← Return to What's your experience with dialysis? Give & get support here

Discussion
Comment receiving replies
@fiesty76

Wellll, friend, @kamama94, you have my sterling but often disqualified (lol) humble permission to whine away at will, as often as you please, and as loudly as you choose to muster!! After all, that is what these groups are for right? Not only to suggest, encourage and support but also to provide a safe and understanding place to question, to share our challenges and to vent when daily obstacles start to overwhelm.

I, too, was very surprised that not more members here didn't jump in to respond to your original post. Thinking it may be that many, like me, have signed up to participate in numerous threads and just don't stay current on each.

My dearest friend shared that she experienced some of what you are finding out during her chemo/radiation treatments. Like you, she was a long and heroic warrior who stayed positive until she finally just said: "enough".

What troubled and angered me most about her long and progressively difficult battle was the sudden disappearance of and lack of support from her many decades long "close" friends. Did they think her cancer was catching???? I pray that hasn't happened to you and that your support base stands "at the ready" to help in anyway that will add a smile or comfort to your days.

A small rant: I go this morning for an overdue Reclast infusion. Still fuming because I wasn't told Both a Dexa scan and bloodwork would be needed before the infusion could be scheduled. Meant a second trip to lab for what could so easily have been carried out a first trip. If you ever need a bit of my Irish to speak up or out about what is or isn't being done, I'll keep some handy to send your way!

You have helped so many of us so much with your extensive work on specific food compositions and many of us continue to try and benefit from your tasty recipes. Love and Hugs

Jump to this post


Replies to "Wellll, friend, @kamama94, you have my sterling but often disqualified (lol) humble permission to whine away..."

@fiesty76, you make me smile through my tears. Thank you for the comfort!

@fiesty76 and @kamama94

I've read your posts here and there but because I had a preemptive kidney transplant I didn't need dialysis so I don't have any first hand advice. When my mother was on dialysis in the 1980s she would become very I'll if the nurses pulled fluids too quickly. Her dialysis ended up taking much longer than most but it prevented her from the nausea etc.

Best of luck to you.
@jolinda