1. < Autoimmune Diseases

Oral lichen Planus: What home remedies or medications help you?

Posted by lovebug61 @lovebug61, Apr 4, 2019

Anyone in the group suffer from Oral Lichen Planus. I am at my wits end with all these erosive sores in my mouth. I've had two biopsies , one in the inside cheek and one under the side of my tongue. The spot under the tongue is extremely sore to touch and has been for over a year. It scares me because the soreness never goes away, sometimes it isn't as sore but nothing helps. Any home remedies for this dreadful condition?

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sillyduffer | @sillyduffer | Mar 14 2:24pm

Good morning, I've had OLP since July 2021. I'm a 70 year old woman, no children, full hysterectomy at 32 from endometriosis. A biopsy has ruled out auto immune causes.
I've been my husband's primary carer for 43 years due to his hereditary motor and sensory peripheral neuropathy, and autonomic neuropathies.
My oral pathologist has mentioned STRESS as a possible cause of my OLP. Wonder where he got that idea???
Although, autoimmune diseases are rife in my family eg Coeliac, lupus, and diabetics 1.
However, he did say that OLP is more common is women over years, and more than men a likely to get lupus.
Is the OLP, etc, possibly related to women being post-menopausal and lacking in oestrogen?
Should women with OLP be considered for HRT - Would this help?
Talking through my hat? any ideas or experience?
Any help welcome as the 3 years of both types of OLP in my mouth has not been funny.

REPLY
2 replies
Mentor
Becky, Volunteer Mentor | @becsbuddy | Mar 14 7:56pm
In reply to @sillyduffer "Good morning, I've had OLP since July 2021. I'm a 70 year old woman, no children,..." + (show)
@sillyduffer

Good morning, I've had OLP since July 2021. I'm a 70 year old woman, no children, full hysterectomy at 32 from endometriosis. A biopsy has ruled out auto immune causes.
I've been my husband's primary carer for 43 years due to his hereditary motor and sensory peripheral neuropathy, and autonomic neuropathies.
My oral pathologist has mentioned STRESS as a possible cause of my OLP. Wonder where he got that idea???
Although, autoimmune diseases are rife in my family eg Coeliac, lupus, and diabetics 1.
However, he did say that OLP is more common is women over years, and more than men a likely to get lupus.
Is the OLP, etc, possibly related to women being post-menopausal and lacking in oestrogen?
Should women with OLP be considered for HRT - Would this help?
Talking through my hat? any ideas or experience?
Any help welcome as the 3 years of both types of OLP in my mouth has not been funny.

Jump to this post

@sillyduffer Welcome to Mayo Clinic Connect! You’ve asked a very interesting question!
OLP is considered to be an autoimmune disease but, as this article points out, stress can play a big role. You have a family history of autoimmune disease and you’ve had a lot of stress.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4147812/#:~:text=The%20major%20findings%20of%20this,of%20management%20protocol%20of%20OLP.
This article comes from the National Institutes of Health.
Has anyone else in your family developed OLP?

REPLY
1 reply
sillyduffer | @sillyduffer | Mar 14 10:32pm
In reply to @becsbuddy "@sillyduffer Welcome to Mayo Clinic Connect! You’ve asked a very interesting question! OLP is considered to..." + (show)
@becsbuddy

@sillyduffer Welcome to Mayo Clinic Connect! You’ve asked a very interesting question!
OLP is considered to be an autoimmune disease but, as this article points out, stress can play a big role. You have a family history of autoimmune disease and you’ve had a lot of stress.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4147812/#:~:text=The%20major%20findings%20of%20this,of%20management%20protocol%20of%20OLP.
This article comes from the National Institutes of Health.
Has anyone else in your family developed OLP?

Jump to this post

Hello Becy
spot on - lots of both.
I'm seeing my GP next week and I'll be posing the HRT question to him.
The problem is that most GP's dont' see a lot of OLP here - Queensland.
So we'll see what transpires - I'll post the reaction.

REPLY
1 reply
sillyduffer | @sillyduffer | Mar 14 10:33pm
In reply to @sillyduffer "Hello Becy spot on - lots of both. I'm seeing my GP next week and I'll..." + (show)
@sillyduffer

Hello Becy
spot on - lots of both.
I'm seeing my GP next week and I'll be posing the HRT question to him.
The problem is that most GP's dont' see a lot of OLP here - Queensland.
So we'll see what transpires - I'll post the reaction.

Jump to this post

Hi again Becky
No one in my family has OLP - just lucky me.

REPLY
spondee | @spondee | Mar 15 9:14am

I developed OLP at age 71, two years ago. I have reason to believe that it was caused by a double whammy: the Covid vaccine (since vaccines trigger an immune response, they can also trigger an autoimmune response) and the fact that I take a beta blocker (they've been implicated in OLP). When I get sick, and my body triggers an immune response, the OLP worsens. This is a chronic condition which we can just try to manage.

REPLY
rashida | @rashida | Mar 16 12:58pm
In reply to @sillyduffer "Good morning, I've had OLP since July 2021. I'm a 70 year old woman, no children,..." + (show)
@sillyduffer

Good morning, I've had OLP since July 2021. I'm a 70 year old woman, no children, full hysterectomy at 32 from endometriosis. A biopsy has ruled out auto immune causes.
I've been my husband's primary carer for 43 years due to his hereditary motor and sensory peripheral neuropathy, and autonomic neuropathies.
My oral pathologist has mentioned STRESS as a possible cause of my OLP. Wonder where he got that idea???
Although, autoimmune diseases are rife in my family eg Coeliac, lupus, and diabetics 1.
However, he did say that OLP is more common is women over years, and more than men a likely to get lupus.
Is the OLP, etc, possibly related to women being post-menopausal and lacking in oestrogen?
Should women with OLP be considered for HRT - Would this help?
Talking through my hat? any ideas or experience?
Any help welcome as the 3 years of both types of OLP in my mouth has not been funny.

Jump to this post

@sillyduffer your oral pathologist may be right. My OLP is triggered by stress too. And I suspect menopausal women are more likely to develop this condition - mine started when I went into menopause, and it was a good ten years later that it was actually diagnosed - by an oral pathologist. Till then I went from dentists to dermatologists and they just shrugged that they couldn’t help me!

I’ve been reluctant to go the HRT route because there is a history of breast cancer - among a list of other cancers - in my family, both on my mother’s and father’s side.

REPLY
1 reply
sillyduffer | @sillyduffer | Mar 16 5:59pm
In reply to @rashida "@sillyduffer your oral pathologist may be right. My OLP is triggered by stress too. And I..." + (show)
@rashida

@sillyduffer your oral pathologist may be right. My OLP is triggered by stress too. And I suspect menopausal women are more likely to develop this condition - mine started when I went into menopause, and it was a good ten years later that it was actually diagnosed - by an oral pathologist. Till then I went from dentists to dermatologists and they just shrugged that they couldn’t help me!

I’ve been reluctant to go the HRT route because there is a history of breast cancer - among a list of other cancers - in my family, both on my mother’s and father’s side.

Jump to this post

Hello Rashida
Congrats on your diagnosis. At last!
As I don't have cancers in my families, i am still going to ask about low level hormones.
Stress - what else does it activate as responses in the body.
I've cut out citrus, nightshade veg and fruits, curries, all chillis, anything spicy.
Added aqua aerobics, and 2 gym sessions weekly. I think that having these activities which are all and only for me is helping with stress.
good luck to you.
Silly duffer

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