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Leqembi: Anyone else taking this infusion to slow dementia?
Hello - My husband was diagnosed with Alzheimers Disease in June of 2023. The doctors at Mayo determined that he would be a good candidate for the Leqembi infusions. He received his 5th infusion today. We are hoping to chat with other folks receiving the infusion to share experiences.
Prayers to everyone dealing with this awful disease.
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We started slowing down the rate that the medicine went into his body, from 1 hour to 2 hours. Our neurologist also prescribed 2 Tylenol and 1 Claritin before the infusion. This helped a lot, but was still getting shivering cold afterwards. We then started taking 2 Tylenol and 1 Benadryl 4 hrs after the Pre infusion dose was given and then another 2 Tylenol and 1 Benadryl after another 4 hours and this seems to work. We have done this 2 infusions with success. Also we are getting the infusions about 10am so we can be done with any reactions by bed time. He is just tired the next day.
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2 ReactionsWe were told, after the fact that the first infusion is the worst for side effects. For us it has gotten better. We premedicate, slow down the speed of the infusion and follow up with meds afterwards.
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1 ReactionRemember, NO blood thinners unless absolutely necessary
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1 ReactionWe also call before we go to the infusion center and have the pharmacist remove the medication from the freezer to help get it closer to room temperature before our appointment.
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