Did anyone have a missed diagnosis of NSCLC?

No, I have been lucky so far. Only had that nodule and one small 4mm one in my right upper lung that has never changed. I have my 2nd 6 month scan on March 29th and a praying that all stays well! They took out a segment instead of an entire lobe and said “clear margins and no lymph nodes involved”. I did not have a biopsy before hand. It was confirmed after it was removed and it was tested and confirmed to be Adenocarcinoma. No chemo, radiation or immunotherapy needed. I did have a bronchoscopy and a PET scan. Nothing else “lit up”. Even the nodule itself barely lit. Again, I feel very lucky that it was caught early.

Duh, nevermind the last one🤪

No, I have been lucky so far. Only had that nodule and one small 4mm one in my right upper lung that has never changed. I have my 2nd 6 month scan on March 29th and a praying that all stays well! They took out a segment instead of an entire lobe and said “clear margins and no lymph nodes involved”. I did not have a biopsy before hand. It was confirmed after it was removed and it was tested and confirmed to be Adenocarcinoma. No chemo, radiation or immunotherapy needed. I did have a bronchoscopy and a PET scan. Nothing else “lit up”. Even the nodule itself barely lit. Again, I feel very lucky that it was caught early.

Mine didn't light up on pet either. I was so relieved at that point I wanted to hug the doctor but it was in the middle of covid. I'm wondering why tgey wan to do a biopsy on me. Might as well just get it out and test it then. I'm not a doctor though. Hopefully things will be clear for me as well. Nothing has been seen anywhere else in my lungs. Just the lower right lobe. I hope your future scans come back clear. Thank you for the time you've taken to respond it helps me keep calmer.

My Dr told me to stay away from Dr Google, but to use sites like Mayo .org, Cleveland clinic . Org, Harvard, Mt Sinai etc. as long as it ends in Org and not COM. We all have done it and scared ourselves sick! Best answers will come from your actual doctors. If you don't agree with them ask for a second opinion. You have to be comfortable with what YOU decide to do. It is scary, but once you're done and healing you will feel better. Just remember to breathe and relax your mind. Great you are working out. You shouldn't loose anything you've gained, you will just have to take a small break for about a month or two but the walking will help! Good thoughts and prayers sending to you!
Cindy

Hello. So I got the results of the biopsy. Well differentiated adenocarcinoma lepidic pattern. It is what I had narrowed it down to myself. Follow up with pulmonologist Tuesday. Thanks for being here.

@bradandrus76, I’m so sorry to hear this. But it is very encouraging to know that your doctors trusted their instincts and found this at an early stage. While this is never easy, knowing about it early certainly gives you an excellent outlook on the future. You’ll have some difficult days ahead, but you’ll get through it. How are you processing the news? Do you have family/friends support?

Handling it okay. It was literally the exact diagnosis I was expecting for months now. Still difficult to officially see it. I have support but like so many have told me they just don't fully understand. They get upset at times and seem to believe they would handle it better. Being told to stop worrying is so frustrating. Some have come around now that the diagnosis is concrete. Most of these people have no experience with cancer but it's hard not to be a little angry with their callousness.

Well now that you have the diagnosis, I know I had nervousness but also felt okay knowing what it was. Then went into the planning stage. It is hard for people to understand that have not dealt with someone with cancer before. I know some of my family acted like it was no big deal. Others cried and questioned lots of things. The ones that acted like it was no big deal told me they wanted to be strong for me. Honestly I’d rather have them be that way. The other way, I’m trying to comfort the ones who are crying and end up not wanting to tell them anything. Others, just don’t know about cancer or fighting it. That’s why this group is so helpful!