Small Fiber Neuropathy: What helps?

Hello!

I also have a whole host of symptoms going on that were diagnosed as Peripheral Neuropathy caused by the Moderna Vaccine. That was in May of 2021.

I was just diagnosed with small fiber neuropathy and I am in hell! Ugh! I am having a spinal stimulator put in next Friday. I will update you guys a couple weeks after my surgery to let you know how it is helping.

It is. You are exactly right.

Check out the uggcloset.com That is their outlet.

I have idiopathic small fiber neuropathy. I do not have the bladder and bowel control issues. It’s mainly my toes - numbness and bluish/purple in shower and sometimes other times. PRP helped with those symptoms for almost 2 years. It’s starting to come back again. They weren’t sure how long it would help.

Thanks to all about supplements! Progressive Labs in Irving, TX sells pharmacy strength supplements and I have been buying from them for over 25 years. I have an account through my nutritionist but I think that now they sell directly to the public. 800-527-9512 CST http://www.progressivelabs.com

John: I came across a special diet for neuropathy, but lost connection to my cell provider when traveling. Would you have a link to this diet ?

I'm not sure I've seen a special diet but have seen a lot of nutritional food listings for people with neuropathy. The Foundation for Peripheral Neuropathy has a lot of information on their site on the topic - https://www.foundationforpn.org/living-well/lifestyle/nutrition/. They also have a webinar on the topic that might be helpful - https://www.foundationforpn.org/webinar-nutrition-for-patients-with-peripheral-neuropathy/.

I live in Canada and our health care is the pits…shortage of drs. In particular specialists. One has to wait months to get to one . I started having tingling in the sole of my feet August ‘23. Thought I just needed to rest feet… bought massager, etc. finally saw dr. Who prescribed gabapentin and told me to go plan the next 15 yrs of my life. Two months later I insisted he refer me to a neurologist. Had to wait 4 months. Finally blood work was done and he told me my neuropathy was caused by Sjogrens, an autoimmune disease.which causes dry eyes and mouth and is also progressive but slowly. I was only experiencing dry nasal passage sometimes. Went to Rheumatologist who said she can’t treat neuropathy and referred me to a Sjogrens clinic. I am still waiting to hear if my referral was accepted. My GP is no good as he just brushes my symptoms off … doesn’t know that Sjogrens also affects other organs. Looking for dr. Right now to get more help. I use a foot massager for my neuropathy which helps a lot and baclofen for muscle relaxant. Excercise helps a lot with neuropathy and I am following a Sjogrens diet which also helps my digestion.

I have SFN caused by Sjogren's and I have just recieved Rituximab and I think it will work. Look it up and see if your Dr. (when you finally get one ) will agree. Unfortunately, waiting 4 months for a neurologist is common here, too. It took me several years (and 2 rheumatologist) to get diagnosed correctly. So you are ahead of us there.
Good luck and best wishes!

Can someone tell me the best place to order R ALA and what brand is a good deal. I’m looking for 300 mg and there seem to be a ton of them with a wide range in prices.