HLHS Blog

  We often get questions about issues facing post-Fontan individuals. To learn more about the Fontan surgery, as well as the research being done by…

Sisters by Heart was formed in 2010 by a group of heart moms who came together to support others on the journey of being a…

  In December 2019, an outbreak of a new infectious disease occurred in China. The virus has been named "SARS-CoV-2" and the disease it causes…

  FRIDAY, MARCH 27 -- What happens to clinical trials when an unprecedented global outbreak shuts down life as we've known it?  The answer, as…

During CHD Awareness Month, we hear many families share stories of their journey in the heart world. The community is very tightly knit, and many…

Going away to college can be both an exciting and scary time for young adults, including those with congenital heart disease (CHD). This article is…

  2020 marks the 10 year anniversary of the Todd and Karen Wanek Family Program for HLHS at Mayo Clinic! To kick off the celebration,…

Demystifying Clinical Trials Series – Part 4The research world can seem confusing or overwhelming at times. Our ongoing series is designed to give you the…

  BIRMINGHAM, ALABAMA -- Mayo Clinic’s Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) and Children’s of Alabama are proud to…

  CINCINNATI, OHIO — Mayo Clinic's Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) and Cincinnati Children's Hospital Medical Center are…

“Evaluation and Management of the Child and Adult with Fontan Circulation: A Scientific Statement from the American Heart Association.” Circulation.2019; 140:e234-e284 The American Heart Association…

  October is Ultrasound Awareness Month. Because 60-70% of HLHS cases are diagnosed in utero by ultrasound, the ultrasound sonographer often plays a crucial role…

  October is Ultrasound Awareness Month. Because 60-70% of HLHS cases are diagnosed in utero by ultrasound, the ultrasound sonographer often plays a crucial role…

  Good health behaviors are defined as “actions that individuals take to maintain or enhance their health and reduce health risks” and are especially important…

  We’re in the home stretch – only five more days until Feel the Beat 2019! Be sure to RSVP if you haven’t already. The…

The theme of this year’s Feel the Beat is “ELEVATE” – raising awareness and celebrating how research enhances the lives of individuals with HLHS! One…

This year’s Feel the Beat is right around the corner! For the next few weeks, we’ll be giving you a sneak-peak of our guest speakers,…

If you’re attending Feel the Beat on Saturday, October 12, we’ve got you covered on what to expect when you arrive in Rochester, Minnesota! Make…

With more young women reaching their childbearing years after Fontan, researchers are finding that their pregnancies may be complicated due to poor circulation. Researchers at…

Hypoplastic left heart syndrome (HLHS) is a complex congenital heart defect in which the left side of the heart is severely underdeveloped. The care for…