What's your experience with dialysis? Give & get support here

@fiesty76, I have compazine and sip on ginger ale. My first post in this thread asked about others' dialysis experience and only a couple of people responded; I didn't get many answers. But meeting others who are at my dyalsis clinic the same time I'm there has been an eye opener. With a couple of exceptions, most of them tell me they feel lousy much of the time. I get the impression they put up with the side effects simply because they still want to live but a couple have indicated they are considering stopping dialysis and letting nature take its course because of the misery dialysis has occasioned. I'm not at that point yet but I sure do understand it. I'm not ready to give up but I'm not ready to stop whining, either.

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@kamama94 Have you let your neph know how you are feeling? I am part of a kidney support group found at rsnhope.org. What we have discussed is those who are able to do peritoneal dialysis, which is done daily, seem to have a better quality of life, as their blood is cleaned everyday. Hemodialysis, which is done two or three days a week, based on the patient's needs, means the toxins in your system have a chance to build up between sessions. And if you dialyze on a Mon-Wed-Fri schedule, you go three days between Fri to Mon, so you can get to feeling pretty punky.

Here is me raising a glass of beverage of your choice, to feeling better soon. And feel the arm around your shoulder.
Ginger

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Wellll, friend, @kamama94, you have my sterling but often disqualified (lol) humble permission to whine away at will, as often as you please, and as loudly as you choose to muster!! After all, that is what these groups are for right? Not only to suggest, encourage and support but also to provide a safe and understanding place to question, to share our challenges and to vent when daily obstacles start to overwhelm.

I, too, was very surprised that not more members here didn't jump in to respond to your original post. Thinking it may be that many, like me, have signed up to participate in numerous threads and just don't stay current on each.

My dearest friend shared that she experienced some of what you are finding out during her chemo/radiation treatments. Like you, she was a long and heroic warrior who stayed positive until she finally just said: "enough".

What troubled and angered me most about her long and progressively difficult battle was the sudden disappearance of and lack of support from her many decades long "close" friends. Did they think her cancer was catching???? I pray that hasn't happened to you and that your support base stands "at the ready" to help in anyway that will add a smile or comfort to your days.

A small rant: I go this morning for an overdue Reclast infusion. Still fuming because I wasn't told Both a Dexa scan and bloodwork would be needed before the infusion could be scheduled. Meant a second trip to lab for what could so easily have been carried out a first trip. If you ever need a bit of my Irish to speak up or out about what is or isn't being done, I'll keep some handy to send your way!

You have helped so many of us so much with your extensive work on specific food compositions and many of us continue to try and benefit from your tasty recipes. Love and Hugs

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Wellll, friend, @kamama94, you have my sterling but often disqualified (lol) humble permission to whine away at will, as often as you please, and as loudly as you choose to muster!! After all, that is what these groups are for right? Not only to suggest, encourage and support but also to provide a safe and understanding place to question, to share our challenges and to vent when daily obstacles start to overwhelm.

I, too, was very surprised that not more members here didn't jump in to respond to your original post. Thinking it may be that many, like me, have signed up to participate in numerous threads and just don't stay current on each.

My dearest friend shared that she experienced some of what you are finding out during her chemo/radiation treatments. Like you, she was a long and heroic warrior who stayed positive until she finally just said: "enough".

What troubled and angered me most about her long and progressively difficult battle was the sudden disappearance of and lack of support from her many decades long "close" friends. Did they think her cancer was catching???? I pray that hasn't happened to you and that your support base stands "at the ready" to help in anyway that will add a smile or comfort to your days.

A small rant: I go this morning for an overdue Reclast infusion. Still fuming because I wasn't told Both a Dexa scan and bloodwork would be needed before the infusion could be scheduled. Meant a second trip to lab for what could so easily have been carried out a first trip. If you ever need a bit of my Irish to speak up or out about what is or isn't being done, I'll keep some handy to send your way!

You have helped so many of us so much with your extensive work on specific food compositions and many of us continue to try and benefit from your tasty recipes. Love and Hugs

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@fiesty76 and @kamama94

I've read your posts here and there but because I had a preemptive kidney transplant I didn't need dialysis so I don't have any first hand advice. When my mother was on dialysis in the 1980s she would become very I'll if the nurses pulled fluids too quickly. Her dialysis ended up taking much longer than most but it prevented her from the nausea etc.

Best of luck to you.
@jolinda

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@kamama94, You dear one are most welcome! If you've not seen this recent post by our own @johnbishop, it is well worth the viewing at any age along with a second one by the same Mayo doc, Dr. Anit Sood, speaking at "Transform" How to Train a Happy Brain: https://newsnetwork.mayoclinic.org/discussion/how-to-train-a-happy-brain/ and https://www.youtube.com/watch?v=KHXAZmud-SA

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@fiesty76, similar principles in twelve steps to recovery. . .

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