Can I expect coordinated care from Post COVID Rehabilitation Program?
Started Post COVID Clinic in 2/2022, had COVID IN 2/2020. Sufferred at home with 7 round steriods, ER breathing TX, andcomplete bedbound. Took me 6 months to confines my Doctors to give order for antigion test, which was inconclusive. Started Clinic, numerous tests, MRI/LP, some indication of interracial hypertension, empty sell, and some fluid with leakage, small vessel indicators. Pulmonary Rehabilitation which causes complete exhaustion and headaches that are disabling and they continue to increase levels, deep diaphragm breathing causes severe headaches. One Dr will pass to another, or not answer at all. I have had Fibromyalgia for over 25 years, its like on steriods, sleep apnea and narcolepsy, have me exhausted by 4pm, after being at some appt, test or therapy. My AL Amyloidosis of Laryngeal area spread after 5 years remission, now severe GERD and Bacteria Overgroth Syndrome, Anxiety, Depression (been seeing Therapist and Evaluation with Psychiatrist, just increased Cymbalta), OAD, Severe RLS. Nothing is coordinated and Drs don't communicate. When I go for appt and explain symptoms and show research or how issues could be indicators or a connection they dismiss. I have not a free day without one or to appts, tests or rehab. I have shared that That I think, I my have Me/CFS with Fibromyalgia and they basically laugh. The over exertion is exhausting and headaches definitely connected, which impacts my TMJ. Just found out, I have a compression of C 4/-6. I also am left up to finding my own PT, they don't have it intergrated. What should I do. Afraid to just quit, in case something is wrong, but seem to be getting worse and anxiety depression, exhaustion, and headaches are getting worse.