Yes, dealing with it - trying lots of different suggestions - prescriptions, etc. Nothing seems to quite do the job and some (prescriptions) make me worse. Just wondering if anyone has heard of DMSO. My granny had rheumatoid arthritis and used DMSO which seemed to help her. She was on pain meds too - percoset (or something like that and became addicted to it). Now, I'm over 80 years old so you kind of know how long ago the DMSO story was and granny was 92 when she passed away. What I remember was that it was a clear liquid that she rubbed on her knees and ankles and it made her breath smell - not really bad but kind of like garlic... anyway, wondering if any research has been done on the use of DMSO to treat PN?
@Hi there mfobrien36! I was a bit shocked when I saw your post about DMSO! This very potent and very putrid stuff has been used on Thoroughbred race horses for many many years, and is quite toxic. Yes, it works on lameness, muscle soreness, serious head injuries, laminitis and other equine afflictions. These horses develop very foul garlic breath also. But in both horses and humans, DMSO can cause kidney and liver damage, blood problems and other maladies. My family had harness racing Standardbred horses when I was younger, and DMSO was always a last ditch remedy. Nor did this stuff seems to work very well. Please be careful if you decide to try DMSO, it is an animal drug. Good luck with your research, @mfobrien36! None of us PN sufferers should ever give up because well, you never know! Best Wishes, Peggy
Yes, dealing with it - trying lots of different suggestions - prescriptions, etc. Nothing seems to quite do the job and some (prescriptions) make me worse. Just wondering if anyone has heard of DMSO. My granny had rheumatoid arthritis and used DMSO which seemed to help her. She was on pain meds too - percoset (or something like that and became addicted to it). Now, I'm over 80 years old so you kind of know how long ago the DMSO story was and granny was 92 when she passed away. What I remember was that it was a clear liquid that she rubbed on her knees and ankles and it made her breath smell - not really bad but kind of like garlic... anyway, wondering if any research has been done on the use of DMSO to treat PN?
Yup, I agree that it (DMSO) probably is toxic and should be controlled in its usage; however, snake venom is also toxic; warfarin is an adjusted form of rat poison, digitalis could send you to your maker pretty fast as well. If you watch television, you'll see pharmaceutical companies, smilingly extol their many virtues followed by a mind-boggling array of possible side effects so I guess my thinking is (since it helped granny live more comfortably till her death at 92) I wonder if any further investigation has been done on DMSO's effectiveness in treatment of the aforementioned maladies or if the research has determined that it is a dead end. I understand that there're places that sell it but whether or not it is medical grade - who knows (if there is such a thing). So - certainly caution and getting medical advice would be the smart thing to do. P.S. My grandfather used to race "sulkies" Thanks Peggy for your good input.... Mary
Yes, dealing with it - trying lots of different suggestions - prescriptions, etc. Nothing seems to quite do the job and some (prescriptions) make me worse. Just wondering if anyone has heard of DMSO. My granny had rheumatoid arthritis and used DMSO which seemed to help her. She was on pain meds too - percoset (or something like that and became addicted to it). Now, I'm over 80 years old so you kind of know how long ago the DMSO story was and granny was 92 when she passed away. What I remember was that it was a clear liquid that she rubbed on her knees and ankles and it made her breath smell - not really bad but kind of like garlic... anyway, wondering if any research has been done on the use of DMSO to treat PN?
Hi Mary, there has been some research done on DMSO used for pain. Did a quick search using Google Scholar (https://scholar.google.com/) - here's what DMSO for pain returned (filtered by 2017 on the left of the search results):
John, Volunteer Mentor | @johnbishop | Jun 15, 2017
For anyone living in the Minneapolis area, the Minnesota Neuropathy Association is having a meeting this month. I attached a meeting flyer. Great place to meet with and discuss peripheral neuropathy issues.
Next Meeting: 1:00 pm – Thursday, June 29th
Common Foot Ailments and Conditions for Patients with Neuropathy with or without Diabetes
What’s is a hammertoe?
Can you prevent an ingrown toenail?
Find out answers to these questions and so much more when April Jones, Clinic Manager for Pinnacle Foot and Ankle Clinics in Edina, Burnsville, and Coon Rapids comes to talk about common foot ailments and conditions that can lead to deformities and other health concerns for patients who suffer from neuropathy as well as those diagnosed with diabetes. From bunions to routine foot care, come find out why a podiatrist can be the best care you can give your feet to keep them happy and healthy.
Meeting location:
St. Michael’s Lutheran Church
9201 Normandale Boulevard,
Bloomington, MN 55437
I have had pn for 15 yrs but only pain for acouple of months and then developed foot drop in both. Now use watker cnstantly with ankle foot orhotics. No pain I am so lucky at almost 87. Docs don't know why
I have had pn for 15 yrs but only pain for acouple of months and then developed foot drop in both. Now use watker cnstantly with ankle foot orhotics. No pain I am so lucky at almost 87. Docs don't know why
Hello Hollander (@hollander), Welcome to Mayo Connect! You have come to the right place to get your questions answered, share your story with others with similar health issues, and learn from each other. Do you have any questions you would like to ask members following this discussion?
I have had pn for 15 yrs but only pain for acouple of months and then developed foot drop in both. Now use watker cnstantly with ankle foot orhotics. No pain I am so lucky at almost 87. Docs don't know why
At times I jerk with both arms and legs. My whole body feels like an electrical shock runs through it and my arms fly up. I take Requip at these times and just must get up and move. Thankfully this does not happen that often. I had a neurologist order a brain study regarding these symptoms because I have had a Traumatic Brain Injury in a car accident, which showed no anomalies.
Hi all. I don't know what I have from day to day. First diagnosed with GBS, sought out another neurologist and second diagnosis was CIDP. After test and seeking a third opinion, was diagnosed with POEMS. Has anyone been familiar with POEMS. I had a tumor removed in January 2017 then followed up with radiation treatments. I've been on Prednisone which helped, I didn't have all the side effects of Prednisone, weight gain. puffy face, now I'm weaning off the Prednisone, still having IVIG treatments for the CIDP diagnosis, and cautiously spacing them further apart. i suspect if I don't have problems, this will be discontinued sometime in the coming months. I was hard to diagnose properly and just pray a lot, because I am a lot better than I was in October of 2016. I was on a walker now I walk freely with the help of AFOs for drop foot in both feet. I drive now and take water exericse 4 days a week. I so interested in having a support group to talk to with this neuropathy. My hands were affected and now are better, not normal, legs either, but so much better than in the past, so I am grateful for the strides I make and can now do housework, play in my flowerbeds, not falling anyone..just enjoying what accomplishments I have made. Please respond with your experiences, what helps, Thanks for sharing with me.
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@Hi there mfobrien36! I was a bit shocked when I saw your post about DMSO! This very potent and very putrid stuff has been used on Thoroughbred race horses for many many years, and is quite toxic. Yes, it works on lameness, muscle soreness, serious head injuries, laminitis and other equine afflictions. These horses develop very foul garlic breath also. But in both horses and humans, DMSO can cause kidney and liver damage, blood problems and other maladies. My family had harness racing Standardbred horses when I was younger, and DMSO was always a last ditch remedy. Nor did this stuff seems to work very well. Please be careful if you decide to try DMSO, it is an animal drug. Good luck with your research, @mfobrien36! None of us PN sufferers should ever give up because well, you never know! Best Wishes, Peggy
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1 ReactionYup, I agree that it (DMSO) probably is toxic and should be controlled in its usage; however, snake venom is also toxic; warfarin is an adjusted form of rat poison, digitalis could send you to your maker pretty fast as well. If you watch television, you'll see pharmaceutical companies, smilingly extol their many virtues followed by a mind-boggling array of possible side effects so I guess my thinking is (since it helped granny live more comfortably till her death at 92) I wonder if any further investigation has been done on DMSO's effectiveness in treatment of the aforementioned maladies or if the research has determined that it is a dead end. I understand that there're places that sell it but whether or not it is medical grade - who knows (if there is such a thing). So - certainly caution and getting medical advice would be the smart thing to do. P.S. My grandfather used to race "sulkies" Thanks Peggy for your good input.... Mary
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Hug
2 ReactionsHi Mary, there has been some research done on DMSO used for pain. Did a quick search using Google Scholar (https://scholar.google.com/) - here's what DMSO for pain returned (filtered by 2017 on the left of the search results):
http://bit.ly/2rvMyqLJohn
I looked at webmd.com and wikipedia.
I am definitely scared away. There are too many risks.
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1 ReactionFor anyone living in the Minneapolis area, the Minnesota Neuropathy Association is having a meeting this month. I attached a meeting flyer. Great place to meet with and discuss peripheral neuropathy issues.
Next Meeting: 1:00 pm – Thursday, June 29th
Common Foot Ailments and Conditions for Patients with Neuropathy with or without Diabetes
What’s is a hammertoe?
Can you prevent an ingrown toenail?
Find out answers to these questions and so much more when April Jones, Clinic Manager for Pinnacle Foot and Ankle Clinics in Edina, Burnsville, and Coon Rapids comes to talk about common foot ailments and conditions that can lead to deformities and other health concerns for patients who suffer from neuropathy as well as those diagnosed with diabetes. From bunions to routine foot care, come find out why a podiatrist can be the best care you can give your feet to keep them happy and healthy.
Meeting location:
St. Michael’s Lutheran Church
9201 Normandale Boulevard,
Bloomington, MN 55437
Meeting Flyer is attached.
MNA flyer 6-17 (MNA-flyer-6-17.pdf)
I have had pn for 15 yrs but only pain for acouple of months and then developed foot drop in both. Now use watker cnstantly with ankle foot orhotics. No pain I am so lucky at almost 87. Docs don't know why
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1 ReactionHello Hollander (@hollander), Welcome to Mayo Connect! You have come to the right place to get your questions answered, share your story with others with similar health issues, and learn from each other. Do you have any questions you would like to ask members following this discussion?
John
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1 Reaction@hollander, could you please tell me what foot drop is?
Jim
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1 ReactionAt times I jerk with both arms and legs. My whole body feels like an electrical shock runs through it and my arms fly up. I take Requip at these times and just must get up and move. Thankfully this does not happen that often. I had a neurologist order a brain study regarding these symptoms because I have had a Traumatic Brain Injury in a car accident, which showed no anomalies.
Hi all. I don't know what I have from day to day. First diagnosed with GBS, sought out another neurologist and second diagnosis was CIDP. After test and seeking a third opinion, was diagnosed with POEMS. Has anyone been familiar with POEMS. I had a tumor removed in January 2017 then followed up with radiation treatments. I've been on Prednisone which helped, I didn't have all the side effects of Prednisone, weight gain. puffy face, now I'm weaning off the Prednisone, still having IVIG treatments for the CIDP diagnosis, and cautiously spacing them further apart. i suspect if I don't have problems, this will be discontinued sometime in the coming months. I was hard to diagnose properly and just pray a lot, because I am a lot better than I was in October of 2016. I was on a walker now I walk freely with the help of AFOs for drop foot in both feet. I drive now and take water exericse 4 days a week. I so interested in having a support group to talk to with this neuropathy. My hands were affected and now are better, not normal, legs either, but so much better than in the past, so I am grateful for the strides I make and can now do housework, play in my flowerbeds, not falling anyone..just enjoying what accomplishments I have made. Please respond with your experiences, what helps, Thanks for sharing with me.
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Like -
Helpful -
Hug
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