Chronic fainting, sleep fainting, vasovagal syncope?

UPDATE to my original post. Finally got in to see electrophysiologist (heart electricity Dr.). So far only seen his PA but OK with that now. They put me on a heart monitor. FIRST DAY had it on fainting started! on Friday night, continued to Monday morning. The Dr. office called me because they saw the monitor alerts. The monitor did not show anything out of the ordinary, hence they still think vasovagal syncope. I guess I should be glad I don't have a heart problem but I still have no clue what triggers the VVS. Dr. office mentioned there are medicines for it and she(the PA) is going to talk to the Dr. (who was in surgery all day yesterday) to see what he says. So I go back and forth between gastro and cardio 🙁 and 5 years later still no help. Bad fainting leaves you with a terrible head ache that nothing eases, feeling sick, and creates mental deficits with memory and thoughts. Please someone eventually find help for this.

UPDATE to my original post. Finally got in to see electrophysiologist (heart electricity Dr.). So far only seen his PA but OK with that now. They put me on a heart monitor. FIRST DAY had it on fainting started! on Friday night, continued to Monday morning. The Dr. office called me because they saw the monitor alerts. The monitor did not show anything out of the ordinary, hence they still think vasovagal syncope. I guess I should be glad I don't have a heart problem but I still have no clue what triggers the VVS. Dr. office mentioned there are medicines for it and she(the PA) is going to talk to the Dr. (who was in surgery all day yesterday) to see what he says. So I go back and forth between gastro and cardio 🙁 and 5 years later still no help. Bad fainting leaves you with a terrible head ache that nothing eases, feeling sick, and creates mental deficits with memory and thoughts. Please someone eventually find help for this.

Hi @cherawgirl, so sorry to hear of your problems with fainting going on for so long.
For nine months, in the throes of an autoimmune disorder, I had gagging attacks without nausea. They did go away before I started on steroids, but they were debilitating. At the time, I researched a lot of exercises online and ways to reset the vagus nerve. Have you ever looked into those? Maybe they could help you.
There's also work by Dr. Stephen Porges, "The Polyvagal Theory". In Dr. Porges words, "the perspective placed an emphasis between psychological experiences and physical manifestations in the body." It might be worth looking into Dr. Porges work, as he is compassionate and insightful, and who knows, maybe it could help.

Have to check your iron level.or your are your vitamin d sometimes if you're low on vitamin d that can cause bad headaches too or be if you're low and b12 that can give you bfrain fog lower ferrous sulfate. You might want to go to eating softer foods and smoothies for a while I know it's a pain but that might help. 🙏🙏😇😇😇

Have to check your iron level.or your are your vitamin d sometimes if you're low on vitamin d that can cause bad headaches too or be if you're low and b12 that can give you bfrain fog lower ferrous sulfate. You might want to go to eating softer foods and smoothies for a while I know it's a pain but that might help. 🙏🙏😇😇😇

Hi @cherawgirl, so sorry to hear of your problems with fainting going on for so long.
For nine months, in the throes of an autoimmune disorder, I had gagging attacks without nausea. They did go away before I started on steroids, but they were debilitating. At the time, I researched a lot of exercises online and ways to reset the vagus nerve. Have you ever looked into those? Maybe they could help you.
There's also work by Dr. Stephen Porges, "The Polyvagal Theory". In Dr. Porges words, "the perspective placed an emphasis between psychological experiences and physical manifestations in the body." It might be worth looking into Dr. Porges work, as he is compassionate and insightful, and who knows, maybe it could help.

Wow, thank you! Help like this makes this forum so great. I will certainly look into this. Today Dr. prescribed fludrocortisone and yoga.

Fludrrortisone .some tmi that m that medicine for me made my headaches 10 times worse or it gave me migraines where I threw up in vomit. Be careful if your headaches get worse tell your doctor right away. There is another medicine out there called midodrine and you take it at half an hour before you get up and you can take it up to four times a day but you do got to drink lots of water with it and lots of salt so that might help that might be another option for you and that one does not cause headaches. I hope you don't have a bad time with this medicine best of luck.

UPDATE: Mayo tests show nothing wrong with my pancreas, so I do NOT have EPI and stopped taking digestive enzymes. Had a little SIBO that's been treated. I had not had a fainting event since Aug. but now had another bad 4 days of fainting over New Years. BP was mostly fine, a little low over a couple days (98/50). Heart rate is normal. I have made an appointment with my Primary Care physician to get help in what to do next. May have to do so exploratory treatments or med, even pacemaker. I have to do something, now I have extreme anxiety worrying when it is going to happen next. I am going to talk to her about starting I guess with cardiology. How can no one find out why a person is fainting 10 times a day for 4 days?! Even in my sleep.