Small Fiber Neuropathy, Sjogrens, Hashimoto's

I was interested in your physical issues. I was literally reading my issues even shoulder curved forward dropping things. How/who informed you of the diagnosis name? I've been getting injections in my neck and lower back. I have many problems from autoimmune disorder.

@jlnda I have had many MRI’s!! The report is always on the portal before my doctor even sees it. The radiologist may not have noted what the neurologist saw for 1 of several reasons: they didn’t see what the neuro saw; they called the neuro and discussed it; the neuro was just suggesting it so radiologist could double check. And the radiologists are THE experts in reading MRI’s.
Do you know if your neurologist has seen the films yet? Have you discussed it with them? Is there something in or on your hand that is bothering you?

My neurosurgeon looked at my mri before seeing me.He called the radiologist before talking to me because he noted something not mentioned by the radiologist. The radiologist had to agree with the neurosurgeon and amend his report.
I trust the Dr over a radiologist. The Dr's are the ones who see the people and their problems . I've had to many MRI'S as well.
I really don't think that nerves are well understood because I don't see much help for nondiabetic nerve pain and the WHY!!!

Hello @jlnda, From reading your previous posts it sounds like your nerve pain is in the hand you had surgery on or maybe both hands? I'm wondering if you have seen a hand specialist who specializes in hand disorders including nerve damage when you had the original surgery on your hand and if it might help to seek a second opinion with another hand specialist.

I'm not sure if it's a possibility but Mayo Clinic does have a hand clinic if it's an option for you. You can find more information on the hand clinic here - https://www.mayoclinic.org/departments-centers/hand-clinic/overview/ovc-20553124

@germangirl
I get injections in my lumbar spine for spinal stenosis/DDD/spondylosis (L4L5 level). I never got injections in my neck. A MRI of your cervical spine and assessment of your symptoms and other neurological tests in office can help narrow down if your spinal cord is being affected/compressed/injured and causing your symptoms. I will be getting a thoracic MRI on Sunday to see if I have any issues at that level of my spine (never had this looked at before). I am seeing a new neurologist at the end of April for updated EMG/nerve conduction/nerve mapping testing and to check for MS. I have an appointment in May to see an orthopedic doctor for hip pain (never had MRI of pelvis/hip joints/sacrum) but experience significant pain/weakness in my buttocks/hips/legs and numbness in my left foot when I walk. Not sure if something is pinched. Was told I had radiculopathy in right arm and leg but my pain/numbeds now seems to have moved to my left hip/leg/foot.

Hello dlydaily,

Look into MR Neurogram, you will see what it looks for. Looks for damaged nerves but look it up, Mayo Clinic. John Bishop was so kind sending me a lot of information. I have S.F.N, Sojgren's, Hashimoto's.
My severe nerve pain started after hip surgery, Mayo Clinic, look up Hip surgery and S.F.N. wish I had known that, I would not have had the surgery. Important to know.

Hello dlydaily,

Look into MR Neurogram, you will see what it looks for. Looks for damaged nerves but look it up, Mayo Clinic. John Bishop was so kind sending me a lot of information. I have S.F.N, Sojgren's, Hashimoto's.
My severe nerve pain started after hip surgery, Mayo Clinic, look up Hip surgery and S.F.N. wish I had known that, I would not have had the surgery. Important to know.

@penn
I will definitely ask about the MR Neurogram tomorrow in addition to MRI of brain and spinal tap. I do believe our SFN causes so many symptoms and problems beyond what doctors fully understand. They really have a hard time diagnosing and treating their patients properly. I think my Hashimoto’s started after I was pregnant and had my son (at the age of 40; now 54). It seems to be when my health started to decline.

@penn
I will definitely ask about the MR Neurogram tomorrow in addition to MRI of brain and spinal tap. I do believe our SFN causes so many symptoms and problems beyond what doctors fully understand. They really have a hard time diagnosing and treating their patients properly. I think my Hashimoto’s started after I was pregnant and had my son (at the age of 40; now 54). It seems to be when my health started to decline.

dlydailyhope,
My Hashimoto's started at 18, I'm now 75. It started when my face started to feel so hot, I touched it my lips, were so swollen, hives all over my body. For years in and out of the E.R, Around 98 I had a Hot Nodule soooo Thyroidectomy!! Found out I had Hashimoto's! Was sent to S. Carolina to a Dr. who specializes in it. Well it came from my thyroid. I was sent to a dr. that gave injections and it worked, the Hives were in remission until I took Cynbalta, hives again. More INJ. in remission for years now.
.