Hello- I just mean I’ve been going through this since covid, I don’t think it had anything to do with covid,! I had a shingles shot in 2019, that was about the time this all started. I can’t use toothpaste, mouthwash etc! Any lip balms that are minty burns my lips. They burn 24-7, no relief at all.
I know exactly what you are saying. I did not have the Covid vac and still have this problem. I’m wondering if it has to do with the medication I’m taking? Who knows!!????
I get small canker sores- nothing like the size of your lesions in the picture. But, I recently used some Carafate (sucralfate) on one along the side of my tongue and it healed up remarkably quickly. I had been eating salty foods and talking with friends at a party and my tongue ulcer was really painful and inflamed by the end of the night. I have sucralfate to take for gastritis/stomach inflammation so I cracked a tablet in half and placed the broken end directly on the sore to get it coated with the medication. Sucralfate works by creating a physical barrier on mucus membranes. Then I swallowed and felt like most of it went away, so I applied another layer to the lesion. This was after brushing my teeth, right before bed. I am (sadly) a mouth breather at night so I sleep with a cloth face mask most nights to decrease the amount of mouth drying I get. It worked a treat. I have seen one research study on sucralfate as a mouth wash- which was effective. I just wonder if being able to place the med directly on the lesion from tablet form is maybe easier? The tablets are super easy to crush and turn into a paste or liquid too.
Mayo Clinic has some treatment information that may be helpful here:
"How do you treat Sjogren's mouth sores?
Yeast infections in the mouth should be treated with antifungal medications. Treat systemwide symptoms. Hydroxychloroquine (Plaquenil), a drug designed to treat malaria, is often helpful in treating Sjogren's syndrome. Drugs that suppress the immune system, such as methotrexate (Trexall), also might be prescribed."
--- Sjogren's syndrome - Diagnosis and treatment: https://www.mayoclinic.org/diseases-conditions/sjogrens-syndrome/diagnosis-treatment/drc-20353221.
Has your doctor suggested any treatments like antifungal medications to help with the sores?
Welcome @yupik, Thanks for posting. Unfortunately, I'm not sure @blacksabbath, the person who started this discussion, is still following Connect since they have not returned to the discussion after starting it.
You mentioned that you have the autoimmune disease lichen planus. There are quite a few other members who have started discussions and commented about lichen planus that you might find helpful if you are looking for more information. Here is a search link to the discussions and comments - https://connect.mayoclinic.org/search/discussions/?search=lichen+planus.
Has your lichen planus cleared up or do you still have to treat the symptoms?
Welcome @yupik, Thanks for posting. Unfortunately, I'm not sure @blacksabbath, the person who started this discussion, is still following Connect since they have not returned to the discussion after starting it.
You mentioned that you have the autoimmune disease lichen planus. There are quite a few other members who have started discussions and commented about lichen planus that you might find helpful if you are looking for more information. Here is a search link to the discussions and comments - https://connect.mayoclinic.org/search/discussions/?search=lichen+planus.
Has your lichen planus cleared up or do you still have to treat the symptoms?
No, the condition was chronic for many years and then approximately 12 years ago it became acute, and since then I have been using rinses and gels daily.
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I know exactly what you are saying. I did not have the Covid vac and still have this problem. I’m wondering if it has to do with the medication I’m taking? Who knows!!????
I get small canker sores- nothing like the size of your lesions in the picture. But, I recently used some Carafate (sucralfate) on one along the side of my tongue and it healed up remarkably quickly. I had been eating salty foods and talking with friends at a party and my tongue ulcer was really painful and inflamed by the end of the night. I have sucralfate to take for gastritis/stomach inflammation so I cracked a tablet in half and placed the broken end directly on the sore to get it coated with the medication. Sucralfate works by creating a physical barrier on mucus membranes. Then I swallowed and felt like most of it went away, so I applied another layer to the lesion. This was after brushing my teeth, right before bed. I am (sadly) a mouth breather at night so I sleep with a cloth face mask most nights to decrease the amount of mouth drying I get. It worked a treat. I have seen one research study on sucralfate as a mouth wash- which was effective. I just wonder if being able to place the med directly on the lesion from tablet form is maybe easier? The tablets are super easy to crush and turn into a paste or liquid too.
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1 ReactionIn mucous membrane Pemphigoid they are not like canker sores, but the skin in my mouth actually bubbles up, breaks & sloughs off in small sheets.
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1 ReactionI have the auto immune disease lichen planus.
Your photo and symptoms appear to me to me that you might possibly have this autoimmune disease.
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1 ReactionWelcome @yupik, Thanks for posting. Unfortunately, I'm not sure @blacksabbath, the person who started this discussion, is still following Connect since they have not returned to the discussion after starting it.
You mentioned that you have the autoimmune disease lichen planus. There are quite a few other members who have started discussions and commented about lichen planus that you might find helpful if you are looking for more information. Here is a search link to the discussions and comments - https://connect.mayoclinic.org/search/discussions/?search=lichen+planus.
Has your lichen planus cleared up or do you still have to treat the symptoms?
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1 ReactionTry Biotene
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2 ReactionsNo, the condition was chronic for many years and then approximately 12 years ago it became acute, and since then I have been using rinses and gels daily.
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3 ReactionsSame here I have mmp (oral) !
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1 ReactionHi. Not sure where u r. I’m in England. Recently diagnosed so becoming acquainted with this very uncomfortable condition
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1 ReactionSo mine seems to be in remission after a very scary & painful year.
2 doctors (oral medicine & rheumatologist) see no sign of it now & think it just looks like a periodontal condition.
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