Connect
Welcome to the Ehlers-Danlos Syndromes (EDS) blog for people with EDS and Hypermobility Spectrum Disorders (HSD). Find information relevant to you written by the EDS multidisciplinary team from gastroenterology, neurology, cardiology dermatology, integrative medicine, PT/OT, pelvic floor therapy, and other specialties. Follow the blog and stay up-to-date as our experts post stories, clinical trials, resources, and more.
Public blog
Newsfeed
Author: Mahima Master, MBBS How can eyes be affected by a connective tissue disorder? This question needs to be understood and properly evaluated. Collagen works…
Authors: Dacre Knight, MD, MS; DeLisa Fairweather, PhD; Katelyn Bruno, PhD In our last research update, we summarized our study on establishing our EDS…
Author: Casey Uritis, OTR/L What is Occupational Therapy? Through the use of activity modifications, exercise, education, and management tools, occupational therapists enable patients to achieve…
Author: Dacre Knight, MD, MS Over the past few weeks, there has been more attention to the rising number of patients (and some celebrities) diagnosed…
Oftentimes in the medical world, we get frustrated that a symptom or problem isn’t discovered or remedied quickly enough to maintain our quality of life.…
Author: Dr. Cynthia Neville, PT, DPT, WCS A few months ago, we discussed pregnancy and pelvic floor PT. Here, we will go in more detail…
We previously posted information on Nutrition and EDS – including supplements. Now, we move this topic further to answer a commonly asked question – “Is…
Some women with hypermobility disorders may notice worsening joint laxity leading up to their menstrual cycle. Evidence has shown that hormonal fluctuations associated with the menstrual…
A diagnosis of hypermobile Ehlers-Danlos Syndrome (hEDS) or Hypermobility Spectrum Disorder (HSD) typically comes with the advice to exercise regularly. But patients with these conditions…
We have recently posted information on headaches from our neurological headache expert, Dr. Todd Rozen. Headaches are a significant and common contribution to the pain suffered…
We previously shared the case of a patient, Debbie, who had hEDS and medication intolerance, leading to a pharmacogenomics (PGx) consultation. In this post, we’ll…
It has been a while since we shared news from our research arm of The EDS Clinic, but we have been actively researching. Since our…
What is pharmacogenomic testing and who is it for? Debbie, a preschool teacher, seemed nervous. It was her first-time meeting with me, a clinical pharmacist…
Many patients (in some studies over 70%) with EDS develop chronic daily headache (CDH) or headaches more than 15 days per month. Many also reach…
In the spirit of guiding your well-being journey with hEDS/HSD, I thought I would share a form of exercise that is for everyone, that can…
Medical Marijuana has gained a lot of attention recently, and for good reason. There is evidence that it might help treat various conditions, not only…
“Why do I need to see a speech pathologist? There is nothing wrong with my speech.” This question and statement combination start many of my…
Women with EDS/HSD should consult with a Pelvic Physical Therapist early in their pregnancy to establish care and for evaluation of pelvic girdle joint and…
Previously, we gave an overview on POTS and the diagnosis of POTS. Now, we want to answer the question - How are POTS and orthostatic intolerance…
Pilates has become well known in the fitness industry over the last decade, but it was actually invented back in 1912 by Joseph Pilates. He…
Connect