Dr Pochettino did my surgery, and I could not have been in better hands. I had half of my aortic arch and most descending aorta replaced. They did it via thoracotomy. I was in the hospital 9 days and flew back to Florida on the 11th day post op. It was by no means an easy surgery- but in my experience (as an adult) there was no better place to be but Mayo. I would imagine this is a very different scenario for a child and there are many excellent pediatric heart centers- I cannot imagine how scary this must be for you! I would get second and third opinions if possible at big university centers and find the team you are most comfortable with. But after my experience I would not hesitate to send my child there, but again as an adult it is a very different experience and surgery so I don’t know if I am much help. Best wishes, thoughts and prayers your way!
Jeane
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5 Reactions@afunt0708, welcome. I can imagine you have loads of questions. I hope you saw the helpful response from @jeanern01. I'm also tagging @judytru to join this discussion.
Will your son be treated at Mayo Clinic? Which location?
Hello- my 47 year old husband was just diagnosed with coarctation of the aorta. We went to Mayo Rochester for chest pain evaluation and saw a cardiologist while there this past weekend. We are awaiting a call from congenital heart to get an appointment. Curious to learn more about the process other adults have gone through after being diagnosed. Thank you!