Stopping Carvedilol (Coreg): When will the effects wear off?

Posted by teatime @teatime, Apr 28, 2016

Hi everyone,

I am glad to be a part of this community. Please foregive the long post. I was wondering if anyone has had a hard time while being on and going off Carvedilol (Coreg).

I am an active 45 year old mom of a young child. I have always tried to eat healthily and keep in shape (I do yoga, pilates and, run about 5k 2x per week). My BP has always been pretty good, but since my 40´s it has gone up a bit (heredity factors play a role). My BP and heart rate also "spike" when I get stressed or anxious, but for the most part are pretty level during normal times. I do have anxious moments, but I would not say anxiety has been a major life problem. At my last check (Feb 2016), and after wearing a 24 hour BP monitor, my cardiologist suggested I start Carvedilol 6.25 1x per day (quite a low dose) for the spikes and to keep the heart from getting too excited. I agreed that maybe it was a good idea and started over two months ago. Other than stimulating rapid bowel movements, I did not notice any side effects at first. I would say about three to four weeks into taking the Carvedilol, I began not sleeping well. I also noticed my heart pounding, like a bass drum, slowly and steadily, at times. Then the heart pounding began to wake me up at night (it turns out my HR was down in the high 40s at night). Some nights I even felt my chest muscles vibrate, as if a phone on silence mode was on top of my chest. I started to notice this more and more and then I would have a few normal nights, so I figured I would just talk about this at my next cardio check (booked out in June). I also noticed I was getting more and more anxious. I wasn't too sure why little things were beginning to bother me. I thought it was hormones, PMS, whatever, and started looking for someone like a therapist to talk to.

The previous week was bad. I woke up from a few nightmares and I started to panic in bed, just woken up from sleep. I had three nights of waking up to panic attacks and body shakes. The experiences made me very nervous. At this point I started looking into the side effects of Carvedilol and I was seeing not only chest pounding, but in rare cases reported effects of nightmares, visual disturbances, tremors, anxiety. I also know one does not simply stop a beta blocker, so we talked about tapering down. I tapered down for four days, and then I got in to see another cardiologist on Monday and he said just stop immediately. The effects are rare, but they have been noted. Going off this medication has been frightening. I feel weak and shaky all the time, and I get sporadic periods of pounding and muscle tremors in my legs, anxiety and fuzzy vision. I frequently get so cold I begin to shake. Yesterday I went back to the clinic for an EKG (normal) and some blood tests (including thyroid) and everything was normal. I am just assuming this is my body reacting and readapting itself after being on beta blockers. It has only been five days, but I am wondering if anyone out there has had similar experiences. How long did it take you to feel normal again? I ran a 5k just two weekends ago and yesterday I could hardly take a walk. Thanks for listening.

Interested in more discussions like this? Go to the Heart & Blood Health Support Group.

@doug_58

Interesting Thread. 58yo and I have CHF with a great prognosis from my cardiologist a few days ago. I've been on Carvedilol 25mg twice a day for two years - Never had a problem. He gave me my latest blood analysis as fantastic. The only reason why I went in to see him is because I started hyperventilating whenever I went into high speed, really heavy freeway traffic (70 mph+). This is no joke. So the last couple of days, I have stayed off the freeway.

But tonight broke the bank for me. Driving county roads and thorofares, (can't spell right now - I'm freaked) after dark, with traffic caused the hyperventilation incidents to re-occur. (What I think is, basically the pre-cursor to a full blown panic attack, yet not knowing what it really was).

The first time this happened (Wednesday) I pulled off at an exit and had my son pick me up and take me to my cardiologist, where he gave me my previous blood test results and had no explanation for the hyperventilation incidents. Blood work was perfect.

At first, I thought perhaps it was coffee doing me in, because the two times I experienced this, 30 mins prior I had had coffee house coffee, you know the black stuff that keeps you going every day. Well that idea didn't work.

I really thought it may have been coffee. Tonight kinda proved me wrong on that with no coffee, driving city and county streets in the dark. This is not something that happened over years, it's only started in the last week.

I'm just talking here, and I am no source of real information - this is just my opinion (perhaps fake news) and this is why I think I created this problem, based on other people's experience with this drug. There are a lot of reports on google with anxiety/panic issues connected to Carvedilol - by taking it. Me, I never EVER had a problem taking a 25mg dose twice a day. What happened was, and I really think this is it - I ran out of Carvedilol 9 days ago and was holding off refilling it until my Lisinopril needed to be refilled too.

I think I made a HUGE mistake by not refilling my rx right away by itself.. Getting off of Carvedilol (Coreg) of this magnitude (50mg) may be a challenge! Wow. I have talked with other people that I know that have panic/anxiety attack issues, but none of them match my situation - and I've never had one myself until now. I really appreciate the crap that people that have to suffer this type of condition more than ever.

Anyways folks thanks for this forum. One thing I've figured out yet again - is that I'm not the smartest bulb on the planet. If your meds work and you have no problems, keep them refilled and keep taking them. Carvedilol has worked for me really well, never had a problem, until I didn't refill it when it was supposed to be. That is what I THINK is causing my psycho issues atm.

Take care all.
PS: I will continue to pursue this issue. The only real thing that worries me is that I may have to stop driving, which would kill everything in my life dead. And btw, my Carvedilol rx will be refilled tomorrow first thing. All this drug stuff makes me fell so stupid. If I'm right on this, (and it may take a number of days for this freak show to stop once back on it), well either way I will post a report - about Missing a dose of Carvedilol. Keywords: Getting off Carvedilol Anxiety, Hyperventilation, Driving, Night driving, Freeway Driving. Carvedilol has been good for me. Hello Google Search Results!

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I had a friend like that she would be driving fast and go into a full blown panic attack? Only while driving? Hope you don't have another attack god forbid pull over and calm yourself with deep breathing and try to relax!!

REPLY
@doug_58

Interesting Thread. 58yo and I have CHF with a great prognosis from my cardiologist a few days ago. I've been on Carvedilol 25mg twice a day for two years - Never had a problem. He gave me my latest blood analysis as fantastic. The only reason why I went in to see him is because I started hyperventilating whenever I went into high speed, really heavy freeway traffic (70 mph+). This is no joke. So the last couple of days, I have stayed off the freeway.

But tonight broke the bank for me. Driving county roads and thorofares, (can't spell right now - I'm freaked) after dark, with traffic caused the hyperventilation incidents to re-occur. (What I think is, basically the pre-cursor to a full blown panic attack, yet not knowing what it really was).

The first time this happened (Wednesday) I pulled off at an exit and had my son pick me up and take me to my cardiologist, where he gave me my previous blood test results and had no explanation for the hyperventilation incidents. Blood work was perfect.

At first, I thought perhaps it was coffee doing me in, because the two times I experienced this, 30 mins prior I had had coffee house coffee, you know the black stuff that keeps you going every day. Well that idea didn't work.

I really thought it may have been coffee. Tonight kinda proved me wrong on that with no coffee, driving city and county streets in the dark. This is not something that happened over years, it's only started in the last week.

I'm just talking here, and I am no source of real information - this is just my opinion (perhaps fake news) and this is why I think I created this problem, based on other people's experience with this drug. There are a lot of reports on google with anxiety/panic issues connected to Carvedilol - by taking it. Me, I never EVER had a problem taking a 25mg dose twice a day. What happened was, and I really think this is it - I ran out of Carvedilol 9 days ago and was holding off refilling it until my Lisinopril needed to be refilled too.

I think I made a HUGE mistake by not refilling my rx right away by itself.. Getting off of Carvedilol (Coreg) of this magnitude (50mg) may be a challenge! Wow. I have talked with other people that I know that have panic/anxiety attack issues, but none of them match my situation - and I've never had one myself until now. I really appreciate the crap that people that have to suffer this type of condition more than ever.

Anyways folks thanks for this forum. One thing I've figured out yet again - is that I'm not the smartest bulb on the planet. If your meds work and you have no problems, keep them refilled and keep taking them. Carvedilol has worked for me really well, never had a problem, until I didn't refill it when it was supposed to be. That is what I THINK is causing my psycho issues atm.

Take care all.
PS: I will continue to pursue this issue. The only real thing that worries me is that I may have to stop driving, which would kill everything in my life dead. And btw, my Carvedilol rx will be refilled tomorrow first thing. All this drug stuff makes me fell so stupid. If I'm right on this, (and it may take a number of days for this freak show to stop once back on it), well either way I will post a report - about Missing a dose of Carvedilol. Keywords: Getting off Carvedilol Anxiety, Hyperventilation, Driving, Night driving, Freeway Driving. Carvedilol has been good for me. Hello Google Search Results!

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Well @mrsdeecee yeah, that's the scary part for me. When the condition arises, my body knows it and knows its' limitations. I still have the situation creep up in heavy fast traffic from time to time but my brain corrects it rather quickly now. I'm the guy in traffic that aggressive ppl hate, when they are on my ass wanting to do 75 when I'm doing 72, I'm 100 yards behind the other car in front of me with PLENTY of stopping distance ahead. I have a dash cam that I use 24/7, and today I decided to face it backwards because that's where all of the threats are. (But not because I fear them, I just love having driving idiocy on the record - I call it my bash cam instead of a dash cam).

When I first had to deal with this situation last month, it WAS a full blown panic attack and I had no idea what it was! That was why I pulled off and called my son to come get me because I didn't feel safe driving at all. I was hyperventilating walking around a gas station and it was so hard to control. I have been driving in this soup since 1974 (I think).

It is and will always be the craziest thing I have ever dealt with in my life.
This is not something, once it takes control even sub-consciously, is easy to deal with. I thank God I have found a mechanism that helps me cope with it so well! Driving is great again! I am blessed and lucky.

REPLY
@doug_58

Interesting Thread. 58yo and I have CHF with a great prognosis from my cardiologist a few days ago. I've been on Carvedilol 25mg twice a day for two years - Never had a problem. He gave me my latest blood analysis as fantastic. The only reason why I went in to see him is because I started hyperventilating whenever I went into high speed, really heavy freeway traffic (70 mph+). This is no joke. So the last couple of days, I have stayed off the freeway.

But tonight broke the bank for me. Driving county roads and thorofares, (can't spell right now - I'm freaked) after dark, with traffic caused the hyperventilation incidents to re-occur. (What I think is, basically the pre-cursor to a full blown panic attack, yet not knowing what it really was).

The first time this happened (Wednesday) I pulled off at an exit and had my son pick me up and take me to my cardiologist, where he gave me my previous blood test results and had no explanation for the hyperventilation incidents. Blood work was perfect.

At first, I thought perhaps it was coffee doing me in, because the two times I experienced this, 30 mins prior I had had coffee house coffee, you know the black stuff that keeps you going every day. Well that idea didn't work.

I really thought it may have been coffee. Tonight kinda proved me wrong on that with no coffee, driving city and county streets in the dark. This is not something that happened over years, it's only started in the last week.

I'm just talking here, and I am no source of real information - this is just my opinion (perhaps fake news) and this is why I think I created this problem, based on other people's experience with this drug. There are a lot of reports on google with anxiety/panic issues connected to Carvedilol - by taking it. Me, I never EVER had a problem taking a 25mg dose twice a day. What happened was, and I really think this is it - I ran out of Carvedilol 9 days ago and was holding off refilling it until my Lisinopril needed to be refilled too.

I think I made a HUGE mistake by not refilling my rx right away by itself.. Getting off of Carvedilol (Coreg) of this magnitude (50mg) may be a challenge! Wow. I have talked with other people that I know that have panic/anxiety attack issues, but none of them match my situation - and I've never had one myself until now. I really appreciate the crap that people that have to suffer this type of condition more than ever.

Anyways folks thanks for this forum. One thing I've figured out yet again - is that I'm not the smartest bulb on the planet. If your meds work and you have no problems, keep them refilled and keep taking them. Carvedilol has worked for me really well, never had a problem, until I didn't refill it when it was supposed to be. That is what I THINK is causing my psycho issues atm.

Take care all.
PS: I will continue to pursue this issue. The only real thing that worries me is that I may have to stop driving, which would kill everything in my life dead. And btw, my Carvedilol rx will be refilled tomorrow first thing. All this drug stuff makes me fell so stupid. If I'm right on this, (and it may take a number of days for this freak show to stop once back on it), well either way I will post a report - about Missing a dose of Carvedilol. Keywords: Getting off Carvedilol Anxiety, Hyperventilation, Driving, Night driving, Freeway Driving. Carvedilol has been good for me. Hello Google Search Results!

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Hey buddy @predictable - I think I responded earlier, but just wanted to reiterate that my symptoms are exactly that of 'hyperventilation - syndrome', however there must be a root cause for it. My bp was within range when I visited my cardiologist that day... even previous blood work results were like perfect. There is a mental dysfunction switch for any type of situation that could be dangerous imo. Mine at that time - simply turned off - like the no-fear of driving at speed on a crowded freeway. I LOST that confidence, that I had had for more than 40 years. It's a real switch.

I'm not saying that I'm cured, but I am definitely on the watch list, and watching myself. Heh, I will tell you there is a devil on my shoulder shaking his head in disgust saying to me - You're joking about this right?

I'm like - YEP! It is a joke. Unfortunately this has crawled into my head like an alien and I fight it with fake insults. I works though.
Take care and thanks!

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<p>I a new to this group. i hope I'm doing things right. I was put on Carvedilol on March 1 by a cardiologist for HBP. I had been on Metopolol for many years maybe 11 years. with no side effects. He told me to stop Metopolol immediately and to start on Carvedilol. Since that time I have been stumbling almost about to fall when I turn, nightmares and excessive urination. I go back to the doctor tomorrow. Should I have stopped the metoplol suddently?</p>

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@myra

<p>I a new to this group. i hope I'm doing things right. I was put on Carvedilol on March 1 by a cardiologist for HBP. I had been on Metopolol for many years maybe 11 years. with no side effects. He told me to stop Metopolol immediately and to start on Carvedilol. Since that time I have been stumbling almost about to fall when I turn, nightmares and excessive urination. I go back to the doctor tomorrow. Should I have stopped the metoplol suddently?</p>

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Hi @myra. Sorry to hear about your unfortunate symptoms after stopping Metoprolol abruptly and starting on Carvedilol. Your question is interesting -- asking about stopping Metoprolol, but not about starting Carvedilol. I have been on Carvedilol for more than a year, having started at 12.5mg per day (in two doses). I'm now taking 50mg per day in two doses. I can't identify any symptoms from starting Carvedilol.

I was advised from the beginning not to suddenly stop or sharply reduce Carvedilol, which is a beta blocker used to regulate heart rhythms and reduce blood pressure. Since then, I have read several articles by medical professionals giving the same advice on Metoprolol, which is also a beta blocker. Your long reliance (and perhaps dependence) on Metoprolol raises an important question about possible side effects from abrupt halt of the medication. It is so important that you should promptly tell your cardiologist about your symptoms and ask whether the abrupt shift from Metoprolol to Carvedilol could have caused your problems. Ask also whether the two drugs are equivalent in both purpose and effect or whether each is used for a different set of symptoms. If your cardiologist isn't clearly sympathetic and understanding, you should get second opinions from another cardiologist in answer to all of these questions. Your primary concern should be to get a good medical diagnosis of your instability, nightmare, and urination problems.

Good luck in getting this episode behind you. We'd also like to know more about why your cardiologist relied on Metoprolol to treat your hypertension for so long.

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@myra

<p>I a new to this group. i hope I'm doing things right. I was put on Carvedilol on March 1 by a cardiologist for HBP. I had been on Metopolol for many years maybe 11 years. with no side effects. He told me to stop Metopolol immediately and to start on Carvedilol. Since that time I have been stumbling almost about to fall when I turn, nightmares and excessive urination. I go back to the doctor tomorrow. Should I have stopped the metoplol suddently?</p>

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Hello @myra,
I'd like to add my welcome to @predictable's who has given some great insight, and I would encourage you to read these discussions about Carvedilol, too:
1) Side effects of heart medicine carvedilol joint pain and stiffness: http://mayocl.in/2nTvsB6

2) Stopping Carvedilol (Coreg): When will the effects wear off? wear off? http://mayocl.in/28YeSeN (This discussion, (No. 2), includes a reply by a Mayo Clinic pharmacist).

I'd also like to introduce you to @murryone @neeci @sittingscribe1 @momma78 @constanceann @teatime @barnes123 @lola63 @auntdd @incrediblemulk98 @doug_58 @barneythe2nd, as I'm sure they will return to share their experiences with you.

@myra, you may also wish to see this discussion about Metoprolol:
New to Afib, warfarin and metoprolol (beta blocker): http://mayocl.in/2neURa8

@hopeful33250, @kdubois do you have any information to share about your experience with Metoprolol that would help Myra?

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@myra

<p>I a new to this group. i hope I'm doing things right. I was put on Carvedilol on March 1 by a cardiologist for HBP. I had been on Metopolol for many years maybe 11 years. with no side effects. He told me to stop Metopolol immediately and to start on Carvedilol. Since that time I have been stumbling almost about to fall when I turn, nightmares and excessive urination. I go back to the doctor tomorrow. Should I have stopped the metoplol suddently?</p>

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Hello @myra I had similar side-effects to the Metoprolol. I had very busy dreams (felt tired when I woke up). I looked on the drug's website and noticed that was a side-effect along with dizziness and clumsiness. So I emailed (using My Chart) my cardiologist and he agreed that what I was experiencing was most likely a reaction to the med (he said it crosses the brain) and he switched me to Attenolol which has worked nicely without the side effects. It did take a while for the dreams to settle down, several weeks. Teresa

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@myra

<p>I a new to this group. i hope I'm doing things right. I was put on Carvedilol on March 1 by a cardiologist for HBP. I had been on Metopolol for many years maybe 11 years. with no side effects. He told me to stop Metopolol immediately and to start on Carvedilol. Since that time I have been stumbling almost about to fall when I turn, nightmares and excessive urination. I go back to the doctor tomorrow. Should I have stopped the metoplol suddently?</p>

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Hi @myra, did your doctor say why he wanted you to cease the metoprolol immediately? From what I understand, ceasing metoprolol shouldn't cause those symptoms.

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@kanaazpereira

Hello @myra,
I'd like to add my welcome to @predictable's who has given some great insight, and I would encourage you to read these discussions about Carvedilol, too:
1) Side effects of heart medicine carvedilol joint pain and stiffness: http://mayocl.in/2nTvsB6

2) Stopping Carvedilol (Coreg): When will the effects wear off? wear off? http://mayocl.in/28YeSeN (This discussion, (No. 2), includes a reply by a Mayo Clinic pharmacist).

I'd also like to introduce you to @murryone @neeci @sittingscribe1 @momma78 @constanceann @teatime @barnes123 @lola63 @auntdd @incrediblemulk98 @doug_58 @barneythe2nd, as I'm sure they will return to share their experiences with you.

@myra, you may also wish to see this discussion about Metoprolol:
New to Afib, warfarin and metoprolol (beta blocker): http://mayocl.in/2neURa8

@hopeful33250, @kdubois do you have any information to share about your experience with Metoprolol that would help Myra?

Jump to this post

I didn't have any problems with Metopolol , My primary doctor wanted me to see a cardiologist because after having a chest cold almost 3 months with no clearing. She figured that I was having heart failure which the cardiologist didn't find. My blood pressure was really high ( 184/86) so he took me off Metoprol and put me on Cavedilol. I think that the side effects are leaving, but I have this balancing problem. The Clinical Pharmacistt which I saw on yesterday, He is a partner of the Cardiologist, said that the medicine would not cause this and it looks liike my equilibrium is off. I never had this problem when changing medicines.

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@kdubois

Hi @myra, did your doctor say why he wanted you to cease the metoprolol immediately? From what I understand, ceasing metoprolol shouldn't cause those symptoms.

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This is what the clinical pharmacist said. He said its changing one beta blocker to another beta blocker. He said that I just experience some side effect which will be noted.

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