Endless withdrawal from benzos and pregabalin

Posted by chaos @chaos, Jun 3, 2022

Hi,
I’m at my wit’s end. I have been withdrawing for so so long that euthanasia is looking good to me. Since last November I have withdrawn from clonazepam and closely followed by pregabalin. Actually still struggling with the later drug. I am not sleeping, full of anxiety, fear and wanting to off myself. It feels like every week I reduce the drug, I lose hope that things will get better. I don’t have anyone in the medical system that understands withdrawal from these drugs.
It would be good to connect with people that have gone through this process and have improved their lives.
Also, I’m not sure if there is a discussion already in place for this topic.

Interested in more discussions like this? Go to the Addiction & Recovery Support Group.

@laurine7

laurine7, I'm back after many many months away. I finished my taper off Lorazepam 6mg with 3mg Clonazepam and finally. No wonder I suffered so and kept saying I feel like I am still withdrawing from the Lorazepam, I was given .50mg instead of 3mg. Started my taper in June of 2021, finished March of 2022. I feel like I am still in withdrawal. Sleep 3 hours a night, which started in June of 2021 when I stopped the Lorazepam. I believe it's because Lorazepam is also prescribe for insomnia, I was prescribed Lorazepam for Restless Leg Syndrome. I have found out so many mistakes make by my care givers, impossible to imagine. You can get malpractice suits against a Doctor, BUT, IT HAS TO BE DONE EARLY, I didn't know until way later. You CANNOT sue the manufacturer if it's a generic prescription. I am still constantly researching almost 3 years now. I have tried so many prescriptions for RLS, nothing has worked. They just started me on Codeine, not good, but I'm desperate for sleep. Should the codeine not work, My neurologist said we are going to try Methadone. That scares me! I happy to be back with MAYO CONNECT.

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I found that magnesium helps me with sleep. It's such a difficult slog to get off of the benzos!

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I am tapering on liquid form and at 180 mg gabapentin or 1.2 ml 3 times a day in equal parts. I am on a Facebook site for support and tapering lessons. I take l-theanine for anxiety at night plus it helps me sleep. I take mindfulness classes every Monday night. I did bloodwork today to see what vitamins I'm depleted in but have to time the supplementation properly so as not to reduce the effectiveness of the low dose of gabapentin. I do all this, yet I still have anxiety and so many other symptoms. It's not a drug of addiction unless you abuse it which i did not. It is a drug of dependency and messes with the neurotransmitters of the brain. I have never been above 400 mgs in the 2.5 years but I am suffering and taking hostages too. The doctors, including the neurologist that put me on this crap, are clueless so I am my own best advocate here. Gabapentin does not mix with benzo's or opiates and I've had to endure 2 major surgeries since October last year on Tylenol because I have breathing issues
This is just a quick summary of the hell I am going through, but my point is I keep fighting and I encourage you to do the same.

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As an RN this makes me mad. Medicine 101. benzodiazepines very addictive. Watch the Netflix special on these drugs and how patients got themself off. Don’t despair. You literally have to wean down super slow and planned.

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@neveragainvaccines

As an RN this makes me mad. Medicine 101. benzodiazepines very addictive. Watch the Netflix special on these drugs and how patients got themself off. Don’t despair. You literally have to wean down super slow and planned.

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I had a really good Doc one time. I asked for just a few Ativan for some situation creating anxiety. She said no…not the answer as they are addictive. Thought she was going a bit overboard but she was right!

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Hi. This is my first time here and or even on this post. @chaos I hope you’re well. I am two years into tapering from benzodiazepines and I’m 36 and I feel like I’ve lived in a war zone in my own body for so long. I hope with all of my heart that you are doing well and have found some peace.

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@neveragainvaccines

I had a really good Doc one time. I asked for just a few Ativan for some situation creating anxiety. She said no…not the answer as they are addictive. Thought she was going a bit overboard but she was right!

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@wildfirefly You dodged a real bullet even though it may have been disappointing at the time. My MD handed that poison out like candy and the withdrawal was rough.

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@neveragainvaccines

As an RN this makes me mad. Medicine 101. benzodiazepines very addictive. Watch the Netflix special on these drugs and how patients got themself off. Don’t despair. You literally have to wean down super slow and planned.

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Yes, they are. Neurontin (Gabapentin) is as well. Although I won't die from Gabapenting withdrawal, it made me extremely agitated and like I wanted to jump out of my skin. I have been on Gabapentin for almost 6 years now. I thought a couple of years ago, that I would just stop taking it. I wasn't informed that that was a bad idea. Figured it out around day 2. As a recovering addict, there are lots of medications that are "addictive", but the only two things I know will kill me are benzos and alcohol (withdrawal wise). I remember when they thought it was ok to just hand out xanax and other benzos. It has gotten some better but I also know that doctors are humans and some have their own addiction issues.

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@skullbasecancer4

You are amazing ! Hats off to you . Klonopin is the only thing that helps with my anxiety . My zolloff stopped working and I am scared to try another one . I take 0.5 and 1/2 daily . My husband has cancer . I do therapy but nothing helps . I also take Restoril because I have insomnia . I tried trazodone but it stopped working . I admire your courage . I am so scared of long term effects but I have no choice .

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Thank you for your response. Good news, I hope, for sleep! RLS Foundation is asking Congress to assist in getting a bill geared toward SLEEP, or lack there of. The important thing now is that everyone is starting to realize how very important sleep is. I have spent so much time researching RESTLESS LEGS SYNDROME, RLS. I am now reading lots of medical journals that are recommending LORAZEPAM. Very strange, I have had RLS, which is hereditary, my brother has it and my niece has it. I too just recently have been prescribed Trazodone. Had bad side effects. Then they prescribed Tramadol, and Codeine, to try. Codeine made me feel terrible! The Tramadol has worked! For the first time in so many many years I slept 5 hours. The bad side is addiction, as is with Codeine, and Trazodone. I keep thinking if I can continually get more hours of sleep, I will break this cycle of the 3 hours. Many Medical Journals recommend Clonazepam for SLEEP, the generic for Klonopin, which is very expensive. Hang in there, we have no other choices.

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I am just now seeing this. I sincerely hope things have improved for you. I have been off Lorazepam since June 21, 2022, tapered with Clonazepam. Had a psychotic break when I stopped the Lorazepam, I was prescribed it for 17 years. My body was very angry with me, of course my sleep drastically dropped to 3 hours a night. Now, after 3-1/2 years off Lorazepam, I am now prescribed another drug to help me sleep, Tramadol. Not a good drug, but I am desperate, fortunately I have slept 5 hours for 3 nights now. I am being cautious because it is very addictive. Just want to break the 3 hour each night that has existed for 3-1/2 years. I have been prescribed all these different drugs which are for Parkinson's Disease. Some think it is a form of Parkinson's.

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@vinsprincess

I am tapering on liquid form and at 180 mg gabapentin or 1.2 ml 3 times a day in equal parts. I am on a Facebook site for support and tapering lessons. I take l-theanine for anxiety at night plus it helps me sleep. I take mindfulness classes every Monday night. I did bloodwork today to see what vitamins I'm depleted in but have to time the supplementation properly so as not to reduce the effectiveness of the low dose of gabapentin. I do all this, yet I still have anxiety and so many other symptoms. It's not a drug of addiction unless you abuse it which i did not. It is a drug of dependency and messes with the neurotransmitters of the brain. I have never been above 400 mgs in the 2.5 years but I am suffering and taking hostages too. The doctors, including the neurologist that put me on this crap, are clueless so I am my own best advocate here. Gabapentin does not mix with benzo's or opiates and I've had to endure 2 major surgeries since October last year on Tylenol because I have breathing issues
This is just a quick summary of the hell I am going through, but my point is I keep fighting and I encourage you to do the same.

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What are you tapering off of? Ive never heard tapering with gabapentin. What is theanine, never heard of that, and MAYO has underlined it in red? Fact is I think tapering is a new thing to Dr's. They prescribed me the incorrect dose to taper off the Lorazepam, it turned my whole life upside down. I kept telling the Dr. I am still going through withdrawal, her response, NO YOU CAN'T BE. What does a body do then, just suffer, my friend. I was taking Lorazepam 6MG every night for more than 10 years, I was tapered with Clonazepam .50MG, it should have been 3MG, thus my protracted withdrawal. I didn't find out til 12 months after I tapered. I asked Walgreens about my horrible dry mouth and other terrible symptoms after taper and he asked me questions about my dose from tapering. He was shocked when I told him. The only good news right now I have is, my Neurologist prescribed Tramadol for sleep, after several other drugs did not work, and it has worked for a few days now. I can't tell you how excited I am because I have slept for 5 hours, and for a few days. My wish is for me to be able to stop researching about Restless Legs Syndrome and printing, and searching and printing. My worry with the Tramadol which is an opioid, is going through a taper. I want to just break the cycle of 3 hrs, finger crossed I can do this.

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