(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Hi Nick...can u resend the message again when u have a minute...tks🇨🇦

@megan123 I buy my ClearLung extra strenght in US at The Vitamine Store is the cheapest 39$/ 120 capsule. They have it on Ebay but very expensive. The company is Ridgecrest and the product is Clearlung EXTRA STRENGHT Very important. Try THE NATIONAL NUTRITION.ca in Ontario. They do mail even during the pandemic here are there number 1-800-526-9772. I saw that they have a product called flush but I don’t about that one but ClearLung Extra Strenght is a must for Bronchiectasis lung. I maintain my lungs with this and having a very normal life. I never wanted to take the cocktail and my infectiologue never recommended it! Hope this will help! You can check any natural store that sells vitamine they may have some!
Love Nicole

@sue volunteer mentor. Thanks Sue! We had a good trip home and we are very safe here only 4 active cases in the South of the province. But like all of us I stay home without going out because of the virus and because it still very cold here and don’t want to get the flu either. Better play it safe than being sorry! I am very worried for all of you in the states because you have almost one million cases that is very scary for us who have lungs issues, stay home stay safe and my prayers are with you all! I am doing very good! No more issues with my lungs and my slummy throat! Soooooi glad! Take care!

@anniepie i just want to share what my doctor (infectiologue) said to me for MAC . If we were doing bronchoscopy to everybody 80% of the population have it in their lung but it is not active on every one. It is when he start colonized (being active) the problem comes. The cocktail hasn’t been proven totally efficient And the secondary effects isn’t worth the cause in your case. He also said that our acid stomach reflux is mostly the cause according to the scientists he was told at his last conference. So I took care of my stomach first then all possible allergies. With Clear lung extra strength I use it only when I feel a slight difference in my breathing. I ignore the MAC so do not worry too much even if you tested positive as long as your stomach is find no reflux, no sputum and slime throat and your breathing. I recognized that the symptoms are not the same for everyone but it is worth to share my experience. I have no fear from it anymore! Have a Lovely year 2020! Stay home ! Stay Safe!

Hi Nick....I have been using Extra Strength Clear Lungs everyday, only 1 pill as a preventative..if I notice an exacerbation which I don't anymore, then I would increase the dosage...maybe this as well as Nac, Oil of Oregano, and Vit D 6,000 plus K, has helped, even with colonized Pseudomonas, MAC, Bronchiectasis....

Thinking of everyone -- hope we're all getting through this awful time safely. Best of luck, Annie

A new study titled "Vitamin D Deficiency Linked to Poor Lung Function in Adults With Bronchiectasis" was just posted on "Bronchiectasis News Today". Results revealed that the average levels of 25-hydroxyvitamin D or 25(OH)D — the major form of vitamin D in the blood — were significantly lower in adults with bronchiectasis than in healthy individuals, 14.7 vs. 19.8 nanograms (ng)/mL. In addition, nearly three quarters (73.1%) of the patients with bronchiectasis had vitamin D deficiency, with 25(OH)D levels under 20 ng/mL.
Bottom line from the study was, vitamin D deficiency was common in adult bronchiectasis patients and it might be related to severe radiological findings on chest [CT] and poor lung functions,” the researchers wrote.
I would suggest anyone with Bronchiectasis get their blood level checked before taking any supplements. Bill

I am very fastidious about keeping my D level up to about 50. Lack of vitamin D can play havoc in many ways

This is about taking prednisone to clear up what might be inflammation in my bronchial tubes... I have MAC, bronchiectasis and pseudemonas but those are all under control as of today. About 6 weeks ago, after feeling great for many months, I noticed I was getting breathless with very little activity. I am taking Lung Health and NAC along with Vit D. This came out of nowhere. Finally spoke to my lung doctor who thinks it might be this inflammation and he wants me to take prednisone for two weeks to see if that will help. Has anyone taken prednisone? Can anyone give me insight as to going this route? I am not coughing, I feel well in all other regards and at rest my oxygen is at 96. Thanks so much, Pam

@pamelasc1 Hi Pam, I can only answer from my own experience here - I had MAC & pseudomonas, but didn't know it. I also had an asthma exacerbation and my primary doc put me on prednisone to try to get it under control. The MAC got worse & worse, I got sicker & sicker, ended up getting diagnosed and treated for over 18 months and am fine right now - except some shortness of breath I attribute to seasonal allergies plus asthma. My pulmonologist says to increase my levalbuterol nebs, not introduce steroids.
There are others on this forum who have been advised that say no steroids ever with bronchiectasis because they suppress the immune system, and there is some evidence that people on immunosuppressants are more susceptible to mycobacterial infections. (see https://www.nationaljewish.org/conditions/ntm-nontuberculous-mycobacteria/ntm-nontuberculous-mycobacteria-overview/causes )
Anyone else want to tell us their experience?
Sue