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Parotid/salivary gland swelling and pain

Posted by denise @trnrmom1, Jan 4 8:08am

i have an impaired immune system and have been a post-covid long hauler for almost 3 years tho my symptoms are manageable and not very severe; however, it seems i'm prone to parotid gland painful swelling that distorts right side of face up to ear but a round of antibiotics usually resolves these issues. i haven't seen too many long haulers write about this symptom and i'm wondering if any of you are dealing with this. my google research says it's immune system and bacteria related so i'm assuming the original covid virus is still in my body. will any of us be totally cured????

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lkirnbauer | @lkirnbauer | Mar 20 9:03am
In reply to @heather8568 "Thank you. Yes I have hives sometimes. Thyroid levels were checked but did not show anything...but..." + (show)
@heather8568

Thank you. Yes I have hives sometimes. Thyroid levels were checked but did not show anything...but I do know you have to keep checking levels. Anything with the thyroid is very hard to diagnose. I'm glad you are feeling better.

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Actually, Thyroid levels are not hard to diagnose at all. Since you’ve had the blood test done already, you know it’s just a blood draw. I would have your levels checked again and possibly ask your Dr to give you the medication to treat the thyroid and see if you feel better. Sometimes the number the test shows is not how you’re feeling. Doctors need to listen more…

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goldenbo | @goldenbo | Mar 21 7:30pm
In reply to @heather8568 "I have many symptoms of adverse effects of the sars-cov-2 vaccine. This one that you have..." + (show)
@heather8568

I have many symptoms of adverse effects of the sars-cov-2 vaccine. This one that you have mentioned just started 10 days ago. My symptoms started with severe pruritus then hairloss after my second vaccination. April 2021 started and still having many crazy illnesses. I have been diagnosed with many autoimmune diseases Lupus,Psoriatic arthritis, palmer planter pustulosis, connective tissue disease, Betchet disease, rhumatory arthritis....many different symptoms-tinnitus, necrosis of the ear,adrenal gland tumor and lesions, sores on my scalp and body,carpal and cubital tunnel, gallbladder removed...im so depressed I was healthy before the vaccine now I'm continually get a new symptoms. If you do find any treatment please share.

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Yikes! I would get a second opinion from the best rheumatologist you can find. That is a crazy number of autoimmune diseases.

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heather8568 | @heather8568 | Mar 21 7:52pm
In reply to @goldenbo "Yikes! I would get a second opinion from the best rheumatologist you can find. That is..." + (show)
@goldenbo

Yikes! I would get a second opinion from the best rheumatologist you can find. That is a crazy number of autoimmune diseases.

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Yes it is a crazy amount. I have been diagnosed differently from several rheumatologist (5) Not one of them can agree on what autoimmune disease I actually have. So they just try different medications. So far the only one that has helped is an old drug hydroxychloroquine. The others they have put me on had terrible side effects. Now I'm afraid to try anything new.

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goldenbo | @goldenbo | Mar 21 8:15pm

I don't blame you. My sister, who does not have LC, but does have severe rheumatoid arthritis was on hydroxychloroquine for an extended period of time, but it stopped working after a while and she was switched to something else.

There is no reason why you should take anything I say as worth listening to. However, I can't recommend strongly enough to find the one best rheumatologist you can find and stick with them. You have too many cooks and I'm sure they're not collaborating on your situation.

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