Should I indulge my husband because it makes him happy?

Posted by janet7 @janet7, Dec 29, 2023

I need some help here.
My husband has Dementia and I’m his caregiver. We don’t socialize much in our Senior living home. He loves cards but our game isn’t played here. Other than shopping, we don’t have many places to go. We used to camp and would like to buy a small motor home. He is so excited about buying one that the thought makes him happy and gets him motivated. We can both drive one if need be. Recently, we decided to wait until we had more money and now he is back to sleeping a lot or watches COPS all day.
I am wondering if I should continue our search and take a look at the motor homes to help keep him motivated. I want him to feel human, even for a little while. What do you think I should do?

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@coping123

Quality of life is always in the forefront of my decisions. I try to indulge my husband’s desires while at the same time weigh safety & finances. My suggestion is that you rent an RV for a week or two & see how that goes. They aren’t cheap but it’s way less of an investment than buying one. There’s no way of knowing up front if it will be a positive experience. Dementias are strange beasts. One can still have dreams & goals but the reality of them could be a nightmare. I learned my lesson when I booked a 7-day trip to Florida (one of my husband’s bucket list items). Once airfare, hotel, and vehicle rental were confirmed & paid for he started obsessing on strangely minor details - such as getting from the airport to the hotel (just a couple of blocks). His anxiety continued to grow over the next few days. I ended up having to cancel the trip & forfeit $2,500+ in expenses. (I hadn’t felt the need for trip insurance.) Now I plan virtual trips & provide my husband with all the details of the plane, lodgings, maps of the area, etc. When his anxiety kicks in I “cancel” the trip. In the event the anxiety didn’t kick in (and it always does) I’d tell him trip was canceled due to XXX. I could use possibility of delayed flights, or concern about covid, etc. This way he still gets to dream & plan.

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Brilliant!

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I had a friend who found an RV place that needed vehicles moved. They would fly in to a city, pick up the RV, have generous time to toodle around sightseeing on the way home, and the cost was minimized. You would need to be the driver, however. I am certain the insurance would not apply to one with MCI or dementia even though your loved one may still drive your own vehicle.

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Hi, I am new to this forum. At 86, I am the caregiver to my 94-year-old husband. Even though I use a walker, I have become the driver/ keeper of calendars/ and the financial wizard in our little army of two against dementia. It is admirable that you want to keep your husband happy. I am not always up to engaging him, but when possible, I become his Scherazade (our little joke). We can no longer travel; so I remind him about a trip, a family get-together, even something he did as a young man before I was part of his life. It turns out no one can resist a good story, even as they have forgotten their own story. If only for the moment, it is an opportunity for you both to share on a meaningful level. I think I owe you a thanks. The situation thrust on us is isolating. How lovely there is this forum for connection without having to go through all the effort it takes to leave one's home. GloRo

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@gloro

Hi, I am new to this forum. At 86, I am the caregiver to my 94-year-old husband. Even though I use a walker, I have become the driver/ keeper of calendars/ and the financial wizard in our little army of two against dementia. It is admirable that you want to keep your husband happy. I am not always up to engaging him, but when possible, I become his Scherazade (our little joke). We can no longer travel; so I remind him about a trip, a family get-together, even something he did as a young man before I was part of his life. It turns out no one can resist a good story, even as they have forgotten their own story. If only for the moment, it is an opportunity for you both to share on a meaningful level. I think I owe you a thanks. The situation thrust on us is isolating. How lovely there is this forum for connection without having to go through all the effort it takes to leave one's home. GloRo

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Bless you. What an uplifting post from what must be a very challenging time for you! I hope we will see more posts from you. Be well!

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@2me

Bless you. What an uplifting post from what must be a very challenging time for you! I hope we will see more posts from you. Be well!

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Thank you for your kindness.

Let there be peace on earth and let it begin with me.

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@2me

Bless you. What an uplifting post from what must be a very challenging time for you! I hope we will see more posts from you. Be well!

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Hi to those who responded to my post. I am so glad I brought light to this dark that none of us would have chosen. All our stories are unique. My dear boy's dementia was late to arrive and slow to unravel his mind. Then for a fun aspect, he developed bowel cancer and had to have a colostomy. Nothing went as planned. It is a story too long and too demanding to recall in this forum. Patience has developed over the ten years in which we have come to come to grips with a new normal. We are more fortunate than many. We still can enjoy a joke, even as there is so much silence between us. -- If I sound positive, I am; but even those of us who are positive are vulnerable. Recently, I realized that a few depressing days had transformed into full-blown depression; it was horrible and scary. As you know, the pressure of being the sole decider of everything that was previously shared can wear one down. Working with my doctor, I am now on an anti-depressant, and fortunately, it is working. -- I stumbled on this forum when I was searching for information on the medication for depression. Without the energy or time to go to our community's caregivers' meetings, this forum came to me. It seems the universe will give you what you need if you take the time to do a Google search. When I wrote my original post, I felt a lightness I had not felt for some time. If I have written anything that helped, know that it is a two-way experience. -- GloRo

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@gloro

Hi to those who responded to my post. I am so glad I brought light to this dark that none of us would have chosen. All our stories are unique. My dear boy's dementia was late to arrive and slow to unravel his mind. Then for a fun aspect, he developed bowel cancer and had to have a colostomy. Nothing went as planned. It is a story too long and too demanding to recall in this forum. Patience has developed over the ten years in which we have come to come to grips with a new normal. We are more fortunate than many. We still can enjoy a joke, even as there is so much silence between us. -- If I sound positive, I am; but even those of us who are positive are vulnerable. Recently, I realized that a few depressing days had transformed into full-blown depression; it was horrible and scary. As you know, the pressure of being the sole decider of everything that was previously shared can wear one down. Working with my doctor, I am now on an anti-depressant, and fortunately, it is working. -- I stumbled on this forum when I was searching for information on the medication for depression. Without the energy or time to go to our community's caregivers' meetings, this forum came to me. It seems the universe will give you what you need if you take the time to do a Google search. When I wrote my original post, I felt a lightness I had not felt for some time. If I have written anything that helped, know that it is a two-way experience. -- GloRo

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Hi @gloro, it can all be so overwhelming, and, as you pointed out, humor helps. I sometimes answer my husband's questions with absurd answers, just to get a chuckle out of him,
"When are we going to have dinner?"
"By the end of the year."
or I make up really bad puns, which he still appreciates.
I'm glad you got help with depression, are feeling better, and found the strength to carry on, as we all must.
Best to you,
Teri

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Thank you to all of you for being here and for posting. It’s sometimes hard to be positive when this disease is so isolating. It’s good to know we’re not alone, that there are other travelers on this journey.

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@janet7

My husband has been a loner most of his life. When we socialize, he will stand near a group of people but doesn’t talk to them. Then he sits by himself and doesn’t say anything to anyone. He has a wonderful friend he has known for over 20 years, but other than camping, they do not share any interests, hobbies or sports. Will doesn’t like sports, but likes playing Solitaire on his tablet and cards with me or another couple. The other hobby he does love is cars but has not gone to a car show. We rarely go to movies because we watch them on TV and we don’t eat out much because it is so expensive. I don’t believe he has had a heart to heart talk with anyone he has known.
I have wished for him all of our married life to find a companion(s) he could share his interests with, but it has been 30 years and it hasn’t happened. I don’t know what else to say.

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I replied before on the basis that I AM your Will. I would not try to change him but realize what he has with his (only) friend of 20 yrs. But if he wants to pursue that it's only going to be harder to find if he isn't in situations that allow him to connect to a similar person. The other thing is have you ever read about being an introvert? Your question about if you should continue to look at campers even if you'll never get one may be unrelated to his not being socialable. That is if he had a couple more relationships, would that make him happy? Has he told you that? My son has few friends and I realize that the reason for that is (unlike me who also has few friends) is that he's a classic introvert. If Will thinks he'd welcome more companionship that might be accomplished by finding the most natural way that exists now and develop a strategy he'd be willing to put into place that would expose him to another he might connect to. The other thing is he might find satisfation volunteeering at an assisted living facilty or some place where simple interactions with people give him some fulfillment and mutual satisfaction that can replace chasing something that might never happen?.

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