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Welcome to the Ehlers-Danlos Syndromes (EDS) blog for people with EDS and Hypermobility Spectrum Disorders (HSD). Find information relevant to you written by the EDS multidisciplinary team from gastroenterology, neurology, cardiology dermatology, integrative medicine, PT/OT, pelvic floor therapy, and other specialties. Follow the blog and stay up-to-date as our experts post stories, clinical trials, resources, and more.
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Will I be able to dance? Flexibility is one of the greatest assets for dancers. When it comes to joint hypermobility spectrum disorders (HSD)…
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What is Aortic Dilation? In order to understand this, first, let’s talk about what is aorta. The aorta is the main artery that takes…
Patients can suffer debilitating setbacks from symptoms of EDS/HSD, so it’s important to take the opportunity to highlight patient success stories. We have started a…
There are numerous definitions of service dogs, but to many, they are cherished animal companions that serve as eyes, ears, hands, or legs…
Just as we have a very active role diagnosing and treating patients, our research agenda is equally important to improve our understanding of these disorders.…
What to Know about GERD and EDS Gastroesophageal reflux disease (GERD) is the recurrent flow of stomach acid back into the esophagus, the tube…
In a previous blog post, we highlighted four must-see documentaries on Ehlers-Danlos syndromes (EDS) and Hypermobility Spectrum Disorders (HSD). In this post, we’ve compiled…
Becoming pregnant for the first time can bring an equal amount of joy and nervousness, especially for someone with hEDS/HSD. We have a story to…
Documentaries are powerful tools for raising awareness and fostering empathy for chronic illnesses. In this blog post, we've put together a summary of 4…
Have you had problems with sleeping? If so, you are not alone. Sleep problems can occur among people with EDS and HSD. Data from our…
EDS and Skincare Taking care of your skin is important for everyone, but it becomes even more crucial for individuals with EDS and HSD.…
The background To be born different is special yet sometimes challenging. Getting a correct diagnosis and a clear road to recovery is the largest hurdle…
Summer is here! Water parks, beaches and pools have been drawing large crowds in recent weeks. Previously, we discussed exercises that are beneficial for people…
Many individuals with hypermobility are attracted to yoga for a very simple reason: they’re good at it! The inherent flexibility allows beautiful and bendy poses,…
As you may have seen from our recent post, May is EDS/HSD Awareness Month. It is a month set aside, for people around the world…
Despite the fact that Ehlers-Danlos Syndrome is a widespread condition, many people might…
Author: Brianna Sessions, EDS patient As a child and teenager, before my Ehlers Danlos Syndrome became apparent, I spent hours each week studying the martial…
Author: Mahima Master, MBBS How can eyes be affected by a connective tissue disorder? This question needs to be understood and properly evaluated. Collagen works…
Authors: Dacre Knight, MD, MS; DeLisa Fairweather, PhD; Katelyn Bruno, PhD In our last research update, we summarized our study on establishing our EDS…
Author: Casey Uritis, OTR/L What is Occupational Therapy? Through the use of activity modifications, exercise, education, and management tools, occupational therapists enable patients to achieve…
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