Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Hi Kelsey
I am new to the group. I am almost 75 years old and have chronic pain.
I am not sure how much information is required so maybe you can contact me and fall me in? Thank you. DeeFl

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@deefl

Hi Kelsey
I am new to the group. I am almost 75 years old and have chronic pain.
I am not sure how much information is required so maybe you can contact me and fall me in? Thank you. DeeFl

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Hi @deefl. Welcome to Connect. Thanks for joining us... we are glad to have you! This group is all about chronic pain, so you are in the right place. Here we talk about our challenges, goals, questions and concerns. If you are willing, i'm sure the group would love to know more about you for instance a little about your health history, how you are managing your chronic pain, any struggles you are facing, and even a little about you personally (what do you like to do for fun?). Connect is just a place where we can come to share and support each other. There is no right or wrong amount of info, it's just all getting to know each other. I hope this helps. If you have any additional questions, feel free to private message me.

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@kelseydm: When do you think the revised web site you spoke of will be complete? I still have a lot of trouble with this system. It is hard to find an individual and reply to their post. On memorial day I made it to the cemetery to put some decoration on my families graves with my kids, but the rest of the time I stayed home the weather was changeable and that means more pain for me. I hope you and everyone had a better time. 19lin

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@19lin

@kelseydm: When do you think the revised web site you spoke of will be complete? I still have a lot of trouble with this system. It is hard to find an individual and reply to their post. On memorial day I made it to the cemetery to put some decoration on my families graves with my kids, but the rest of the time I stayed home the weather was changeable and that means more pain for me. I hope you and everyone had a better time. 19lin

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Good to hear from you @19lin. A major part of the redesign has already been implemented. We improved the look of the discussions display, the email notifications and the members tab. This week we'll be fixing an issue with the reply functionality. I will send you a private message to dive deeper into the issues you are identifying, so we can address them too.

What a special activity to do with your children on Memorial Day! Sorry to hear the weather caused you pain... I hadn't thought about that but it makes sense. Did you at least get to enjoy some cookout fare?

@suebreen54 and @mojoearle, how was your holiday weekend?

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@kelseydm No between stomach and knee I stayed home but the rest had a good time 19lin

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@colleenyoung

Hi all,
I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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Att. Community Manager
Dear Sirs,
I do not know in what Discussion groups I might include my interest, the object rather, what I deem to be it of a general and scientific nature, however so far seemingly unreleased in internet or otherwise. It is somehow related with Mind Control and Physiotherapy. (The Noncancer Studies Contact Form is limited in length), and If possible, i would very much appreciate your kind information. - I am 96 years old, I suffered about 20 years ago a malign melanoma at a big toe then amputated, now with total reemission. I have a chronic heart-vascular condition, venous insufficiency, and arrhythmia; 6 years ago I became an arterial stent implanted. Well, this is all perfectly controlled by medicine, and my physical and cognitive capacity is excellent according to the physicians
Now I come to the main point. I am for many years a practitioner of Meditation which doubtlessly must have contributed to my longevity and stable health. Here my doubts. I am getting physical therapy mainly with stretching; otherwise, I am walking 3 times a week, about 30 to 40 minutes each, however to the advice of my doctor I should discontinue when starting to tire, especially during warm and humid weather. Nevertheless, if during walk I am distracted by vivid conversation, forgetting the tiredness (mind control?), I am able to keep on walking until I feel tired again. Similarly, during sessions of physiotherapy, considering my heart-vascular disease I am supposed to interrupt the therapy when presented with fatigue. If at that very instance my mind were transposed (from fatigue to unrelated thoughts) and thus keeping on, now tirelessly, with these physical efforts, are there risks involved, like an oncoming hyperthermia in the first case?
In other words, my mind being unfocused (masquerading?) on fatigue, thus recuperating temporarily my strength, is the commented risk point during these interludes being averted and thus allowing more extensive physical actions, in the way a case might require?
I would very much appreciate your opinion on this matter, so does my physiotherapist. Thank you, Pablo Luis Mainzer.

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<p>This is an open question to anyone. The last two times I have had an MRI it burned right up my spine to the point that I asked them to take me out immediately which they did not do although they did speed it up. Since then I have not had any in the last few years. Has anyone else experienced this? 19lin</p>

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@colleenyoung

Hi all,
I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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Welcome to Connect @pablo8.

As you point out, people are not divided nor defined by their diagnoses and conditions. Many members of Connect cross multiple groups and I welcome you to participate in any of the conversations relevant to you. For your current question about exercise with your cardiovascular conditions (chronic heart-vascular condition, venous insufficiency, and arrhythmia) I recommend that you post a message in the Heart & Blood Health group: https://connect.mayoclinic.org/group/heart-blood-vessel-conditions/

In particular, you may wish to join this conversation about "Staying healthy physically (and mentally) post heart attack" https://connect.mayoclinic.org/discussion/hi-there-i-just-now-joined-your-group-and-after-reading-a/ We look forward to connecting you with other members.

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@19lin Did they give you any explanation as to why the MRI would have caused the burning sensation up your spine? @leh09 @seanbeck @suebreen54 @ladyjane85 @briansr @salena54 @sharonmay7 have any of you had this experience with an MRI?

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@19lin

<p>This is an open question to anyone. The last two times I have had an MRI it burned right up my spine to the point that I asked them to take me out immediately which they did not do although they did speed it up. Since then I have not had any in the last few years. Has anyone else experienced this? 19lin</p>

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kelseydm : Still having trouble getting to a place to reply to posts? I have not figured out how to do it easily? Regarding MRI, the staff never said if anyone else had similar problems. On the next MRI I asked my doctor for something to help and they gave me a shot to help me relax, but it had no effect. They did not let me right out when I asked but talked me into waiting to get the important shots. I have avoided any further MRIs since then. 19lin

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