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Lichen Planopilaris...newly diagnosed

Skin Health | Last Active: Aug 1 2:55pm | Replies (92)

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@cbaugh47

I am new to this site. I was diagnosed with LPP 2 years ago. I have had multiple treatments but have had little to zero hair growth. I lost my eyebrows and my hair except for a few spots on the back and one side of my head. I started with steroid injections. Since then we have tried: clobetasol, desonide for brows, tacrolimus, monoxidil 5%, hydroxychlorquine, plaquenil, doxycycline, dutasteride and ketoconazole shampoo. None of it worked for me and keep in mind that everything I did i did it for a minimum of 6 months. In October, 2023, I started using a Jak inhibitor called Tofacitinib. Brand name is Xeljanz. It's a topical cream. It has shown to have some success for some types of alopecia. I'm in my 5th month of using it twice a day to no avail. Not even fuzz. I'd be happy if I could have some fuzz on all parts of my head so it could look like a style but I don't. I have to wear wigs or some other kind of head covering to protect my skin from the weather elements. They're heavy on my head and I prefer not to wear anything at all but if I'm outside of my house I always have some kind of head covering on. My hair growth journey is about over. My 6 month follow up is in April and I'm not sure where we will go from here. I am tired and not willing to have any surgery or laser treatments. These are expensive and insurance will not cover it. Thought about scalp tattoo but that's a lot of sticks. So I think I'm about ready to just accept and embrace my baldness. It's been an emotional journey. I had to consult my opthamologist before taking some of the above medications and had visits every 4-6 months. I was also concerned about what all of this could do to my kidneys and liver so I'm no longer taking anything orally. I wish everyone good luck and success in your hair growth journey.

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Replies to "I am new to this site. I was diagnosed with LPP 2 years ago. I have..."

I have been told and read that there is no hair regrowth with LPP. The scarring prevents that.