Epstein Barr Nuclear AG AB IGG result of over 600

Lisa, mine was over 600 as well. It was explained to me that it means I had previously had EPV prior to my current infection. I was diagnosed with mono at the age of 59.

Yes, mine has been this high since Covid, early 2020 or before. I had mono as a teenager as well. When I began to feel debilitated with fatigue and had a rash all over my back I went to several doctors, primary care, rheumatologist, pulmonologist, neurologist… No one could figure out what was wrong with me until I saw an integrative doctor after I started passing out at work in June 2021. I had 3 ER visits in a year with chest pain as well. I have been diagnosed with long-haul Covid, reactivated EBV, ME/CFS, Fibromyalgia, dysautonomia, POTS. I have been really sick since April 2020. My primary care still has the nerve to say to me that it’s depression. It’s awful the gaslighting that comes from doctors.

It’s so frustrating, I spend every day resting because I have no choice I’m so debilitated with fatigue. I have tachycardia when I stand for too long, and I’m dizzy more than I am not. If I happen to have what I call a ‘decent day’ I inevitably end up with post exertional malaise from basically doing nothing. Sometimes the PEM can last for a week sometimes it can last for a month. I currently take Vitamin C, D3, L lysine, Monolaurin and a really good Multivitamin from Pure Encapsulations. I am 58 years old, single and can no longer work. They don’t know if Covid itself triggered all of this or the vaccine. I have no friends left because every one is tired of taking me to doctors appointments and then they eventually just stop calling because I’m always sick. It’s a hard pill to swallow when people say things like “ Yes, well I’m tired too” and then they go out for the night or away for the weekend.
Interestingly , I feel like I had more better days last summer than I am currently. It’s so frustrating, isolating and sad. Everyone else is out living live.

I hear you all.

I am a 67-year-old female, and I was diagnosed with EBV back when I was in my early 30's. The symptoms eventually went away but started coming back to haunt me throughout my adult life. It would manifest and I would be almost debilitated with pain and fatigue for a couple of days and then it would subside. I found that many times it was stressed related. Then it was almost like fatigue and aches became a way of life. I started seeing a Naturopath about 15 years ago, and she is a God send! She never stops trying to figure out my symptoms. She discovered by thyroid was low several yeaars ago as well as my Cortisol, but we did get that back to normal, but the body aches and extreme fatigue became a regular issue down the road. Then low and behold she tested me for EBV and my numbers were like so many of you, OFF THE CHARTS! She did tell me it has become CAEBV and we started medication for 60 days at a time. After the first round the symptoms were still evident, but after the second round I am feeling much better. By better I mean, not so achy and the fatigue is bearable, but I still have some days where I have to determine myself to move, get up and get something accomplished! I hate it! I have brain fog but some of that I believe is age related but I'm sure it exacerbates it. My recent testing shows that the numbers have decreased from 600+ down to 535. Better but still symptomatic. I just got the results, so I am waiting to talk with her about them. She also did a more thorough test regarding Lyme, those results have not been returned yet.

Let me tell you though, she is like a ferret. She keeps testing and researching, and we have now tested for Black Mold. It also was positive! Which came first? I don't know yet. I am learning as I go here and always have lots of questions. The one thing that made so much sense was, I was diagnosed with breast cancer June 2020. That came totally out of left field because I am totally not a candidate. I am healthy, active, eat natural, NO CANCER ON EITHER SIDE, breast fed my babies and am small chested. God was good and we caught it early, but it was a totally enigma. Then, after all of these tests, it made a whole lot more sense. My immune system was weak and threatened. I continue to work on staying healthy, exercise (which is not always easy) eat right and take supplements that are recommended.

I have never been told that I am contagious. Initially Mono is, but once it becomes advance into CAEBV, it is not. I also have regular testing done regarding my liver, as CAEBV can totally affect it as well as the medication unfortunately. Hopefully I am done with that for a while.

I hope my story helps for someone out there. Many doctors don't believe, agree or have knowledge about CAEBV. ( Lyme as well). If you are not satisfied, I would find a doctor who does support these viruses, because they are real. Naturopath's usually are not covered by insurance which makes it difficult so all things are in stride and when I can afford them.

Bless you all that are suffering and don't lose heart. There are many of us out here that feel your pain and frustration. Take care and do your best. It is hard to have something that is hard to explain to others. Having a group of people here to chat with, that knows what you are talking about, helps in many ways and to know that you are not crazy :O)

Thank you for the helpful info. I am unsure which doctor's to even go to these days with my post covid issues. Almost all of them seem like a deer in headlights when you tell them your issues, and even show them your >600 EBV values post covid. I was competitive tennis player 2 hour a night prior to covid in 2021, and now have more muscle pains than ever before, and even lymph issue when trying to even exercise a little more on the tennis court. It is disheartening to know no doctor's seem to know what is going on with all this funding that has been given out. I have read that high EBV post covid and cause ME/Chronic Fatigue, as well as Hodgkins Lymphoma. Kind of worried about this, and wondering can anyone suggest the correct doctor's to see to rule out this stuff? I told my PCP my lymphs in neck hurt, muscle pain, etc. and basically gave me prednisone. I just want to find the correct type of doctor that will do the correct tests if anyone has suggestions? I see mention of rheumatologists, etc. but I have been there and they said I have mixed connective tissue disorder post covid, but that does not explain lymph issues now. Any suggestions would be appreciated.

Hope everyone keeps positive when there seems to not be much help out there. Long haulers are now our own self-care covid clinics 🙁

I had almost the same number of over 600. I knew something was wrong and watched the number climb into the mid 500's before I started antivirals. It took me 9-12 of antivirals to drop that value down to the 230's and at that time I was feeling better with normal energy. I still take a low dose antiviral to this day because I felt the much milder symptoms returning over the year after I stopped cold turkey.

My EBV Nuclear EBNA Igg was near 600. I started taking 1g 3x daily of valacyclovir for 9 months until my Nuclear EBNA Igg dropped below 250. I was great for about a year and then the symptoms started creeping back. Since then, I'm taking 1g 1x daily and doing well.