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Need help and advice. Where to stay for transplant review in JAX?

Posted by wendylsmith44 @wendylsmith44, Aug 7, 2019

Coming in to Jacksonville on August 14th. Gabriel house has a waiting list.

My best friend has been asked to arrive August 13th begin a 7 to 14 day process to receive a lung transplant. Not being able work due to illness we anticipated staying at Gabriel house and we found out they have waiting list.Everyone who said they would help has disapeard.

Is there any resources???
I'm frieghtented that without lodging that this means Kevin's chances at life are in jeopardy.
Plz message me as time is not on our side with any information. we live hours away and need to stay in Jacksonville for this process

Interested in more discussions like this? Go to the Transplants Support Group.

rlsob | @rlsob | Mar 15 4:43pm
In reply to @colleenyoung "That's good to know. I thought Hope Lodge was specifically for cancer patients. I'm so glad..." + (show)
@colleenyoung

That's good to know. I thought Hope Lodge was specifically for cancer patients. I'm so glad you posted.

Now, of course, I want to learn more about you. What type of transplant did you have? How are you doing?

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Hi Colleen, I had a bone marrow transplant with my youngest son as my donor. I am doing really good, just waiting for my blood type to change to his and then I hopefully won't need blood transfusion every week or so.

REPLY
sidney073 | @sidney073 | Mar 19 8:41am
In reply to @rosemarya "@sidney073, You sound just like my husband with your preparation and packed bag! And your wife..." + (show)
@rosemarya

@sidney073, You sound just like my husband with your preparation and packed bag! And your wife sounds like me with additional items to be packed! Mayo in Rochester has gift shops and other shops that sell necessities if she or you forget something. One of the most often mentioned things that I remember members sharing as a necessity is a long phone charger cord!

Here are some more ideas shared by members:
- Packing question: What did you have ready for "the call"?
https://connect.mayoclinic.org/discussion/packing-question/
.
- Waiting for the Call: What needs to get done at home before you go?
https://connect.mayoclinic.org/discussion/waiting-for-the-call-what-needs-to-get-done-at-home-before-you-go/
Will you be traveling by car? Do you have far to travel?

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I received the call on Friday 3/15 that I have been approved for addition to the Lung Transplant List database! So now we are just waiting for the call when Lungs become available. Waiting paitently…

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1 reply
Mentor
Rosemary, Volunteer Mentor | @rosemarya | Mar 19 1:44pm
In reply to @sidney073 "I received the call on Friday 3/15 that I have been approved for addition to the..." + (show)
@sidney073

I received the call on Friday 3/15 that I have been approved for addition to the Lung Transplant List database! So now we are just waiting for the call when Lungs become available. Waiting paitently…

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@sidney073 This is so-o-o exciting to hear!
When I was added to the list for my liver and kidney it was a relief plus a whole new world of worrying about what-if's while waiting. I did learn that patience is a necessity that doesn't come easily.
How are you feeling healthwise? Have you prepared your travel bag yet? What do you plan to 'try' to do to pass the time until the phone rings with that Call?

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2 replies
sidney073 | @sidney073 | Mar 19 2:15pm
In reply to @rosemarya "@sidney073 This is so-o-o exciting to hear! When I was added to the list for my..." + (show)
@rosemarya

@sidney073 This is so-o-o exciting to hear!
When I was added to the list for my liver and kidney it was a relief plus a whole new world of worrying about what-if's while waiting. I did learn that patience is a necessity that doesn't come easily.
How are you feeling healthwise? Have you prepared your travel bag yet? What do you plan to 'try' to do to pass the time until the phone rings with that Call?

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Health wise I'm feeling very good. I'm doing Cardio Pulmonary Rehab 3 days a week so I keep in the best shape I can, and keep busy. I have my Go Bag all set, and oxygen tanks already in car. Enough for a "Dry Run" just in case. To keep busy on the other days I am going over house preparations to be away for 6 months, and getting my storage warehouse organized. Trying to downsize some of that so I'm keeping busy.

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mariancauwel | @mariancauwel | Mar 20 8:57pm
In reply to @rosemarya "@sidney073 This is so-o-o exciting to hear! When I was added to the list for my..." + (show)
@rosemarya

@sidney073 This is so-o-o exciting to hear!
When I was added to the list for my liver and kidney it was a relief plus a whole new world of worrying about what-if's while waiting. I did learn that patience is a necessity that doesn't come easily.
How are you feeling healthwise? Have you prepared your travel bag yet? What do you plan to 'try' to do to pass the time until the phone rings with that Call?

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Marlo and I are learning patience too, she’s beyond so excited .. me, more scared but so hopeful and
we hope to follow your progress, prayers for you Sidney. Please

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1 reply
sidney073 | @sidney073 | Mar 31 7:53pm
In reply to @mariancauwel "Marlo and I are learning patience too, she’s beyond so excited .. me, more scared but..." + (show)
@mariancauwel

Marlo and I are learning patience too, she’s beyond so excited .. me, more scared but so hopeful and
we hope to follow your progress, prayers for you Sidney. Please

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Thank you so much!! I just saw this message sorry for the delay.

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