Cerebral Brain Atrophy: Anyone else out there?

She closes one eye when she needs to read something.

I have it and just found out with an MRI and am scared. Also ischemic too.

I had an MRI and have it plus other problems

Boy what a dead spot for this issue! My cousin has cerebellar ataxia/atrophy. If you have any information that would be awesome!!

My cousin has cerebellar ataxia. She is mostly bed-bound but we too use a high dose of Vit E & B and as close to gluten-free as we can. It does seem to help but she still has bad days. I have been doing a lot of research and this particular disease, as so many, could be the result of a vaccine injury. Here is the link that shows there may be a relationship. Something to consider perhaps. I know vaccines awareness is growing and perhaps for a legitimate reason. The ingredients are totally horrible (you can read them on the CDC web site) and Pharmacuetical companies have ZERO liabilty for the vaccines produced thanks to the National Childhood Vaccine Injury Act of 1986 of which takes liability away from the pharma cos. https://www.icandecide.org/wp-content/uploads/2019/09/VaccineSafety-Version-1.0-October-2-2017-1.pdf (pages 7-9 states ataxia and nueroligical diseases for the first time)

Go To:-https://ataxia.org/neurologists-and-specialty-clinics/#AtaxiaClinics

Hoping to connect with some of you who have talked about cerebellar atrophy and see how things are going lately.

@pookigirle - how is your cousin feeling recently?

@howardjames - when you posted over the summer, Noreen, you mentioned that Howard may be ready to go on to heaven. Wanted to get an update on him and on how you are doing?

@adrenaline - you'd talked about having an MRI and being diagnosed, but feeling in the dark about your cerebral atrophy. Have you learned more about what to expect, or do you have any questions that members here might help with?

@flo1957 - how are you? What has your testing shown about the status of the atrophy?

I experience atrophy of the cerebellum. I am not sure this the appropriate forum for my issue!

I was diagnosed about a year ago, MRI's, etc.. My balance is iffy, but am active, physically, mentally and spiritually.

Hello- I am in Chicago. I will be 52 next month. About three weeks ago I thought I was having a stroke (right leg was tingling and wouldn't move as I wanted). That lasted for about 24 hours. Since then I have had a CT and MRI. MRI showed moderate cerebellar atrophy. I have started movement therapy (my idea is that I want to build new neuronal pathways for walking). We are waiting on the results of genetic testing. Now I feel like my arm hangs on by a thread and is blowing in the wind (smile). As the day goes on, my foot drags and I stumble. I have to do a lot of "talking in my head" to get things to move as they should. My leg and arm (right side) muscles ache is if they are always turned on. Saw a neurologist who referred me to a movement neurologist.

I want to read as much as I can about this disorder. Can anyone point me to things to read?

When we are not in isolation- I exercise about 4 times a week and am in pretty good shape. If I sound desperate..I am. I am desperate to learn all I can so I can slow this down. I used to jog and say the reason I work out and eat well is since I was nearly 40 when I had my son (who turned 13 last week_ I had to do those things so I wouldn't be in a walker when he graduates from college. Well now instead of college...my goal is high school (see I am a realistic person, smile)

In addition to readings, what dietary changes have people made in light of their dx.?

Thanks,
Antoinette