Let's "Talk" About Aphasia

Aphasia is a word that you might not hear very much unless you or a family member are affected by this disorder. You can learn more on the Mayo Clinic website http://mayocl.in/1LRdio6. Aphasia affects a person’s way of communicating both verbally and in written language. It often follows a stroke but can also be a result of a brain tumor or other neurological disease like MS. While a person with Aphasia might not be able to communicate well, it does not affect their intellect, so there is no need to talk-down, or talk too loud, to a person with Aphasia. To learn more about this disorder please read the Mayo website and become aware of this communication problem that many people share. When you encounter a person who does not communicate effectively realize that they are probably as frustrated as you are.

The National Aphasia Association (NAA) has a list of books on their website that were written by people with Aphasia (and their caregivers) which explore this disorder first hand. Here is information about the books they suggest, https://www.aphasia.org/aphasia_resources/books/ During the month of June, please get to know about Aphasia and how it affects your friends, neighbors and family members.

I am tagging Mayo Connect members who have discussed their Aphasia. We would enjoy hearing from you with an update as to how you are doing and what has helped you (or frustrated you) as you deal with Aphasia. @mkf1 @gremeika @marieelise @KMH
Teresa

Interested in more discussions like this? Go to the Stroke & Cerebrovascular Diseases Support Group.

@colleenyoung

@sebi99, I appreciate the effort it must have taken to type this response when dealing with aphasia. I'm also tagging @scottrl who is also recovering from stroke.

Do you have issues with leg cramping?

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Yes Charlie horses at night. Even after 900 mg lyrica.

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@freebird36

My husband has expressive aphasia due to svpcar tissue from a brain tumor that was in his left parietal area.
He had the tumor totally resected in July of 2023.
Since then he has really progressed very well. He seems almost back to normal. His writing is getting better and
He converses just like normal except sometimes when he’s stressed, self conscious or tired, he has trouble finishing his sentences or train if thought. He still has trouble with numbers and reading and writing sometimes as he’ll get confused.. now that he’s more physically recovered, we get out more and he has more opportunities to converse with people which builds his skills and gives him more confidence.

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Glad to hear. After six months no more getting better.

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