Burning Mouth Syndrome. I have it very severe.

Posted by mygrigio @mygrigio, Aug 5, 2011

I am a 76 year old women and have had this condition for almost a year. it is getting worse everyday. been to many doctors and not one of them has heard otf it, I am getting desperate

Interested in more discussions like this? Go to the Skin Health Support Group.

Hi @ristu, you may have noticed I moved your post to this existing burning mouth syndrome discussion so that others can follow along on the MLS laser discussion.

Looking back, I see it was @lauren123 originally brought up MLS treatment, so while we wait for her to respond, I wanted to share this information for everyone to read on MLS treatment.

Here is a study on MLS Laser therapy's effectiveness: https://www.ncbi.nlm.nih.gov/pubmed/21142725

REPLY
@ethanmcconkey

Hi @ristu, you may have noticed I moved your post to this existing burning mouth syndrome discussion so that others can follow along on the MLS laser discussion.

Looking back, I see it was @lauren123 originally brought up MLS treatment, so while we wait for her to respond, I wanted to share this information for everyone to read on MLS treatment.

Here is a study on MLS Laser therapy's effectiveness: https://www.ncbi.nlm.nih.gov/pubmed/21142725

Jump to this post

Ok. Thanks for the link. I will check it out. Regards,Stu

REPLY
@lauren123

@meadowhouse, What I have learned is that some people respond well and some do not. I don't know what an MLS laser is. I purchased a Terraquant laser on line after it seemed to help. The important point is that it needs to be used daily. Only then will you know if it helps. Good luck and keep me posted, please.

Jump to this post

@lauren123 Thanks so much for your info on the type of laser you have. I will let you know how I make out once I start on the MLS laser therapy I mentioned.
Are you still using your laser every day?

REPLY
@lauren123

@mamajomclane, what is a MLS laser?

Jump to this post

@mamajomclane Hi, what I have learned is that the MLS laser stands for multiwave locked system. I first heard about it in another support group where someone was having good results for her BMS. Basically she said is not given in the mouth though-it’s all over-especially in her lymphatic system. She said she had 6 treatments and was having better success in 6 weeks than in all the 6 years of pills and potions.

REPLY
@meadowhouse

@mamajomclane Hi, what I have learned is that the MLS laser stands for multiwave locked system. I first heard about it in another support group where someone was having good results for her BMS. Basically she said is not given in the mouth though-it’s all over-especially in her lymphatic system. She said she had 6 treatments and was having better success in 6 weeks than in all the 6 years of pills and potions.

Jump to this post

@meadowhouse, wow that is impressive. I will look for more detail on the site if you have posted it. Thank you!

REPLY
@ristu

Hi everyone. So, what's the story with this MLS laser? Also, does amitriptyline, or calcium channel blockers have any success with other BMS sufferers ? So far, after three plus years, nothing has worked ! Regards Stu

Jump to this post

@ristu Hi, Stu, amitriptyline and calcium channel blockers have not helped me. I have had BMS or Atypical trigeminal neuralgia since 2004 due to a dental incident. The only think that helps me is Klonipin, Cymbalta, and ambien for sleep. I also do yoga and see a chiropractor on a regular basis.

REPLY

Hi Lauren. So, clonazepam has not work for me at all. I have not tried amitriptyline on calcium channel blockers yet. Just was curious, if you had tried that. I need to look into the laser treatment. Wondering if that will bring any relief, and have any side effects? Regards Stu

REPLY
@ristu

Hi Lauren. So, clonazepam has not work for me at all. I have not tried amitriptyline on calcium channel blockers yet. Just was curious, if you had tried that. I need to look into the laser treatment. Wondering if that will bring any relief, and have any side effects? Regards Stu

Jump to this post

@ristu, My chiropractor is quite knowledgeable about lasers and uses one in his office. The next time I see him, I will ask him about the MLS laser. I have heard that some people respond well to amitriptyline. I can't use it because it causes my gums to throb worse than before application. Do you have BMS or Trigeminal neuralgia? Some people are diagnosed with both.

REPLY

Hi Lauren. I have BMS. I'm curious as to how the action of the laser Works. Does it numb the nerves? Does it destroy the nerves? Does the laser have any long-term side effects? How long does it last, meaning is it effective for long-term? I appreciate any efforts. Thanks Stu

REPLY

Hi everyone. So, I see there's a number of studies that are available on the internet on what they call a low level laser. The results in some of the cases appear to be an 80% Improvement in the pain management for burning mouth syndrome. If anyone has had this treatment, and is free of pain more than three months, I'd like to hear from you. Regards Stu

REPLY
Please sign in or register to post a reply.