Unruptured Brain Aneurysm

Posted by badnaples @badnaples, Nov 22, 2021

Hello! I recently found out I have a 4mm ACOM during a CT scan, waiting CT angio appointment, question is....live life normally? OK, to travel (fly), exercise etc. Can't get answers from doc, they say all this will be covered during pre-op which is weeks away and in the meantime causing me anxiety not knowing what I should or should not do. Not sure if I have symptoms, various headaches, mild, dull, various areas of the head, but have those often and for long time, and stuffy nose so assume its sinus. Any help is appreciated, suppose to travel in 48 hours. I read all this about rupturing and frightens me. Is it something that would happen suddenly or gradually from a leak. Help! THank you.

Interested in more discussions like this? Go to the Stroke & Cerebrovascular Diseases Support Group.

@pcn198

Hi,
I found out a little over a week ago that I have an 8mm brain aneurysm after a MRI followed by a MRA. I was shocked as the test was for something completely different. I was referred to a Neurologist that can't see me until December 20th. I guess there is no urgency? In the meantime I plan on living my life enjoying family at Thanksgiving, enjoying a planned 7 day caribbean cruise the week after and then a 4 day Walt Disney World trip the first of December. Stress and anxiety changes nothing so try to not let it consume you. I wish you well.

Jump to this post

I’m so happy that you are enjoying/planning to enjoy life until your follow up!
My husband did not have an aneurism in his brain, but he is otherwise a very heathy, fit and active person and is having a difficult time understanding why he can’t drive, has to do rehab, etc. After 7 days. He doesn’t remember or feel that what happened to him is real.
I’m sure his normal self will return at some point, just difficult to help him get to that point without some cooperation from him.
He also has an aneurism in an artery near his heart, but that is under the size for treatment, so they are just watching that. Since he just had every test in the world, things there must have not changed. His cardiologist stopped by, and said see you in March as planned.
So, I wonder if there is a size, or location thing that determines how fast they see you?
🙏 for you

REPLY

So, as the days go slowly by, thoughts from a family member are suggesting that he has GBS from having an rsv vax, or a pneumonia vax, a week before his incident (?)

Looking up GBS, he does not have the symptoms, and is daily moving forward to where he was before, like 100% of normal, just a little foggy and scared.

His neurologist had said if he had not made such remarkable progress in the hospital, that she would have done a spinal procedure to look for infection, which was very invasive. Great news, he did not need it. Now I think that I understand what that test was all about.

Cardiologist said no more pneumonia or rsv or Covid vax.

So, just as a follow up, does anyone have any experience with GBS?

So many of my prayers have been answered…thank you for anyone that has said one for us

REPLY

I also am facing this right now. Several years ago the docs found two small aneurysms in my brain, and decided to take a watch and see approach. They eventually shrank down quite a bit. About four months ago I started having bad headaches again so I went in to get checked the original two have returned, gotten bigger, and brought two friends with them.

One of them is on an external artery and can be stented. The other three cannot. And my two options are to go up through my groin artery and coil them; or to open my skull, and clip them, which is the one the doctor prefers. However, the open skull one creeps me out, and at the same time, during an angiogram to get a better look at these a blood clot broke loose and I had a mild stroke. So I admit to being frightened to say the least. But these aneurysms must be dealt with because it’s like having a ticking time bomb inside my head.
Someone asked for advice, and how to deal with this. My first doctor years ago said just live life. Don’t be stupid, but just live your life like you normally would. I agree with that. Plus with what else I have learned;
It’s cliché and repetitive, but: don’t smoke! The nicotine constricts your blood vessels which is dangerous. I smoked for 50 years, but I finally quit…. the day of the stroke. Sure would’ve been smarter to quit before then. Keep your blood pressure down and don’t get stressed out. Stress is your biggest enemy. High cholesterol is its sidekick. And I walk every single day. It’s good for me physically and mentally. I pray we all make it through this “easy peazy lemony squeezy” as my granddaughter always says.
(:->)

REPLY

Hi,
One month ago I had Endovascular Aneurysm Surgical repair of unruptured right MCA Bifurcation by stent-assisted coil (SAC) embolization (7.1 MMx5.3MMx6.1MM wide neck, multilobular aneurysm arising from the junction of right MCA Bifurcation. The surgery went well (6 coils, 2 stents and flow diverter) and I will be on Brilinta 90mg twice a day along with one baby aspirin for a total of 6 months and then I will have another MRA to check the status.

Has anyone out there had this surgery? If so, how are you doing and did you have any side effects?

REPLY
@pcn198

Hi,
One month ago I had Endovascular Aneurysm Surgical repair of unruptured right MCA Bifurcation by stent-assisted coil (SAC) embolization (7.1 MMx5.3MMx6.1MM wide neck, multilobular aneurysm arising from the junction of right MCA Bifurcation. The surgery went well (6 coils, 2 stents and flow diverter) and I will be on Brilinta 90mg twice a day along with one baby aspirin for a total of 6 months and then I will have another MRA to check the status.

Has anyone out there had this surgery? If so, how are you doing and did you have any side effects?

Jump to this post

Thank you for sharing your story. Gosh, what an ordeal. Prayers coming your way. My motto is to keep on keeping on. Other model is Faith. Hopefully someone out there will see this and share how things are going for them. I imagine your recovery will be a process short or long time frame.

I am so impressed how much you medically are stating your condition. Bravo!

Michele

REPLY

I had stent and coil on right sigmoid sinus jugular bulb junction diverticulum and stenting of the right sigmoid sinus and jugular bulb on 3/4 due to 10-20mm venous diverticulum/aneurism. I am still recovering 2 weeks later, gradually trying to do some work but mostly from home. Have had a lot of pain from inflammation post-procedure, and they believe inflammation is also the cause of visual disturbances (double vision and eye not moving right) and now an echo in my ear which is like auditory version of double vision. Eye doctor saw me urgently and put prisms in my glasses to help, but I can’t drive more than a mile or two and only without traffic. There were also some complications during intubation, causing some vocal cord damage which will take several months to heal. I am a full-time preacher, so this is challenging, and causing some trouble with my job. Doctor originally told me 2-3 days recovery and I’d be fine, but now saying everyone’s body is different and don’t know how long will take to recover fully.

I don’t know that I would have made any different decision had I known, because the head pain was so high and I was having cognitive issues and pulsative tinnitus before the procedure. I have some other things causing pain that need surgery but procedure requires faithful blood thinners (no coming off, aspirin and plavix) for at least 6 mo post-procedure.

REPLY

A 61-year-old female never had any diagnosis of any kind. I am healthy, and exercise-obsessed) regularly. I was diagnosed a month ago with 4 mm unruptured brain aneurysms on the right and 2mm on the left. I am scheduled for a Catheter angiogram the day after tomorrow. I am terrified! about the process, the result of the procedure, what the worst outcome could be, and its treatment. Any advice please, I would appreciate it greatly.

REPLY
@za5045

A 61-year-old female never had any diagnosis of any kind. I am healthy, and exercise-obsessed) regularly. I was diagnosed a month ago with 4 mm unruptured brain aneurysms on the right and 2mm on the left. I am scheduled for a Catheter angiogram the day after tomorrow. I am terrified! about the process, the result of the procedure, what the worst outcome could be, and its treatment. Any advice please, I would appreciate it greatly.

Jump to this post

Hey, sounds like me... 7 mm unruptured aneurysm a year ago. Please be calm and trust the process. I will say that is the most important thing. I was as terrified as you. I read tons and consulted 3 other neurosurgeons before the procedure. Angiogram process is safe and relatively fast. Mine came out ok, but I required a stent due to the size of the aneurysm, which was done later. Everything resulted ok, I am now due for an MRI, this week. The fear is there again, but I must remain calm because anxiety affected me markedly, sadly resulting in other health issues. You will be fine, your aneurysms are small and this is just a diagnostic test. God bless.

REPLY
@raisanicole

Hey, sounds like me... 7 mm unruptured aneurysm a year ago. Please be calm and trust the process. I will say that is the most important thing. I was as terrified as you. I read tons and consulted 3 other neurosurgeons before the procedure. Angiogram process is safe and relatively fast. Mine came out ok, but I required a stent due to the size of the aneurysm, which was done later. Everything resulted ok, I am now due for an MRI, this week. The fear is there again, but I must remain calm because anxiety affected me markedly, sadly resulting in other health issues. You will be fine, your aneurysms are small and this is just a diagnostic test. God bless.

Jump to this post

Thank you for sharing your story and your encouragement. I appreciate your help. I will post an update periodically. Good luck and I am sending prayers to you.

REPLY
@za5045

A 61-year-old female never had any diagnosis of any kind. I am healthy, and exercise-obsessed) regularly. I was diagnosed a month ago with 4 mm unruptured brain aneurysms on the right and 2mm on the left. I am scheduled for a Catheter angiogram the day after tomorrow. I am terrified! about the process, the result of the procedure, what the worst outcome could be, and its treatment. Any advice please, I would appreciate it greatly.

Jump to this post

I am a 77 yo female with previous heart attack 12 years ago, but always with good BP. I had an MRI finding in May 2024 that I have a 3.9mm x 3.9mm size aneurysm in my right cavernous carotid artery. Took me totally by surprise, though it probably shouldn’t have due to my father’s history of multiple cardiovascular disease. The purpose of the MRI was to evaluate me for mild but constant dizziness that had begun months earlier.
Consult with neurosurgery PA told me that it is considered a cerebral aneurysm, but that it is NOT a cause of my dizziness, that it is considered “benign” and that all they would do at this time is to watch me for symptoms and repeat the MRI annually to watch for increase in size. At 3.9mm I’m on the cusp of small to medium size aneurysm.
I’ve been able to, mostly, put this out of my mind - it may reappear in my thought only a few times a month. Part of that, I think, is due to having numerous other health issues to manage every day. I also have a regular social group with whom I engage weekly, belong to a Bible Study group and a book club and I do volunteer work. In other words, I’m just going about my life as usual. Disappointingly, my dizziness is still there and no one can figure that out - it’s another of my daily challenges.
I truly appreciate this forum to learn about others experiences which helps me to evaluate my own. Thanks to everyone!

REPLY
Please sign in or register to post a reply.