Research on COVID 19 vax causing Essential Thrombocythemia?

Hope your husband will get good care for his a-fib and the cardio can get to the bottom of it. Good to submit a VAERS. But does his situation have anything to do with ET and the dangers covid poses for blood cancer patients? My husband (no ET) had a heart attack and emergency stent installation after a covid vax. Docs said all that plaque took years to build up long before he got the vax. Sometimes things are a coincidence.

Nohrt4me,

No, I am the one with ET. My husband has taken meds for other issues. The concern was two seizures a couple minutes apart. They did every possible test with negative results.

It does sound prudent to report the seizures to VAERS. Maybe also tell the pharmacist where he got the vaccine?

I got my last one at Walgreen, which was inundated with extra patients because Rite Aid had gone bankrupt. The place seemed very disorganized, the automated appointment booking system had crashed, and the tech was confused about which vax we wanted. All worked out fine, but I was tempted to tell them I would come back when they were less busy.

Thank you for letting me know about the website to report adverse reactions to vaccines! I definitely will report adverse effects I had immediately following the Covid vaccination that lasted for a month, and then the start of my platelets rising.

VAERS is the best place to report info, where researchers can spot trends and problems. But, and sorry to be a broken record, a temporary platelet spike like the one I had in August is common for ET patients. If it goes back down, the hematologist won't get too worried unless levels are all over the place over a period of several months.

So far my platelets have risen about 10 per month since the first Covid vaccine. Pretty steady trend. I have been diagnosed with blood test and bone marrow biopsy for ET, my platelets were in the low 200’s before the vaccine, to now up to 472. I am still on baby aspirin and my oncologist says when I get to 550, she will start me on anagrelide.

My friend, a hospital medical technologist, vaxxed five times currently, noted her platelet count going up after her first two shots in 2021. Her hematologist ordered a bone marrow aspirate this summer and the genetic testing. EV was the diagnosis.

Of course, no connection will be made with the vaxx....and was not reported to VAERS. I suspect that's with most of the Covid-19 vaccine adverse reactions.

My friend, a hospital medical technologist, vaxxed five times currently, noted her platelet count going up after her first two shots in 2021 (initial and booster).

Her hematologist ordered a bone marrow aspirate this summer and the genetic testing. EV was the diagnosis with gene mutation. She has no other health issues.

Of course, no connection will be made with the Covid-19 vaccine as a 'trigger'....and was not reported to VAERS. I suspect that's with most of the Covid-19 vaccine adverse reactions. Her diagnosis came years after her first Covid-19 vaccines when her platelets first began to rise. So there will be no connection. She's a medical technologist - so she was able to watch her own platelet count.

I wonder how this disease progresses in the people who have acquired it through the Covid vac vs those who have acquired it through other means. Thoughts?

I was not sure about reporting to VAERS my adverse reaction to the Covid Vaccine. I was encouraged through this connect group to do so. My platelets were just over 200 before the vaccine, so it takes a long time for a rise before the “high level” to be recognized. My physician was proactive to notice the increase for me. My first Covid vaccine was Jan 25, 2021 (with platelets of 203 at that time, and by Jan 26, 2022 my platelets rose to 349 (still not over the high). By August 21, 2023 were 467 and now are 516. I was diagnosed early by a hemotogist and bone marrow biopsy as having a non genetic CALR bone marrow mutation. Maybe not related to the vaccine, but maybe so? It is worth reporting to VAERS. It’s interesting that in my small city of 10,000 in N Arizona, my Doctor and my husband’s Doctor (different doctors) are telling us they are seeing more people with new diagnosis of ET. Coincidence with Covid Vaccine? Not sure, but worth reporting to VAERS website. Be sure to have all your information in front of you when you fill out the form (from your vaccine card, your Doctor info, platelet progression and dates from blood tests) because there is a limit of time to complete the form. I am now beginning blood tests every month, and my onclologist is choosing for me to begin anegrelide. I am hoping gene editing (CRISPR) technologies will at some point will enable me to reverse my DNA back to original, so not to have a lifetime of medications.