Top Takeaways from "Transplant 101: Preparing for Your Journey"

Jun 13, 2017 | Mayo Clinic Transplant Staff | @mayoclinictransplantstaff

In March, transplant experts David Douglas, M.D., chair of the Transplant Center at Mayo Clinic’s campus in Phoenix, Ariz., and Beverly Hansen, M.S.W., L.M.S.W., Social Work Manager, presented a webinar titled “Transplant 101: Preparing for Your Journey.” The one-hour session was packed with information on the many important decisions you’ll make on your journey to organ transplantation. If you missed it, we encourage you to watch the recording. It would be a great resource for loved ones and caregivers as well, so invite them to join you!

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Here are top takeaways.

Did you know… recipients and donors are matched by a national computer matching system?

When a transplant candidate has been evaluated and approved for transplant, they are added to the national waiting list managed by the United Network for Organ Sharing (UNOS). As donors are identified, they are run through UNOS’ national computer matching system to identify a recipient that matches their unique characteristics.

Did you know… you have full access to performance metrics on every transplant center in the United States?

That’s right! Twice a year, usually in January and July, the Scientific Registry for Transplant Recipients (SRTR) releases program summary reports (PSRs) for each solid organ transplant program at the approximately 250 transplant centers across the country. The reports include information about the candidates waiting for a transplant, outcomes on the waiting list, transplant recipients, donors, and outcomes after transplant. Having and understanding the PSR data is a critical tool for choosing your transplant center and will leave you feeling confident in your decision. As we near SRTR’s July release, freshen up on your SRTR knowledge by reviewing this blog post.

Did you know…if you receive care at Mayo Clinic, plan on spending between two and 10 days on site for your transplant evaluation.

The transplant evaluation is a huge milestone in your journey to transplantation. At Mayo Clinic, it can take anywhere from two to 10 days to complete the intensive testing and consultations with our multidisciplinary team. Learn more about your transplant team here.

Did you know… a transplant caregiver is essential.

You’ll have access to a talented team of transplant experts at Mayo Clinic, but the MVP might just be your caregiver. Your caregiver is key to your success both pre- and post-transplant. They will help take notes and ask questions during your appointments; provide physical and emotional support; help with driving, cleaning and laundry after surgery; assist with medications, record blood pressure, temperature and weight; and so much more.

Did you know… you may need to relocate, but not forever.

Once you’re listed and waiting for your transplant, a call could come at any time that a donor match has been identified. Therefore, you may need to consider relocating so you’re able to get to your transplant center on a moment’s notice. Close proximity to your transplant center is important after your surgery, as well. Mayo Clinic offers transplant housing at each of its three campuses to make the process of relocating a bit easier for you.

Did you know… we’ll help you make sense of the benefits that are available to you.

If you receive care at Mayo Clinic, our amazing social workers and financial teams will help guide you through any financial or time away from work concerns you have. They’re here to educate you on benefits like disability, the Family and Medical Leave Act – they can even help you put together a fundraising plan to help you manage your out-of-pocket expenses.

Did you know…the number one goal post transplant is to go on with your life!

Your goals are our goals. Most patients just want to get on with their lives following their transplant, and we want that for you, too. Post-transplant you can expect to have ongoing appointments and close follow-up, which usual means annual appointments at Mayo Clinic. Our post-transplant protocol is intended to keep you well so you can continue to enjoy your life.

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