Hello- I am in Chicago. I will be 52 next month. About three weeks ago I thought I was having a stroke (right leg was tingling and wouldn't move as I wanted). That lasted for about 24 hours. Since then I have had a CT and MRI. MRI showed moderate cerebellar atrophy. I have started movement therapy (my idea is that I want to build new neuronal pathways for walking). We are waiting on the results of genetic testing. Now I feel like my arm hangs on by a thread and is blowing in the wind (smile). As the day goes on, my foot drags and I stumble. I have to do a lot of "talking in my head" to get things to move as they should. My leg and arm (right side) muscles ache is if they are always turned on. Saw a neurologist who referred me to a movement neurologist.

I want to read as much as I can about this disorder. Can anyone point me to things to read?

When we are not in isolation- I exercise about 4 times a week and am in pretty good shape. If I sound desperate..I am. I am desperate to learn all I can so I can slow this down. I used to jog and say the reason I work out and eat well is since I was nearly 40 when I had my son (who turned 13 last week_ I had to do those things so I wouldn't be in a walker when he graduates from college. Well now instead of college...my goal is high school (see I am a realistic person, smile)

In addition to readings, what dietary changes have people made in light of their dx.?

Thanks,
Antoinette

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