Treatments for Lichen sclerosis besides steroids

Posted by ret18 @ret18, Jan 31, 2018

Anything out there that works other than steriods

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quizski | @quizski | Sep 3, 2023

In reply to @becsbuddy "@quizski who are you asking about the CO2 laser therapy?" + (show)

Yes how often is it done and does it work well?

quizski | @quizski | Sep 3, 2023

In reply to @cher51 "Wouldn’t a long Poise pad work as well? Thank you for the info. I am going..." + (show)

I have used the Aquaphor on top of the clobetasol ointment when I have a flair up and it really works!
Then I back off on the Clobetasol 2 x per week and keep using the Aquaphor daily around the anal area.
Seems to help

Becky, Volunteer Mentor | @becsbuddy | Sep 3, 2023

In reply to @quizski "Yes how often is it done and does it work well?" + (show)

@quizski I know these discussions can be confusing, especially when you are new. Welcome to Mayo Clinic Connect. There are lots of members here and if you want to ask one person a question, you will need to put their pseudonym in front of the question, just like I put yours, so you would know the answer is for you. I think you were asking @tonyiarobinson. Maybe you can try again!

Kitten92 | @kitten92 | Sep 6, 2023

In reply to @quizski "Yes how often is it done and does it work well?" + (show)

Speaking from experience with the disease and Lazer treatments, I had three sessions about 6-8 weeks apart. I was symptom free for almost 6 years. Slowly, the disease is easing back into my life but there's new treatments available according to my Gyno.

nemecis202 | @nemecis202 | Jan 26 9:33am

In reply to @kitten92 "Speaking from experience with the disease and Lazer treatments, I had three sessions about 6-8 weeks..." + (show)

@kitten92 Did you have Mona Lisa lazer or Co2??? If you dont mind how long did you have LS? I ams 40 and just discoverd it...

Kitten92 | @kitten92 | Jan 26 10:33am

In reply to @nemecis202 "@kitten92 Did you have Mona Lisa lazer or Co2??? If you dont mind how long did..." + (show)

Mona Lisa. I had LS for at least a year before it was diagnosed. Right now, I am going through a major flare-up for the first time in almost 6 years.

nemecis202 | @nemecis202 | Jan 26 12:28pm

In reply to @kitten92 "Mona Lisa. I had LS for at least a year before it was diagnosed. Right now,..." + (show)

I am so sorry for that! When you say flare you mean cuts and itch? I am
Fairly new to this just diagnosed. Doesn’t clob help you or perhaps laser again?

Kitten92 | @kitten92 | Jan 26 12:53pm

In reply to @nemecis202 "I am so sorry for that! When you say flare you mean cuts and itch? I..." + (show)

I started getting small tears and itching alot. My gyno says that the disease has spread too. I have steroid cream and a special compound cream prescribed by my gyno. I won't go through lazer therapy again.