1. < Neuropathy

Muscle Spams and Neuropathy

Posted by jeanniem @jeanniem, Jun 10, 2021

I was diagnosed last year with small and large fiber neuropathy. Originally, the neurologist said that he thought it was a slow-moving peripheral neuropathy. Since then, it has been suggested that this is an atypical polyneuropathy. And things are advancing at a pretty regular basis.

One symptom that has increased significantly over the last couple of months is muscle spasms. I am having them in my lower leg and foot and there is one spasm in particular that just won't stop. It is beginning to last longer and longer. For those of you that have neuropathy, is this a common symptom?

Interested in more discussions like this? Go to the Neuropathy Support Group.

bjk3 | @bjk3 | Jan 7 12:11am
In reply to @lmkinn "Where do they sell KTN powder? At this point, I'm almost willing to try hemlock if..." + (show)
@lmkinn

Where do they sell KTN powder? At this point, I'm almost willing to try hemlock if I thought it would work. So far, nothing helps. I have a new spine stimulator and we're working on adjustments. Fingers crossed. Does anyone else have continuing muscle spasms or enormous cramps in thighs and other areas?

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Hi, @lmkinn, I have no info on KTN powder or another alternative ~ I just wanted to say that, yes, I have had, on occasion, enormous cramps in my thighs, and there is no word to describe that pain. It is absolutely debilitating and worse than any other leg or foot cramp that I have ever experienced. You are not alone on that one. I have found that drinking more water helps with almost every cramp, but it has to be consistent hydration, not just as a response to a particularly painful event.
I sure hope you have a great outcome with your spine stimulator. Will you keep us posted, please? Blessings!

REPLY
minfromtexas | @minfromtexas | Jan 7 6:41am
In reply to @sheilarob116 "I get cramps in my feet most mornings as I get out of bed, have to..." + (show)
@sheilarob116

I get cramps in my feet most mornings as I get out of bed, have to keep my toes pointed up till I get to the floor, I assume it is the neuropathy, also been getting spasms on R or L side of my stomach when I move to reach reach things or just stretch. Not sure if related or not. Bought some frankincense and myrrh cream, saw that it helped some people and not others, said takes a week or more to work, I have been using it twice a day for a week, and do not think it has helped at all, but I will keep it up for awhile to see.

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Stomach spasms...and I thought it was only me that got these. So weird, they don't hurt but they sure do get my attention. I also get spasms on the left side only of my genitals . How weird is that? I swear, if I'm crying I'm laughing at this strange disease.

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bettyg81pain | @bettyg81pain | Jan 7 9:29pm

I find if I don't drink enough water I get severe leg cramps. The drugstore has leg cramp pills that I find work and I do know people that keep mustard right by their nightstand so if they wake up in the middle of the night with leg cramps they grab it!!

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1 reply
mbl | @mbl | Jan 11 3:03pm
In reply to @lmkinn "Where do they sell KTN powder? At this point, I'm almost willing to try hemlock if..." + (show)
@lmkinn

Where do they sell KTN powder? At this point, I'm almost willing to try hemlock if I thought it would work. So far, nothing helps. I have a new spine stimulator and we're working on adjustments. Fingers crossed. Does anyone else have continuing muscle spasms or enormous cramps in thighs and other areas?

Jump to this post

I do and only thing that helps is to walk if I have been sitting down and to get up if in bed and walk. Always goes away. They are no fun.

REPLY
motown46 | @motown46 | Apr 18 3:38pm

I have been diagnosed with CIDP and am currently getting an IVIG infusion every 4 weeks, WHile this treatment is helping somewhat, I have now developed muscle spasms that come on only when I lie on either my back or side.

My neurologist feels that the spasms (95% limited to my trunk) are associated with the CIDP (limited to my feet and lower legs) and I'd like to hear from anyone who has experienced a similar issue.

REPLY
1 reply
harley22 | @harley22 | Apr 19 2:31am
In reply to @motown46 "I have been diagnosed with CIDP and am currently getting an IVIG infusion every 4 weeks,..." + (show)
@motown46

I have been diagnosed with CIDP and am currently getting an IVIG infusion every 4 weeks, WHile this treatment is helping somewhat, I have now developed muscle spasms that come on only when I lie on either my back or side.

My neurologist feels that the spasms (95% limited to my trunk) are associated with the CIDP (limited to my feet and lower legs) and I'd like to hear from anyone who has experienced a similar issue.

Jump to this post

I too experience muscle spasms that vary from being in my feet, or ankles, and boy do they hurt.
The other nite I had one in my big toe of my right foot.
It lasted from 5:45 pm to the next morning.
I tried pain meds, CBD ointment, ice pack and massaging it.
Nothing helped the spasms go away.
I must’ve finally fallen asleep sometime around 4:30 am.
When I woke up at around 9:00am, the pain was gone.
Same happened again prior to that occurrence, but this time it was in my left ankle area.
Again it lasted 10 hrs, and I was unable to fall asleep
Again I tried everything I could think of including Tramadol and nothing worked.
When it goes away, I’m finally able to get some sleep.
These spasms come on without warning, last a really longtime and make me want to jump out a window.
They’re no fun at all, and I never know where they’ll start and how long they’ll last.

REPLY
3 replies
dlydailyhope | @dlydailyhope | Apr 19 10:32am
In reply to @harley22 "I too experience muscle spasms that vary from being in my feet, or ankles, and boy..." + (show)
@harley22

I too experience muscle spasms that vary from being in my feet, or ankles, and boy do they hurt.
The other nite I had one in my big toe of my right foot.
It lasted from 5:45 pm to the next morning.
I tried pain meds, CBD ointment, ice pack and massaging it.
Nothing helped the spasms go away.
I must’ve finally fallen asleep sometime around 4:30 am.
When I woke up at around 9:00am, the pain was gone.
Same happened again prior to that occurrence, but this time it was in my left ankle area.
Again it lasted 10 hrs, and I was unable to fall asleep
Again I tried everything I could think of including Tramadol and nothing worked.
When it goes away, I’m finally able to get some sleep.
These spasms come on without warning, last a really longtime and make me want to jump out a window.
They’re no fun at all, and I never know where they’ll start and how long they’ll last.

Jump to this post

@harley22
You may want to try Calm magnesium before bedtime and drink a good amount of water throughout the day to see if that can help prevent or reduce the severity of cramps at nighttime so you can sleep better.

REPLY
2 replies
harley22 | @harley22 | Apr 19 10:51am
In reply to @dlydailyhope "@harley22 You may want to try Calm magnesium before bedtime and drink a good amount of..." + (show)
@dlydailyhope

@harley22
You may want to try Calm magnesium before bedtime and drink a good amount of water throughout the day to see if that can help prevent or reduce the severity of cramps at nighttime so you can sleep better.

Jump to this post

Thanks for the suggestion!

REPLY
snoony2 | @snoony2 | Apr 20 9:13am
In reply to @harley22 "I too experience muscle spasms that vary from being in my feet, or ankles, and boy..." + (show)
@harley22

I too experience muscle spasms that vary from being in my feet, or ankles, and boy do they hurt.
The other nite I had one in my big toe of my right foot.
It lasted from 5:45 pm to the next morning.
I tried pain meds, CBD ointment, ice pack and massaging it.
Nothing helped the spasms go away.
I must’ve finally fallen asleep sometime around 4:30 am.
When I woke up at around 9:00am, the pain was gone.
Same happened again prior to that occurrence, but this time it was in my left ankle area.
Again it lasted 10 hrs, and I was unable to fall asleep
Again I tried everything I could think of including Tramadol and nothing worked.
When it goes away, I’m finally able to get some sleep.
These spasms come on without warning, last a really longtime and make me want to jump out a window.
They’re no fun at all, and I never know where they’ll start and how long they’ll last.

Jump to this post

Gabapentin 300mg has been my lifesaver. I take it only when necessary and right now I’m pain free since the initial episode. I’m hoping it doesn’t return

REPLY
1 reply
harley22 | @harley22 | Apr 20 10:22am
In reply to @snoony2 "Gabapentin 300mg has been my lifesaver. I take it only when necessary and right now I’m..." + (show)
@snoony2

Gabapentin 300mg has been my lifesaver. I take it only when necessary and right now I’m pain free since the initial episode. I’m hoping it doesn’t return

Jump to this post

I was on 1200 mg of Gabapentin for a long time, and it did nothing for me.
I finally stopped it almost 2 yrs ago per my neurologist.

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