Need help - HR 115 BP 60/40 feel like death is upon me.

Posted by rickfox2676 @rickfox2676, Feb 22, 2022

Since early January, I've had drops in BP 60/40. Constantly dizzy. Doctor brushes off as dehydration. I am not dehydrated. Also pain in abdomen which ultrasound done and normal. Please help, BP makes me feel like I might lose my life.

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@rickfox2676

I would like to thank everyone that took time to respond to my plea for help. To add further. My BP is dropping daily and stays around the 70/50 range. I've cut out all meds to make sure there were no interactions. The doctor prescribed Midodrine to raise my BP as so I don't black out or die but it only raises BP a few points. I am a severe diabetic but my diabetes has never caused BP issues. A HIDA Scan was performed but no results. I feel descent if sitting or lying down, feel like death is upon me when standing. Lose my breath, go black and slur speech. I was told possible Addison's Disease or Bile duct obstruction but no blood work or testing done.

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@rickfox2676 I. can only plead with the others that you invest in a flight (if indeed they are so far) to a top medical center, preferably the Cleveland Clinic or one of Mayo's branches. They will take you very seriously and do a thorough work-up. You just must advocate for yourself. Perhaps one of your daughters (or grandchildren if old enough) could go with you and help since you must have trouble walking. It's unthinkable that no one has checked your infection site and whether it has healed or in spreading. I believe Mayo (most large centers) have discounted housing for patients - ask social services. I know transportation and accommodations can be the most expensive part of journeys to health such as you must take.

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@parkerjean

Hi Rickfox2676 I can totally understand your concerns. I have suffered from low BP upon standing, walking and most anyother natural movements. Two events occurred, that my BP would not show on the BP cuff, resulting in ER visits. I have had syncope spells and near blackouts while golfing, walking, picking up trash and even while driving. Many times, I visited the VA Hospital and was told everyone's BP falls upon standing but your's is much more profound than average. Finally I resided in the hospital for a week and decided that Afib was the primary cause and I had a re-conversion. Even after that process after being put on Beta blockers and Blood thinners, I still suffer from this. I have had to quit playing Golf, Driving, or any sport or exercise where even fast eye movement is necessary. I have been fortunate, for I have fallen many times, but have not really injured myself. This has occurred the last 15 yrs of my life. I have been seeing an Endo Dr for about seven yrs and have been prescribed Cortisol off and on. Every Cortisol test shows borderline?? levels in my blood and my PTH level last test was 145 and the Dr said it should be watched??? Several of my Chemicals are out of balance and I have a blood test every 3 months. I get so frustrated when the Dr says I am a complicated case. I know that death feeling and it is no FUN. I wish you all the best and may your Dr determine some explanation!!!!

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Thank you for sharing. I hope you find results and eventually get your health corrected. I hate that you are going through similar issues without resolve. It is very frustrating, you are not alone. God bless.

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@realitytest

Have you tried adding extra salt and/or Florinef?
(Just for the record, you don't just have low blood pressure, it sounds like you have orthostatic hypotension - as I did). Does your pulse also race when you stand?

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I would need a pound of salt to correct my issue. No problems with heart racing as it stays around 115 to 120.

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@johnbishop

Hello @rickfox2676, I would like to add my welcome to Connect along with @lmurray03 other members. I agree with @lmurray03 about getting a second opinion. Mayo Clinic has some information here - Low blood pressure (hypotension): https://www.mayoclinic.org/diseases-conditions/low-blood-pressure/symptoms-causes/syc-20355465

You mentioned you also have pain in the abdomen but the ultrasound was normal. Here is an article that sounds similar to what you are describing.
"Can low blood pressure cause abdominal pain? -- If you feel abdominal pain and dizziness after eating, it may be because your blood pressure hasn't stabilized. This sudden drop in blood pressure after a meal is called postprandial hypotension. Normally, when you eat, blood flow increases to your stomach and small intestine." --- What's Causing My Abdominal Pain and Dizziness? - Healthline: https://www.healthline.com/health/abdominal-pain-and-dizziness

Have you thought about getting a second opinion or seeking help at a major teaching hospital or health facility like Mayo Clinic?

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HIDA scan performed and was normal. I can go 2 days without eating and BP issues do not fade. Don't believe food is the culprit. I was told now they believe possible: Adrenal insufficiency, Addison's Disease or Low levels of cortisol.

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After CONNECT reminded me of this old post, I read your story again.
Has your low BP finally been diagnosed and treated? Sure hope so.

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Hi Rick, I've had BPs of 60/40 and it's scary. I have passed out frequently. I also have a spinal cord injury and had loss of consciousness from hypertension, caused by autonomic dysreflexia.

I have looked into why my bloodpressure is fluctuating and just saw a great cardiologist who will put a 48 hour BP device on me. Most likely you may have vasovagal sleep syncope, (neuropathic) orthostatic hypotension, or dysautonomia. Did you find the cause?

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