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441 total results
Discussions (22)
ME/CFS and loss appetite
ME/CFS and loss appetite ... and the thought of eating also makes me ... incredible support from those closest to me
Support Group: Just Want to Talk
Last active: Mar 20, 2022
LDN dosing for fibromyalgia and ME/CFS
LDN dosing for fibromyalgia and ME/CFS ... Naltroxone (LDN) for Fibromyalgia and ME ... /CFS. ... My local doctor wants me to just take
Support Group: Fibromyalgia
Last active: Apr 17 12:40pm
New diagnostic test for ME/CFS
New diagnostic test for ME/CFS ... to share with those who suffer with ME ... /CFS (or Fibromyalgia as these two disorders
Support Group: Chronic Pain
Last active: Jun 22, 2023
Yale Paper: Long COVID/ME/CFS
Yale Paper: Long COVID/ME/CFS ... article posted, some 'grab' me
Last active: 2 days ago
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) treatments
/CFS) treatments ... found any treatments that help with ME ... /CFS. ... So I guess that would be moderate ME ... /CFS.
Support Group: Just Want to Talk
Last active: Oct 15, 2023
Chronic Illnesses of Millions of Women Left Untreated
diagnosed with myalgic encephalomyelitis (ME ... known as chronic fatigue syndrome (CFS ... interviews with other severely ill ME ... /CFS patients, which Brea conducted
Support Group: Women's Health
Last active: Jan 21, 2020
Can I expect coordinated care from Post COVID Rehabilitation Program?
Took me 6 months to confines my Doctors ... , sleep apnea and narcolepsy, have me ... shared that That I think, I my have Me ... /CFS with Fibromyalgia and they basically
Last active: Aug 20, 2022
Mayo Clinic Rochester: Shuttle services between buildings
Just wondering if anyone can tell me ... how far it is to the FM/CFS building
Support Group: Visiting Mayo Clinic
Last active: Jun 23, 2020
Have Had Mono-Like/CFS Symptoms for 15 Months: Need Help
Have Had Mono-Like/CFS Symptoms for ... m looking for a specialist to help me ... limit this dosage and wanted to put me ... (The CFS clinic did confirm the active ... effects of herpes viruses and told me
Support Group: Infectious Diseases
Last active: Aug 2, 2023
Falling Asleep While Eating Lunch!
Daytime sleepiness for me, is becoming ... Anyone else with fibromyalgia, or CFS
Support Group: Autoimmune Diseases
Last active: Jul 18, 2023
Desperate for answers
desperate to find out what is wrong with me ... I was diagnosed with CFS but I feel ... more symptoms than what a person with CFS ... has.The last thing my primary care told me ... to do was find a support group for CFS
Support Group: Autoimmune Diseases
Last active: Feb 23, 2019
message from my dr about my long term covid so sad now
insurance would cover it. he gave me ... it upsets me so much that i live with ... throat hurts and my chest hurts and my CFS
Last active: Jan 11, 2023
When your doctor stops prescribing prednisone
later now these doctors don't want me ... I have debilitating cfs spasms, pain ... other things, This medicine works for me
Last active: Apr 29, 2022
Hi and thank you for all you do for us. Regarding a post from July2011
: "Why doesnt anyone write me ... 24, 2011 why doesnt anyone write me ... not surrender to this…..someone give me ... any feedback tht might help me…….. ... that I don't have tons of (I have CFS
Support Group: Just Want to Talk
Last active: Dec 30, 2022
EBV Labs. Am I contagious, are results serious or am I crazy?
NP tested me for EBV and ran labs through ... Yesterday she diagnosed me as having ... CFS and suggested Remeron for depression ... She had just diagnosed me with CFS a ... since she sent me to ID.
Support Group: Infectious Diseases
Last active: Sep 30, 2023
Autoimmune? Post-COVID?
My neurologist told me he had no clue ... ve been in a clinical trial, seen a CFS ... wasn’t sure what was going on with me ... - but I didn’t meet criteria for CFS
Support Group: Brain & Nervous System
Last active: May 17, 2023
PATCH TESTING! NEGATIVE REACTION!
Series, the first round was put on me ... from the partical that was given me ... The allergist tells me that she needed ... nauseated terrible, around I have CFS ... not been the same, physically since, CFS
Support Group: Just Want to Talk
Last active: Oct 28, 2021