In-Home Caretakers Terrible, MCU Much Better

We provided my mother with at-home caretakers for over a year. These were "under the table" off-the-books caretakers. I hired them after being put in a bad position. Nobody was willing to provide quality care for her on-the-books and I wasn't ready to put her in a memory care unit. It was incredibly expensive, and in retrospect, the quality was pretty bad. I should have paid more attention to warning signs at the time. Now that she is in a memory care unit she is much better cared for. I wish so much that we had skipped the whole at-home care step. What a waste of money that was.

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

@coping123

Hi @tsc, Is your husband a Veteran? We have a caregiver 7 hrs a day, 5 days a week paid for under the Veteran Directed Care Program. The intent is to keep the Veteran in their home. We found a wonderful caregiver who has become family to us. I realize how blessed we are to have found her. The nearest care facility is about 2 hrs from us. The nearest excellent memory care facility is almost 3 hrs away & has a waiting list. (I think all the facilities within about a 3 hr radius have waiting lists. It’s not unusual.) We had 2 small facilities in town. Both closed this last year because of staffing issues.

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Hi @coping123, my husband is not a citizen, so not a Veteran.
I am so happy that thed VA was able to provide your husband and you with such good care and service.
Thank you for your message, and all the best!

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I was convinced my wife needed the professional care that a memory care facility would provide. After 12 days, I brought her home. She really needs 1 on 1 care that the facility could not provide. Now she is much healthier and content and with some help from home care folks we are both in a better place.

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@thereaklenb

I was convinced my wife needed the professional care that a memory care facility would provide. After 12 days, I brought her home. She really needs 1 on 1 care that the facility could not provide. Now she is much healthier and content and with some help from home care folks we are both in a better place.

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@thereaklenb, how are you doing with the decision to bring your wife home?

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It was the right decision. She is happy and content and with assistance from home health aides I am able to sleep. My son and I had thought the social aspect of memory care would help but very few of the residents were even capable of a conversation. She was refusing to eat or take her medications so she was mentally and physically on a downward trend. She has been home for a month now and at some sort of a plateau.

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@coping123

Hi @tsc, Is your husband a Veteran? We have a caregiver 7 hrs a day, 5 days a week paid for under the Veteran Directed Care Program. The intent is to keep the Veteran in their home. We found a wonderful caregiver who has become family to us. I realize how blessed we are to have found her. The nearest care facility is about 2 hrs from us. The nearest excellent memory care facility is almost 3 hrs away & has a waiting list. (I think all the facilities within about a 3 hr radius have waiting lists. It’s not unusual.) We had 2 small facilities in town. Both closed this last year because of staffing issues.

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Hi @coping123! I am most interested in the Veteran program your husband receives. My husband is a Vietnam veteran and I have not heard of any programs for at home care. How did you find it?
Thanks, @boppi

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@boppi

Hi @coping123! I am most interested in the Veteran program your husband receives. My husband is a Vietnam veteran and I have not heard of any programs for at home care. How did you find it?
Thanks, @boppi

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Hi @boppi
The Veteran Directed Care Program is contracted by VA to other agencies. In MT the Area Agency on Aging coordinates the program. Here’s a screen shot to show you where to look online for info. My husband is Vietnam-era as well. He does not have a service-connected disability & it is not a requirement for this program. If your husband has a VA disability rating there are even more programs he may be eligible for. ( I need to reapply for my husband as VA has expanded the PACT Act again & he may now be eligible for a disability rating.)

The process for enrolling in the VDC Program started with a referral from VA Primary Care Provider to VA Social Worker for an assessment appointment (which we were able to do via video appointment). The SW contacted the VDC Program Coordinator & she came to our house to complete her assessment & prepare paperwork. A budget was determined by VA & VDC and hours of care were determined by the budget.

Initially I was the Designated Representative for my husband & we had a caregiver 7 hrs a day/5 days a week. My husband had a rapid & substantial downtime & I requested program review at 9 months (instead of scheduled 12 months). He was moved up several tiers & additional hours were added. At that point I transferred the DR responsibilities to a trusted friend & became the 2nd paid caregiver for my husband. It’s only 14.5 hrs per week but it’s a huge help as we really needed additional income & I can’t be away from home at this point in the process as I am my husband’s “compass”.

The DR is responsible for hiring, firing, training, scheduling hours, approving timesheets, and reporting any changes in health, etc. to the VDC Coordinator. (Our Coordinator checks in by phone once-a-month & makes a home visit every 3 months. I update her on falls, medical treatments, etc. as the more detailed info she has & the better it’s documented, the more accurate the assessment reviews will be.) Any of the budgeted funds not used for payroll are placed in a “savings account” for the Veteran & can be used for items (not covered by VA) to assist with keeping him safe & comfortable at home. In our case there were funds authorized to purchase Ring cameras so he can be monitored throughout the home & the from yard without us having to constantly follow him & hover around. ( Being “babysat” - as he referred to it - caused significant agitation & conflict. The Rings solved that.)

Please feel free to contact me with any other questions you may have. The VDC has been a HUGE blessing & aligns perfectly with my goal of keeping my husband at home until the end.

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@coping123

Hi @boppi
The Veteran Directed Care Program is contracted by VA to other agencies. In MT the Area Agency on Aging coordinates the program. Here’s a screen shot to show you where to look online for info. My husband is Vietnam-era as well. He does not have a service-connected disability & it is not a requirement for this program. If your husband has a VA disability rating there are even more programs he may be eligible for. ( I need to reapply for my husband as VA has expanded the PACT Act again & he may now be eligible for a disability rating.)

The process for enrolling in the VDC Program started with a referral from VA Primary Care Provider to VA Social Worker for an assessment appointment (which we were able to do via video appointment). The SW contacted the VDC Program Coordinator & she came to our house to complete her assessment & prepare paperwork. A budget was determined by VA & VDC and hours of care were determined by the budget.

Initially I was the Designated Representative for my husband & we had a caregiver 7 hrs a day/5 days a week. My husband had a rapid & substantial downtime & I requested program review at 9 months (instead of scheduled 12 months). He was moved up several tiers & additional hours were added. At that point I transferred the DR responsibilities to a trusted friend & became the 2nd paid caregiver for my husband. It’s only 14.5 hrs per week but it’s a huge help as we really needed additional income & I can’t be away from home at this point in the process as I am my husband’s “compass”.

The DR is responsible for hiring, firing, training, scheduling hours, approving timesheets, and reporting any changes in health, etc. to the VDC Coordinator. (Our Coordinator checks in by phone once-a-month & makes a home visit every 3 months. I update her on falls, medical treatments, etc. as the more detailed info she has & the better it’s documented, the more accurate the assessment reviews will be.) Any of the budgeted funds not used for payroll are placed in a “savings account” for the Veteran & can be used for items (not covered by VA) to assist with keeping him safe & comfortable at home. In our case there were funds authorized to purchase Ring cameras so he can be monitored throughout the home & the from yard without us having to constantly follow him & hover around. ( Being “babysat” - as he referred to it - caused significant agitation & conflict. The Rings solved that.)

Please feel free to contact me with any other questions you may have. The VDC has been a HUGE blessing & aligns perfectly with my goal of keeping my husband at home until the end.

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@coping123 This is an excellent description of care available to veterans! I’m so glad that @boppie asked you about it and you answered with a great, detailed description. What would you think of my putting this as a discussion topic for all caregivers to read? Or, would you like to write it up and post it yourself? It could be so helpful to so many!

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@coping123

Hi @boppi
The Veteran Directed Care Program is contracted by VA to other agencies. In MT the Area Agency on Aging coordinates the program. Here’s a screen shot to show you where to look online for info. My husband is Vietnam-era as well. He does not have a service-connected disability & it is not a requirement for this program. If your husband has a VA disability rating there are even more programs he may be eligible for. ( I need to reapply for my husband as VA has expanded the PACT Act again & he may now be eligible for a disability rating.)

The process for enrolling in the VDC Program started with a referral from VA Primary Care Provider to VA Social Worker for an assessment appointment (which we were able to do via video appointment). The SW contacted the VDC Program Coordinator & she came to our house to complete her assessment & prepare paperwork. A budget was determined by VA & VDC and hours of care were determined by the budget.

Initially I was the Designated Representative for my husband & we had a caregiver 7 hrs a day/5 days a week. My husband had a rapid & substantial downtime & I requested program review at 9 months (instead of scheduled 12 months). He was moved up several tiers & additional hours were added. At that point I transferred the DR responsibilities to a trusted friend & became the 2nd paid caregiver for my husband. It’s only 14.5 hrs per week but it’s a huge help as we really needed additional income & I can’t be away from home at this point in the process as I am my husband’s “compass”.

The DR is responsible for hiring, firing, training, scheduling hours, approving timesheets, and reporting any changes in health, etc. to the VDC Coordinator. (Our Coordinator checks in by phone once-a-month & makes a home visit every 3 months. I update her on falls, medical treatments, etc. as the more detailed info she has & the better it’s documented, the more accurate the assessment reviews will be.) Any of the budgeted funds not used for payroll are placed in a “savings account” for the Veteran & can be used for items (not covered by VA) to assist with keeping him safe & comfortable at home. In our case there were funds authorized to purchase Ring cameras so he can be monitored throughout the home & the from yard without us having to constantly follow him & hover around. ( Being “babysat” - as he referred to it - caused significant agitation & conflict. The Rings solved that.)

Please feel free to contact me with any other questions you may have. The VDC has been a HUGE blessing & aligns perfectly with my goal of keeping my husband at home until the end.

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Oh My! You have been so very helpful!!! I don’t think my husband is at the point of needed full care at this point but it is definitely in the future. I will start this process shortly and just send you huge hugs for your caring help!!

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@boppi

Oh My! You have been so very helpful!!! I don’t think my husband is at the point of needed full care at this point but it is definitely in the future. I will start this process shortly and just send you huge hugs for your caring help!!

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Always glad to help ♥️

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@becsbuddy

@coping123 This is an excellent description of care available to veterans! I’m so glad that @boppie asked you about it and you answered with a great, detailed description. What would you think of my putting this as a discussion topic for all caregivers to read? Or, would you like to write it up and post it yourself? It could be so helpful to so many!

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@becsbuddy So sorry for the delay in responding. Hospice has set up in our home & it’s been hectic. You are more than welcome to share my post & use as a discussion topic. I’m hardly to answer any & all questions as I’m able to. It continues to be an enormous blessing especially that we’re down to just a few months. And hospice doesn’t conflict with it. Both programs can run simultaneously.

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