The Dementia Hub is your one-stop place for information, resources, support, and connection. The Hub, as we like to call it, is intended for persons living with dementia, as well as the caregivers, families, and friends who support them. Here at The Hub, you'll find current and upcoming programs and events on brain health, dementia, caregiving, and research. The Hub is a place to engage with others, share experiences and ideas, ask questions, and feel connected.

Public blog

Below you can find some resources on caregiving:

 

Mayo Clinic Resources

Research Websites

Rochester Alzheimer's Disease Research Center Website 

The Alzheimer's Disease Research Center at Mayo Clinic promotes research and education about healthy brain aging, mild cognitive impairment, Alzheimer's disease, Lewy body dementia, frontotemporal dementia and other related dementias.

The Alzheimer's Disease Research Center, which is jointly based at the Mayo Clinic campuses in Jacksonville, Florida and Rochester, Minnesota, also provides care and services for patients with dementia disorders and their families.

Visit the center's research website for more information.

 

Florida Dementia Community Outreach and Engagement Website

The Jacksonville Alzheimer's Disease Research Center offers a variety of conferences, seminars and events for patients and their families, caregivers, and community members in Florida.

The overall goal of the education series is to improve participants' understanding of dementia, including symptoms and behavior changes.

The classes are free and open to the public. Advance registration is not required.

Visit the center's Florida Community Outreach and Engagement website for more information.

 

Programs

Mindfulness-Based Dementia Caring

Mindfulness-Based Dementia Caring (MBDC) is an 8-week program specifically designed for family care partners of persons with dementia.

Learn how the practice of mindfulness can help you cope with the challenges and stresses of dementia care. The program includes interactive mindful care practices, gentle yoga, lectures, group sharing, and at-home assignments.

For program details, including program dates and times, please contact Angela Lunde at lunde.angela@mayo.eduor call (507) 538-4048

 

Mayo Clinic Health Action to Benefit Independence and Thinking (HABIT)

Mayo Clinic offers HABIT, a comprehensive program for people diagnosed with mild cognitive impairment. The program addresses cognitive changes and helps participants incorporate new habits that can play a role in optimizing independence and overall health and well-being. For more information, email habitprogram@mayo.edu, call (608) 392-9371, or visit their Mayo Connect page,Living with Mild Cognitive Impairment (MCI).

Support Groups

The Mayo Clinic ADRC offers a variety of support groups to meet individual needs. Each of the groups offer a setting where participants share experiences and feelings with others on a similar care giving path with opportunities for reflection, problem solving, and information exchange.

Led by Mayo Clinic facilitators, the purpose of these groups is for individuals to feel heard, understood, and supported through sharing and learning.

For more information, contact Nick Rethemeier at Rethemeier.Nicholas@mayo.edu or call (507) 538-4048

 

Caring Conversations

Caring Conversations is a virtual support group for those providing support and care to a spouse, partner, relative, or close friend living with living with Alzheimer’s disease, Lewy Body dementia, Frontotemporal degeneration, mild cognitive impairment or a related disorder.

Caring Conversations meets on the 1st and 3rd Thursday of each month at 11:00am CT.

 

Caring for Lewy

Caring for Lewy is an online education and support program uniquely designed for families and relatives who provide care and/or support to a person with Lewy body dementia

Caring for Lewy meets on the 2nd Thursday of the month at 2:00pm CT.

 

Caring for FTD

Caring for FTD is a support program uniquely designed for families and relatives who provide care and/or support to a person with Frontotemporal Dementia.

Caring for FTD meets on the 3rd Tuesday of the month at 5:00pm CT.

 

Mayo Connect Dementia Caregivers Discussion Forum

The Caregivers: Dementia Discussion Forum is a peer-led, Mayo Clinic moderated group - one of 75 groups on Mayo Clinic Connect. Connect with others like you for support, practical information, and answers to your questions about caring for someone living with dementia.

Follow the group and get connected.

 

Other Mayo Clinic Resources

Book: 'Mayo Clinic on Alzheimer's Disease and Other Dementias" 

In "Mayo Clinic on Alzheimer's Disease and Other Dementias," you'll gain an understanding of dementia based on what researchers and other medical experts know about it today. You'll also learn that dementia isn't just about loss and decline. For many, a good quality of life can — and does — continue. Get the latest information on this disease from Mayo Clinic researchers and medical experts in "Mayo Clinic on Alzheimer's Disease and Other Dementias."

View the book in the Mayo Clinic Marketplace.

 

Alzheimer's Association Resources

ALZ Connected 

Powered by the Alzheimer's Association, this is a free online community for everyone affected by Alzheimer's or other dementia.

Visit

www.alzconnected.org

 

Alzheimer's Association Care Consultations

An Alzheimer's Association's Care Consultation is an in-depth personalized service for individuals and families who are facing decisions and challenges associated with Alzheimer's and other dementias. The goal for each meeting is to receive education about the diagnosis, learn how to make challenging decisions about care, and develop a plan for the future in a supportive setting. Individual and Family Sessions are available no matter where you live.

Contact

1 (800) 272-3900

 

Alzheimer's Association Support Groups

The Alzheimer's Association offer in-person support groups throughout Minnesota and across all states. These groups are for individuals living with Alzheimer's. caregivers, and others dealing with the disease. All support groups are facilitated by trained individuals.

Contact

1 (800) 272-3900

 

Alzheimer's Association Helpline

The Alzheimer's Association 24/7 Helpline is available around the clock, 365 days a year. Through this free service, specialists and master's-level clinicians offer confidential support and information to people living with the disease, caregivers, families, and the public.

Contact

Helpline: 1 (800) 272-3900

 

 

The Association for Frontotemporal Degeneration (AFTD)

AFTD's mission is to improve the quality of life of people affected by FTD and to work every day to advance : Research, Awareness, Support, Education and Advocacy.

Contact

Helpline: 1-(866) 507-7222

Web: www.theaftd.org

 

CurePSP

CurePSP is the leading source of information and support for patients and their families, other caregivers, researchers, and healthcare professionals on prime of life neurodegeneration including PSP CBD, MSA, and related diseases.

Contact

1 (800) 457-4777

Email: info@curepsp.org

 

Lewy Body Dementia Association (LBDA)

The LBDA is dedicated to raising awareness of the Lewy body dementias (LBD), supporting people with LBD, their families and caregivers and promoting scientific advances. The Association's purposes are charitable, educational, and scientific.

Contact

LBD Caregiver Line: 1 (800) 204-3054

National Office, Atlanta, Georgia: (404) 418-7396

Web: www.lbda.org

 

Dementia Action Alliance

Dementia Action Alliance (DAA) works to create a better society in which to live with dementia. They provide discussion groups, podcasts, an online resources center, a national speakers bureau, and other services. All content is shaped and informed by people living with dementia.

This Dementia Life is a heartwarming podcast produced by the DAA about living life with dementia and is available on the DAA website, YouTube, iTunes, Spotify, or wherever you get your podcasts.

Contact: 

Phone: (732) 212-9036

Web: www.daanow.org

 

U.S. Administration on Aging

ElderCare Locator

Offered by the U.S. Administration of Agining, the ElderCare locator connects individuals to services for older adults and families in the communities in which they live.

Contact

1 (800) 677-1116

web: eldercare.acl.gov

 

 

Local Organizations

Elder Network

Elder Network offers non-medical care services including Senior Advocacy, Education & Support, Companion Services, Respite Care, In-Home, Peer Support, Friendly Visitors, and Transportation in Southeast Minnesota, Olmsted, Wabasha, and Winona.

Visit the Elder Network Technology Assistance Program

 

Resources for Enhancing Alzheimer's Caregiver Health (REACH)

REACH is a program to support family members who are caring for someone with Alzheimer's disease or a related dementia. Caregivers meet one-on-one with a trained caregiver consultant who customizes each session to meet specific caregiver needs. The goals are to teach caregivers how to reduce stress, solve problems, address daily challenges, and feel confident in the care they provide and their ability to cope. This program is led by trained staff from Elder Network.

Contact

(507) 285-5272

Email: info@elder-network.org

 

Family Service Rochester 

Family Service Rochester is a community-based organization that provides senior independence services including Meals on Wheels, chore services, home safety, and more.

Contact:

Phone: (507) 287-2010

Website: www.familyservicerochester.org

 

Giving Voice

Giving Voice inspires and equips organizations worldwide to bring together people with Alzheimer's and their care partners to sing in choruses that foster joy, well-being, purpose and community understanding.

Contact

(612) 440-9660

Web: www.givingvoicechorus.org

 

Olmsted County Aging and Care Coordination Services

Home & Community Care programs designed to support elderly and disabled people in their efforts to remain living as independently in the community as possible.

Contact

(507) 328-6519

 

Resounding Voices

A community chorus in Rochester, MN welcoming those experiencing Alzheimer's disease or a related dementia and their support partners. Resounding Voices rehearses weekly and performs publicly.

Contact

(507) 218-8376

Web: www.resoundingvoices.org

 

Southeast Minnesota Area Agency on Aging (SEMAAA)

SEMAAA is a private non-profit agency servicng the eleven counties of SE MN. The Area Agency on Aging works with families, seniors, services providers, and public agencies to help support, coordinate, or develop community services. Their mission is to promote the independence and dignity of older adults so they can age successfully and remain in their home for as long as possible. SEMAAA operates the Senior LinkAge Line a free service that links people to information and assistance.

Contact

Senior LinkAge Line: 1 (800) 333-2433

 

Caregiver-Specific Organizations

Family Caregiver Alliance

The mission of Family Caregiver Alliance is to improve the quality of life for family caregivers and the people who receive their care.

Contact: 

Web: www.caregiver.org

 

National Alliance for Caregiving

The National Alliance for Caregiving is dedicated to improving the quality of life for friend and family caregivers and those in their care, by advancing research, advocacy, and innovation.

Contact: 

Web: www.caregiving.org

Additional Resources