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@kate3 hi Kate ! I am sorry you have MF ! I also have confirmed MF MYELOFIBROSIS! Confirmed by BMB BIOPSY
LESS THAN A YEAR AGO
BUT I KNOW I HAVE HAD IT FOR AT LEAST TWO YEARS! I do not know any of details of your situation but I can tell you that I have a high risk level . It’s secondary to PV , I had for over 18 years! If you feel comfortable, share more details and I and others will be happy to share our personal experiences. Good luck to you ! Hanya
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5 Reactions@kate3
Thank you!
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2 Reactions@kate3 I was diagnosed 6/2025 - what is your mutation? I have MPL with SRSF2.
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2 ReactionsThamk you all at Mayo Clinic...
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2 ReactionsThanks for your post@hanya
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1 ReactionSure appreciate everything you all do at Mayo Clinic.
THANK YOU ALL,
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2 Reactions