1. < Lung Cancer

Did anyone have a missed diagnosis of NSCLC?

Posted by franciekid @franciekid, Feb 3 8:37am

Did anyone have a missed diagnosis of NSCLC? I had a routine chest Xray in the ER incidental to any lung issues. The radiologist saw a suspicious nodule and recommended a CT scan follow up. The hospital never gave me the report. 4 months later, I was diagnosed with lung cancer. The nodule had grown from 1.4 to 3 cm. Curious as to how unique this is.

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abob | @abob | Apr 23 8:35pm
In reply to @pb50 "Yes to both. Go back on this thread and you will find he had a primary..." + (show)
@pb50

Yes to both. Go back on this thread and you will find he had a primary lung cancer and as he began chemo for that, an adrenal mass was observed. The hope was that it was a metastatic incidence of the lung cancer and if so it would demonstrate a reduction in size on CT. It did and so they are Celebrating

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Yes, thx. But Oncologist still thinks best course is to remove the adrenal due to possible sneaky remaining cancer specs. Just did final/4th LC chemo treatment yesterday. Will speak with surgeon.

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abob | @abob | Apr 30 10:30am
In reply to @lls8000 "@abob, Great! So glad that the mass has cleared, and that the chemo is doing its..." + (show)
@lls8000

@abob, Great! So glad that the mass has cleared, and that the chemo is doing its job! Thanks for posting the update.

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So very disappointed with communication btwn clinicians.

My husband’s LC tumor on adrenal gland no longer discernible following final LC chemo.

Oncologist recommends Adrenalectomy asap due to possible remaining cancer specs; 2 weeks ago she said she would discuss with surgical oncologist and request earlier followup appt with him,

Surgeon office just called to discuss good CT results (from 2 weeks ago) and to cancel his follow-up appt as no longer needed bc tumor is now indiscernible.

Since they did not connect, I requested from both that they pls do so asap. There’s just so much I can do to make this happen.

Is time not of the essence with cancer?

I see that we must be our own advocate. This is my husband’s life.

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