Anyone taking GIP or GLP-1 meds with Camzyos

Posted by suzy1111 @suzy1111, Jan 16 12:54pm

Been on Camzyos for almost 3 months now. Don’t really see much change although echos do show improvement. Think the biggest issue is weight that even though I have always been active just seemed to keep gaining and no success with losing no matter how hard I try. Want to start taking ozempic or mounjaro or something like. Anyone here taking these meds and have any success or bad side effects when using with Camzyos?

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@karukgirl

Thank you @kelliw for sharing with @suzy1111... you were able to give her some really good feedback, and that is so important for others to hear. I appreciate your wonderful incite and your positive attitude! You are a super helper!
I'm glad to hear the Ozempic is helping, and you use it along with Camzyos without problems. That's good to know. I gained 30 pounds not being able to walk/hike be active and even after the open heart surgery I still can't get it to budge! Grrr! I'm working on it, but it's frustrating to say the least when I work at it and get so little reward. Thanks again for sharing, I do so appreciate you! 🙂

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Thank you! I really appreciate this group! It is so helpful to be able to ask questions and share our experiences with other people on this same journey. 🙂

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I started Camzyos 12 days ago and first week felt amazing now the past few days severe debilitating headaches (.really bad) and feeling really awful. I have been taken off them for a week not sure I will go back in them. Anyone else had these side effects?

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@katiekins

I started Camzyos 12 days ago and first week felt amazing now the past few days severe debilitating headaches (.really bad) and feeling really awful. I have been taken off them for a week not sure I will go back in them. Anyone else had these side effects?

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Oh sorry to hear about the headaches.
I’ve been on Camzyos since December 7th 2023 and have mercifully had no serious side effects so far except for some weight loss.

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@katiekins

I started Camzyos 12 days ago and first week felt amazing now the past few days severe debilitating headaches (.really bad) and feeling really awful. I have been taken off them for a week not sure I will go back in them. Anyone else had these side effects?

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I did have a frontal headache on and off the first few week on Camzyos but after my body adjusted to it, they did go away. I’m not sure it was due to the drug or just coincided with the start of it? They were not debilitating however, and resolved with ibuprofen. Good luck to you.

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@par4rosy

Oh sorry to hear about the headaches.
I’ve been on Camzyos since December 7th 2023 and have mercifully had no serious side effects so far except for some weight loss.

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Wow that is great that you lost weight. I unfortunately have gained weight which disappoints me because I expected it would help me breathe better and therefore increase my activity level. It has made me more tired but I am hoping that was coincidental and can blame the cold weather or stress of the holiday season or both rather than the Camzyos. I will give it a few more months. I am glad to hear someone has lost weight on it though. Makes me hopeful. Thanks 👍

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@andyherman3

I did have a frontal headache on and off the first few week on Camzyos but after my body adjusted to it, they did go away. I’m not sure it was due to the drug or just coincided with the start of it? They were not debilitating however, and resolved with ibuprofen. Good luck to you.

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Similar situation with me. Ibuprofen took the edge off.

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@suzy1111

Thank you Debra for your response. Yes that was my first post. I have been a stalker on here for a few months now 😀. I have been on Camzyos since late October. I have not seen much improvement with my shortness of breath upon exertion and I seem to be much more fatigued as well. The weight just keeps piling on and I have no energy to do much because of the fatigue. I am post menopausal and I get what you are saying in that respect completely. I have seen my Dr very recently and she actually gave me the script for the GLP-1 but I am fearful of taking it. I was apprehensive about the Camzyos as well. The drug being so new and not
having much history of interactions with other drugs especially newer ones is concerning. Reading all the posts here has really helped me. I had so much depression and anxiety in the beginning. I thank you so much for mentoring this group. It is really appreciated. I read that you had the septal myectomy. You are brave! My dr really hasn’t discussed that much with me yet. I guess the Camzyos is the first try. I really am not very brave thinking about having to undergo any surgery. I was actually diagnosed years ago but the cardiologist at that time never told me. I had specifically gone to find that out since my mother had been diagnosed as she was going through cancer treatments. I knew it was highly hereditary. It wasn’t until about 7 years later when I was having many unexplained symptoms that another cardiologist reviewed my previous records and asked me if I knew I had HOCM. That explained a lot of my past issues with labored breathing and pain in the chest. I finally am under care of now a 3rd different cardiologist that seems to be really a good dr and fit for me. I think I am going to give the GLO-1 a chance because the extra weight plus some more now is hindering any progress I do make on the Camzyos. I recently had an echo as well which so showed a little set back. I have had all three echos now since staring. Just so Others have a reference point 1st one showed very little improvement, 2nd showed substantial improvement, 3rd showed small set back. I am still hopeful for the future. I started on 5mg and am still on 5. Just fyi to any interested I had no side effects except increased fatigue until month 3 when I started getting really dizzy. As someone else mentioned it is like vertigo not just a dizziness you get from lightheadedness. Sorry I am writing so much. For someone who doesn’t participate in these chat things usually I really talked a lot 😀. Good luck to all and thanks again Debra for being here❤️

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I encourage all women perimenopause phase consult with integrative medicine doc who specializes I. Women’s health on this. I thought my HCM was acutely getting worse with many of the symptoms but since taking very low dose of bioidentical hormones have had improvement, my gyn at the same academic center as my cardiologist would not do anything not run labs or anything until full menopause. This seems to be a very common story regardless of HCM diagnosis.

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Good morning! Yes-I am on Ozempic with my Camzyos. It is working very well! I am down 32 pounds. My cardiologist and primary care physician both thought it would be a great way to help me get my extra weight off as well. I still have a ways to go, but and happily having success! 🙂

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@kelliw

Good morning! Yes-I am on Ozempic with my Camzyos. It is working very well! I am down 32 pounds. My cardiologist and primary care physician both thought it would be a great way to help me get my extra weight off as well. I still have a ways to go, but and happily having success! 🙂

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That’s awesome to hear! Have u noticed side effects how have u managed? I have appt with my doc this afternoon to discuss this specifically

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@blessmyheart

That’s awesome to hear! Have u noticed side effects how have u managed? I have appt with my doc this afternoon to discuss this specifically

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I haven't had many side effects-I felt a bit of nausea just at the beginning and sometimes is hard to go to the bathroom, or the opposite! But other than that, it is amazing how I just don't feel hungry and it really gets rid of the "food talk'-like I'm eating breakfast, what am I going to have for lunch etc. I feel so much better from both the Camzyos and the Ozempic! Good luck at your dr. appt today! Keep me posted! 🙂

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